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(WBTV 3 Charlotte)   RE: RE: RE: RE: RE: FWD: FWD: RE: FWD: You have cancer   (wbtv.com) divider line
    More: Strange, Health care provider, Physician, Breast cancer, Health care, Medicine, Health, Health informatics, Patient  
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4616 clicks; posted to Main » on 19 May 2022 at 12:35 PM (5 weeks ago)   |   Favorite    |   share:  Share on Twitter share via Email Share on Facebook



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2022-05-19 10:57:41 AM  
This almost seems more like a failure in a cultural expectation (Ie, the doctor calling rather than receiving bad news by email or status update) than any real sin by the establishment...

Realistically, is that any more shocking than checking your covid test online and finding it positive, or looking at STD/HIV testing results online?
 
2022-05-19 12:05:54 PM  
As I get older, and have had more serious health issues (prostate cancer, for one), the major issue I have is with all the different "portals" used by hospital systems, healthcare insurers, pharmacies, and the medical practice offices.

I have two different doctor's offices that use the same portal provider, and they each gave me a different login. But something got crossed up, and I can't log in to either account. I can't reset anything on my own, the company that runs the system only does support for the doctor's offices, where the underpaid and overwhelmed receptionist is expected to support the damn thing.

I managed to track down the portal company support people, but they were completely useless. Everything goes back to the doctor's office. It's a stupid system.
 
2022-05-19 12:37:44 PM  
pretty sure I have cancer. I am okay with that. who wants to live forever.
 
2022-05-19 12:38:45 PM  
You should get the news from your Facebook feed, like everything else.
Or possibly in a tweet.
 
2022-05-19 12:39:43 PM  
What the fark is an "all-about-pink attitude"?
 
2022-05-19 12:40:02 PM  
This is exactly why the law was enacted. People don't want to wait to find out their test results.
 
2022-05-19 12:40:43 PM  
Cancer goes to the doctor. Says, "Doctor, I don't feel so good."  Doctor does some tests and comes back with the results.  Doctor says, "Cancer, there's no easy way to say this.  You've  stage four Putin."
 
2022-05-19 12:40:59 PM  
That's it! I'm unfollowing cancer on ALL social media!
 
2022-05-19 12:41:00 PM  

Unobtanium: As I get older, and have had more serious health issues (prostate cancer, for one), the major issue I have is with all the different "portals" used by hospital systems, healthcare insurers, pharmacies, and the medical practice offices.

I have two different doctor's offices that use the same portal provider, and they each gave me a different login. But something got crossed up, and I can't log in to either account. I can't reset anything on my own, the company that runs the system only does support for the doctor's offices, where the underpaid and overwhelmed receptionist is expected to support the damn thing.

I managed to track down the portal company support people, but they were completely useless. Everything goes back to the doctor's office. It's a stupid system.


Yep, Why pay for decent tech support when your clientele have no choice, you can't apply capitalism to healthcare without breaking the first rule of health care "cause no harm"
 
2022-05-19 12:41:56 PM  

TheDarkSaintOfGin: What the fark is an "all-about-pink attitude"?


It's a pornhub category.
 
2022-05-19 12:43:20 PM  

Somaticasual: This almost seems more like a failure in a cultural expectation (Ie, the doctor calling rather than receiving bad news by email or status update) than any real sin by the establishment...

Realistically, is that any more shocking than checking your covid test online and finding it positive, or looking at STD/HIV testing results online?


I think the idea is that the doctor can not only deliver the news in a less clinical way than an email, but also that they are immediately there to answer questions.

For example, I knew I had cancer before the doc told me, not because of this kind of notification, but because I read the labs and interpreted them. But I had to wait like 2 days to talk to the doctor. For some people, it would have been much better if they waited the two extra days with no news, than to sit there and know the bad news, but have no idea what can/will be done about it.
 
