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(JSOnline)   Subby couldn't get through this one without losing it. You give it a try. And hug your kids or loved ones if you can   (jsonline.com) divider line
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6017 clicks; posted to Main » on 02 Dec 2022 at 8:30 AM (8 weeks ago)   |   Favorite    |   share:  Share on Twitter share via Email Share on Facebook



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2022-12-02 3:27:16 AM  
Confirmed
 
2022-12-02 5:41:28 AM  
Bloody Hell.
 
2022-12-02 6:01:33 AM  
F*ck
 
2022-12-02 8:24:32 AM  
I made it to the diagnosis, then closed the tab.
Poor baby.   :'-(
 
2022-12-02 8:32:17 AM  
This kid has been all over my IG reels for the last couple of months. The breakdown is heartbreaking.
 
2022-12-02 8:36:29 AM  
Fuuuu....
 
2022-12-02 8:36:45 AM  
I was not thinking terminal illness but something else.

/I'm awful
 
2022-12-02 8:38:05 AM  
yeah, nope, read the headline and closed  it.   Don't need to be weeping at my morning meeting
 
2022-12-02 8:39:03 AM  
F*ck....just....f*ck.
 
2022-12-02 8:41:37 AM  
There is no one watching over us.
 
2022-12-02 8:43:28 AM  
After watching Colbert interview the gentleman who lost his son to a brain tumor, I don't have it in me to read this.
 
2022-12-02 8:44:21 AM  
Oh, Jesus H. Christ, I didn't need to ugly cry like that first thing this morning.  I hate you, subby, and I hate everything about that article except the sheer kindness and love being shown to that little girl.  fark cancer.
 
2022-12-02 8:45:01 AM  
...

...

damn.
 
2022-12-02 8:48:54 AM  
Faaaaaaaaarrrrrrrrrrkkkkkk cancer. Damn.
 
2022-12-02 8:51:54 AM  
Didn't make it through the headline. There is no god.
 
2022-12-02 8:53:08 AM  

Marcos P: There is no one watching over us.


Now tell us about your veganism.
 
2022-12-02 8:54:11 AM  
Man fark that.  My daughter turns five in March.  Based on their diagnosis-to-birthday timeline, I wouldn't even farking know yet.  Absolutely awful.
 
2022-12-02 8:54:16 AM  

RobotSpider: Didn't make it through the headline. There is no god.


I've come to the conclusion that if there is a god (or gods)...that god (or gods) gets its jollies by watching us suffer.
 
2022-12-02 8:54:31 AM  
Meanwhile people who should be riddled with terrible disease walk around healthy and hale facing no consequences for a lifetime of farkery. There is a god, but it is evil and not deserving of worship.
 
2022-12-02 8:56:24 AM  
Imagine having to be the one to break that to the parents.
 
2022-12-02 9:05:00 AM  
I get the sadness for losing the girl, but the rage at the system we find ourselves in overrides the sadness about the girl.

A week after the brain tumor diagnosis, she went to Children's Hospital of Wisconsin in Wauwatosa for an appointment. She was greeted by three women of the medical staff, each holding a Kleenex box.
"It's terminal," she was told. And to make it worse, she was soon told that she only may have about six weeks to live. "If she lives three more months, it would be a miracle," her mother said. "It sucks."


She gets diagnosed with a brain tumor that's terminal within six weeks and it takes a week for an appointment. I'm sure it probably took months to get the initial appointment where they found the brain tumor.  If it didn't take weeks or months to get appointments, they may have been able to catch it in time.

A GoFundMe account has been set up with more than $46,000 of the $100,000 goal raised as of Dec. 1.

<insert obligatory comments about needing free universal health coverage here>.GoFundMe is not a sensible way to manage health care.

Her left side of the body is not useful because of the brain tumor. She did get a Make-A-Wish trip to Disney World, which she had to cancel, her mother said, due to Delaney's health.

Because of the failures of the American health care system, she needed a private entity to help her dreams come true before she passes, but couldn't do it because of the said failures of the health system

Delaney is currently in the hospital recovering from an infection, most likely because of her shunt implants. While she is clear of infection, Krings is hoping she is well enough for her birthday party.

She has six weeks to live and has to spend more of it in the hospital because they didn't properly sterilize the environment?

The community is helping with this. For instance, when she posted the need to find a fun place for kids that is ADA-compliant, a stranger from the Pewaukee Parents Facebook Group recommended a group and gave her a $100 gift card for the family to enjoy.


Why do facilities exist that are NOT ADA-compliant?  Why are facebook groups having to exist to determine what is or isn't?

And the hospital's response to all this?  Are they contributing to all of these activities in her last weeks of life?  Nope, here's some tissues, now fark you, pay us.

/I have NOTHING good to say about hospitals and their ability to provide meaningful care
//rage isn't about the nurses, etc. at hospitals, but with the system they operate in and the leadership that drives that
 
2022-12-02 9:05:16 AM  
Well, guess I need to stop on the way home to get a birthday card and hope it gets there on time.

And now I'm desperately hoping that is the most depressing thought I have all day.
 
2022-12-02 9:05:23 AM  

lindalouwho: I made it to the diagnosis, then closed the tab.
Poor baby.   :'-(


Same.

Lost a friend to brain cancer at 31. That shiat does not fark around. But at least she got to last that long.
 
2022-12-02 9:12:27 AM  

xxBirdMadGirlxx: Well, guess I need to stop on the way home to get a birthday card and hope it gets there on time.

And now I'm desperately hoping that is the most depressing thought I have all day.


Damn. That should have read in time.
 
2022-12-02 9:29:36 AM  

Creoena: I get the sadness for losing the girl, but the rage at the system we find ourselves in overrides the sadness about the girl.

A week after the brain tumor diagnosis, she went to Children's Hospital of Wisconsin in Wauwatosa for an appointment. She was greeted by three women of the medical staff, each holding a Kleenex box.
"It's terminal," she was told. And to make it worse, she was soon told that she only may have about six weeks to live. "If she lives three more months, it would be a miracle," her mother said. "It sucks."

She gets diagnosed with a brain tumor that's terminal within six weeks and it takes a week for an appointment. I'm sure it probably took months to get the initial appointment where they found the brain tumor.  If it didn't take weeks or months to get appointments, they may have been able to catch it in time.

A GoFundMe account has been set up with more than $46,000 of the $100,000 goal raised as of Dec. 1.

<insert obligatory comments about needing free universal health coverage here>.GoFundMe is not a sensible way to manage health care.

Her left side of the body is not useful because of the brain tumor. She did get a Make-A-Wish trip to Disney World, which she had to cancel, her mother said, due to Delaney's health.

Because of the failures of the American health care system, she needed a private entity to help her dreams come true before she passes, but couldn't do it because of the said failures of the health system

Delaney is currently in the hospital recovering from an infection, most likely because of her shunt implants. While she is clear of infection, Krings is hoping she is well enough for her birthday party.

She has six weeks to live and has to spend more of it in the hospital because they didn't properly sterilize the environment?

The community is helping with this. For instance, when she posted the need to find a fun place for kids that is ADA-compliant, a stranger from the Pewaukee Parents Facebook Group recommended a group and gave her a $100 gift card for the family to enjoy.

Why do facilities exist that are NOT ADA-compliant?  Why are facebook groups having to exist to determine what is or isn't?

And the hospital's response to all this?  Are they contributing to all of these activities in her last weeks of life?  Nope, here's some tissues, now fark you, pay us.

/I have NOTHING good to say about hospitals and their ability to provide meaningful care
//rage isn't about the nurses, etc. at hospitals, but with the system they operate in and the leadership that drives that


Absolutely tragic story. Doubly so for the family for having that asshole Ron Johnson helping kill healthcare.

People should not have to rely on goddamn GoFundMe accounts when loved ones are dying of deadly disease. But, at least she'll get a nice parade instead >.>

/Why, yes, I'm a bit of a cynical bastard
 
2022-12-02 9:30:34 AM  
The most you can do is take solace in all the good people described in the article.  A whole community came together for a single child.  With all the awfulness and negativity in our world today, that's no small thing.  And the little girl is going to be loved and supported until the day she passes.  My heart breaks for her parents, but there's much to be celebrated in this.

Cancer though, cancer can go fark itself.
 
2022-12-02 9:45:02 AM  
In for $10.

There is either no God or he isn't worthy of worship.
 
2022-12-02 9:45:43 AM  

RobotSpider: Didn't make it through the headline. There is no god.


We have only each other. I have no further words.
 
2022-12-02 9:48:58 AM  

Creoena: I get the sadness for losing the girl, but the rage at the system we find ourselves in overrides the sadness about the girl.

A week after the brain tumor diagnosis, she went to Children's Hospital of Wisconsin in Wauwatosa for an appointment. She was greeted by three women of the medical staff, each holding a Kleenex box.
"It's terminal," she was told. And to make it worse, she was soon told that she only may have about six weeks to live. "If she lives three more months, it would be a miracle," her mother said. "It sucks."

She gets diagnosed with a brain tumor that's terminal within six weeks and it takes a week for an appointment. I'm sure it probably took months to get the initial appointment where they found the brain tumor.  If it didn't take weeks or months to get appointments, they may have been able to catch it in time.

A GoFundMe account has been set up with more than $46,000 of the $100,000 goal raised as of Dec. 1.

<insert obligatory comments about needing free universal health coverage here>.GoFundMe is not a sensible way to manage health care.

Her left side of the body is not useful because of the brain tumor. She did get a Make-A-Wish trip to Disney World, which she had to cancel, her mother said, due to Delaney's health.

Because of the failures of the American health care system, she needed a private entity to help her dreams come true before she passes, but couldn't do it because of the said failures of the health system

Delaney is currently in the hospital recovering from an infection, most likely because of her shunt implants. While she is clear of infection, Krings is hoping she is well enough for her birthday party.

She has six weeks to live and has to spend more of it in the hospital because they didn't properly sterilize the environment?

The community is helping with this. For instance, when she posted the need to find a fun place for kids that is ADA-compliant, a stranger from the Pewaukee Parents Facebook Group recommended a group and gave her a $100 gift card for the family to enjoy.

Why do facilities exist that are NOT ADA-compliant?  Why are facebook groups having to exist to determine what is or isn't?

And the hospital's response to all this?  Are they contributing to all of these activities in her last weeks of life?  Nope, here's some tissues, now fark you, pay us.

/I have NOTHING good to say about hospitals and their ability to provide meaningful care
//rage isn't about the nurses, etc. at hospitals, but with the system they operate in and the leadership that drives that


A lot of infections are not caused by a place not being sterile, they can be caused by your own body when it's compromised.

/ has had sepsis
// has had a necrotizing wound after surgery
 
2022-12-02 9:51:34 AM  
One of the most depressing things I've seen was watching the parents bring their kids in for treatment at the cancer center. I waited in the parking lot while my wife was having her chemo. The odd expressions on the moms faces as they unload their minivans. The mouth may smile when talking to the kid. But the smile never reaches the eyes.
 
2022-12-02 9:57:43 AM  
Definitely a sad one for sure. Had to close it because I just can't deal with a story like that right now.
Had to call EMS to take Mrs. Rngr to the ER Sunday. She has congestive heart failure as it turns out. Due to her past medical issues they are trying to figure out how to do a heart cath on her as well as trying to figure out if the dye they use to be able to see the blood flow in the coronary arteries with shut her kidneys down permanently or not since they are having issues as well.
This lady has been through the ringer in her life surviving breast cancer twice, a severe car accident, and a litany of other medical issues since we have been married. I joke with her and call her my walking talking episode of House because some of the stuff he has had I've only heard about on that show.
We have a meeting with her physicians today @ 1:00 to discuss what , if anything, other than medication they can do. It's all pretty grim right now. 
What absolutely wrecked me was when the cardiologist came in and laid all this out initially I didn't think she fully grasped the situation and when she was complaining about taking the meds they gave her, as there are a lot, I got a bit snippy and asked her did she not hear what the doctor said. She looked at me and said yes I did and I understand Then she asked me to promise that if it was her time to just let her go. Yep that did me in right there.
I'm seriously thinking she may survive this but I may not.
 
2022-12-02 9:58:15 AM  

Marcos P: There is no one watching over us.


Yeah, this is the shiat that cost me my faith. I'm guessing diffuse pontine glioma, she's the right age with the right prognosis, but there are others that are equally grim, and likewise provide proof that there's no benevolent, loving God watching over us.
 
2022-12-02 10:03:44 AM  

Netrngr: Definitely a sad one for sure. Had to close it because I just can't deal with a story like that right now.
Had to call EMS to take Mrs. Rngr to the ER Sunday. She has congestive heart failure as it turns out. Due to her past medical issues they are trying to figure out how to do a heart cath on her as well as trying to figure out if the dye they use to be able to see the blood flow in the coronary arteries with shut her kidneys down permanently or not since they are having issues as well.
This lady has been through the ringer in her life surviving breast cancer twice, a severe car accident, and a litany of other medical issues since we have been married. I joke with her and call her my walking talking episode of House because some of the stuff he has had I've only heard about on that show.
We have a meeting with her physicians today @ 1:00 to discuss what , if anything, other than medication they can do. It's all pretty grim right now. 
What absolutely wrecked me was when the cardiologist came in and laid all this out initially I didn't think she fully grasped the situation and when she was complaining about taking the meds they gave her, as there are a lot, I got a bit snippy and asked her did she not hear what the doctor said. She looked at me and said yes I did and I understand Then she asked me to promise that if it was her time to just let her go. Yep that did me in right there.
I'm seriously thinking she may survive this but I may not.


Sorry you're going through this. It's okay to take care of yourself, too, it's not selfish. You can't share from an empty cup.
 
2022-12-02 10:10:45 AM  
*tosses away link to Charles Addams movie theatre cartoon* Yeah, I'm done.

Santa and Mrs. Claus may even make an appearance.

"MAY"??!!??


They farking better get the entire farking North Pole to show up.
 
2022-12-02 10:11:53 AM  
As a single father, I simply wouldn't survive something like this. That would be just about enough of life for me.
 
2022-12-02 10:12:39 AM  

Marcos P: There is no one watching over us.


....shhhhhh..... wait for another religious thread to post in and rant, not this one.....
 
2022-12-02 10:14:38 AM  

Warthog: The most you can do is take solace in all the good people described in the article.  A whole community came together for a single child.  With all the awfulness and negativity in our world today, that's no small thing.  And the little girl is going to be loved and supported until the day she passes.  My heart breaks for her parents, but there's much to be celebrated in this.

Cancer though, cancer can go fark itself.


So shines a good deed in a weary world." - William Shakespeare
 
2022-12-02 10:25:55 AM  

Netrngr: Definitely a sad one for sure. Had to close it because I just can't deal with a story like that right now.
Had to call EMS to take Mrs. Rngr to the ER Sunday. She has congestive heart failure as it turns out. Due to her past medical issues they are trying to figure out how to do a heart cath on her as well as trying to figure out if the dye they use to be able to see the blood flow in the coronary arteries with shut her kidneys down permanently or not since they are having issues as well.
This lady has been through the ringer in her life surviving breast cancer twice, a severe car accident, and a litany of other medical issues since we have been married. I joke with her and call her my walking talking episode of House because some of the stuff he has had I've only heard about on that show.
We have a meeting with her physicians today @ 1:00 to discuss what , if anything, other than medication they can do. It's all pretty grim right now. 
What absolutely wrecked me was when the cardiologist came in and laid all this out initially I didn't think she fully grasped the situation and when she was complaining about taking the meds they gave her, as there are a lot, I got a bit snippy and asked her did she not hear what the doctor said. She looked at me and said yes I did and I understand Then she asked me to promise that if it was her time to just let her go. Yep that did me in right there.
I'm seriously thinking she may survive this but I may not.


Oh honey.
*hug*
And a *hug* for the Mrs.
 
2022-12-02 10:28:09 AM  
...goddammit...fark you, universe...fark you...
 
2022-12-02 10:32:48 AM  
A Gofundme.
A Goddamned, motherf**king, shiat-eating, sonofabiatching gofundme.
Holy shiat, America.
Do something.
 
2022-12-02 10:53:03 AM  
After my older son died in 2015, I offered my soul if it would keep another family from having to experience the pain of losing a child.  Sadly, we can't make that kind of deal.

Damn you, universe.  Damn you to Hell.
 
2022-12-02 11:04:44 AM  

FLMountainMan: Marcos P: There is no one watching over us.

Now tell us about your veganism.


Becasue OF COURSE that's what would bother you about this whole story - not a little girl dying of cancer, but someone questioning the reality of your god.

Shouldn't you be out campaigning for Ron DeSantis or something?
 
2022-12-02 11:07:04 AM  

Texas Gabe: FLMountainMan: Marcos P: There is no one watching over us.

Now tell us about your veganism.

Becasue OF COURSE that's what would bother you about this whole story - not a little girl dying of cancer, but someone questioning the reality of your god.

Shouldn't you be out campaigning for Ron DeSantis or something?


Floriduh Man gonna Floriduh.
 
2022-12-02 11:16:28 AM  

Warthog: The most you can do is take solace in all the good people described in the article.  A whole community came together for a single child.  With all the awfulness and negativity in our world today, that's no small thing.  And the little girl is going to be loved and supported until the day she passes.  My heart breaks for her parents, but there's much to be celebrated in this.

Cancer though, cancer can go fark itself.


I live in the next town over and we had a similar situation a few years ago with a neighbor who was crazy about dogs. It started with people sending her photos of their dogs and grew. One Saturday, K-9 handlers from police forces all over the state showed up with their dogs to have a meet and greet with Emma. She passed away a few months later but the family started a foundation with donated funds which they use to support K-9's and no-kill shelters (including our local one which was in the news a week or so ago when a plane full of dogs going there crashed into a golf course).

I love living here. Yes, it is solid red which drives me nuts but the people are generally good people. The birthday parade is going to be huge and I know several of the participants. We are a bunch of small towns close together about 30 miles west of Milwaukee. Not suburbs, but definitely towns that started growing when white flight started.
 
2022-12-02 11:31:01 AM  

Creoena: I get the sadness for losing the girl, but the rage at the system we find ourselves in overrides the sadness about the girl.

A week after the brain tumor diagnosis, she went to Children's Hospital of Wisconsin in Wauwatosa for an appointment. She was greeted by three women of the medical staff, each holding a Kleenex box.
"It's terminal," she was told. And to make it worse, she was soon told that she only may have about six weeks to live. "If she lives three more months, it would be a miracle," her mother said. "It sucks."

She gets diagnosed with a brain tumor that's terminal within six weeks and it takes a week for an appointment. I'm sure it probably took months to get the initial appointment where they found the brain tumor.  If it didn't take weeks or months to get appointments, they may have been able to catch it in time.

A GoFundMe account has been set up with more than $46,000 of the $100,000 goal raised as of Dec. 1.

<insert obligatory comments about needing free universal health coverage here>.GoFundMe is not a sensible way to manage health care.

Her left side of the body is not useful because of the brain tumor. She did get a Make-A-Wish trip to Disney World, which she had to cancel, her mother said, due to Delaney's health.

Because of the failures of the American health care system, she needed a private entity to help her dreams come true before she passes, but couldn't do it because of the said failures of the health system

Delaney is currently in the hospital recovering from an infection, most likely because of her shunt implants. While she is clear of infection, Krings is hoping she is well enough for her birthday party. like

She has six weeks to live and has to spend more of it in the hospital because they didn't properly sterilize the environment?

The community is helping with this. For instance, when she posted the need to find a fun place for kids that is ADA-compliant, a stranger from the Pewaukee Parents Facebook Group recommended a ...


So much THIS!
I live in Montreal. The free universal healthcare system is tottering and about to come crashing down. Here at least. Worked like a rented mule support staff, nurses leaned on to an incredible degree (they 99% came through like champs). Obtuse legislation for abstruse reasons makes it really hard to attract GP's which results in an alarmingly large # of regular folk without a family doctor. I've got one, I think. I'd best check on that. I'm lucky in that I know without a doubt I have the $ backing privately if any health crises occur. Just my thoughts off the cuff.
/Free ain't free, pay your freakin' taxes (eyeing 1%'ers here)
//Shiatty gov't management makes me cry (I'm sensitive so sue me)
///And three slashies are thus attained.
 
2022-12-02 11:41:31 AM  
Alec Jones says that she and her whole family are actors. It's all a hoax.

//probably
 
2022-12-02 11:57:12 AM  
Dear Cancer

Fark user imageView Full Size


No go be a good entity of destruction and inflict yourself on assholes who deserve you.
 
2022-12-02 11:59:37 AM  

Trucker: After my older son died in 2015, I offered my soul if it would keep another family from having to experience the pain of losing a child.  Sadly, we can't make that kind of deal.

Damn you, universe.  Damn you to Hell.


The Universe response is simple: "It's not personal, Sonny. It's strictly business."
 
2022-12-02 11:59:58 AM  
IANAD, but the timeline they've been given suggests Glioblastoma. Since she's had multiple surgeries, she may have the kind that returns, called
Recurrent Glioblastoma Multiforme. RGM has an average survival of around 5-8 months. It has a horrible survival rate. Glioblastoma is an especially awful, evil disease.

A friend from junior high school died from it. He a shunt and had had several surgeries by the time I met him. It quickly took everything from him. He outlived the average survival rate, but it still took him away.  That was over 40 years ago, and the outcome is still miserable.

I only mention any of this because we need to put much more money into research. What is learned about treating and preventing one type of cancer is useful in treating other types and even other conditions. We could research it, but we collectively choose not to if we do nothing individually. Vote for candidates who support cancer research. Call, write, and advocate; demanding that cancer research be fully funded. Your voice matters. Families shouldn't have to have bake sales to raise money for research, and it's appalling that they do.

Requiescat in pace, Kevin. You will always be missed.
 
2022-12-02 1:03:22 PM  

dustbunnyboo: IANAD, but the timeline they've been given suggests Glioblastoma. Since she's had multiple surgeries, she may have the kind that returns, called
Recurrent Glioblastoma Multiforme. RGM has an average survival of around 5-8 months. It has a horrible survival rate. Glioblastoma is an especially awful, evil disease.

A friend from junior high school died from it. He a shunt and had had several surgeries by the time I met him. It quickly took everything from him. He outlived the average survival rate, but it still took him away.  That was over 40 years ago, and the outcome is still miserable.

I only mention any of this because we need to put much more money into research. What is learned about treating and preventing one type of cancer is useful in treating other types and even other conditions. We could research it, but we collectively choose not to if we do nothing individually. Vote for candidates who support cancer research. Call, write, and advocate; demanding that cancer research be fully funded. Your voice matters. Families shouldn't have to have bake sales to raise money for research, and it's appalling that they do.

Requiescat in pace, Kevin. You will always be missed.


Could be RGM, could also be DIPG.  We've had three kids die of DIPG in our immediate community in the past decade, including a co-worker's son.  Just heartbreaking.
 
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