2022-05-19 12:45:22 PM  
seenonceleb.comView Full Size
 
2022-05-19 12:46:26 PM  
It should be pointed out that these problems in American health care are not the fault of doctors and nurses, but on the carpet baggers that want healthcare to remain a publicly traded commodity
 
2022-05-19 12:47:39 PM  
If you want your doctor to tell your about your lab results, then don't check your farking lab results before talking to your doctor. This isn't hard. And they don't email you the results, they send you an email telling you your lab results have been published in your lab portal. There are multiple steps you have to take to get the information.

You can also "opt out" if you don't want to be notified of your lab results directly, but she didn't opt out. Maybe now she will.
 
2022-05-19 12:50:23 PM  

TheDarkSaintOfGin: What the fark is an "all-about-pink attitude"?


Breast cancer culture. Some people embrace it. Others, yours truly's breast-cancer-surviving spouse included, take a different view.

https://pinkribbonblues.org/wp-content/uploads/2010/08/Ehrenreich-2001-WelcomeToCancerland-Harpers.pdf
 
2022-05-19 12:50:51 PM  
Reminds me of an "awkward text messages" screen capture of a doctor's office refusing to tell a patient their test results via text and insisting that they schedule an appointment to get the results.  When they refuse to tell you the results by text or over the phone, it's just as traumatizing for anyone with an IQ above room temperature.
 
2022-05-19 12:51:02 PM  

Begoggle: You should get the news from your Facebook feed, like everything else.
Or possibly in a tweet.


I hesitatingly funnied this, but I really wanted to sad this.
 
2022-05-19 12:51:08 PM  

watching the trump puddle dry: It should be pointed out that these problems in American health care are not the fault of doctors and nurses, but on the carpet baggers that want healthcare to remain a publicly traded commodity


Actually, in this case, it was congress in 2021. The physicians told them this kind of thing would happen, but they pushed it through anyway. Now it happened, and the person is mad at the doctors/hospital for following a law they disagree with.
 
2022-05-19 12:52:03 PM  
this is one of those situations where you're damned if you do, damned if you don't.  results in our system auto release to the patient in a very short timeframe, though there are specific ones that have an extended stay with the expectation that they're contacted before that timeframe comes up (i know HIV is one of them).

On one hand, patients want to know as soon as possible, and theres regulations invovled too. so we set the system up that way.  the big problem is when implementing those changes, lab personel really need to tell us programmers "set these specific results to not release until X".  and no one ever cares until you have a patient complaint/issue like this at hand.
 
2022-05-19 12:52:37 PM  
Fark user imageView Full Size
 
2022-05-19 12:54:34 PM  

Mikey1969: I think the idea is that the doctor can not only deliver the news in a less clinical way than an email, but also that they are immediately there to answer questions.


The flip side to this that you'll probably not hear anything the doctor has to say after they tell you, and won't think of the questions you wanted to ask until after you leave. Having some time lets you get over the initial shock and lets you research some ideas about treatment options so you can see the doctor more informed with the necessary terminology and a basic idea of the options.

I just had to play telephone tag with the doctor just for her to tell me there was no issue. Was freaked out for a couple days about my STI test.

Apparently, it's common in China to not even tell the patient they have cancer, just the family.
 
2022-05-19 12:58:45 PM  

Mikey1969: Somaticasual: This almost seems more like a failure in a cultural expectation (Ie, the doctor calling rather than receiving bad news by email or status update) than any real sin by the establishment...

Realistically, is that any more shocking than checking your covid test online and finding it positive, or looking at STD/HIV testing results online?

I think the idea is that the doctor can not only deliver the news in a less clinical way than an email, but also that they are immediately there to answer questions.

For example, I knew I had cancer before the doc told me, not because of this kind of notification, but because I read the labs and interpreted them. But I had to wait like 2 days to talk to the doctor. For some people, it would have been much better if they waited the two extra days with no news, than to sit there and know the bad news, but have no idea what can/will be done about it.


Admittedly,
I can definitely see the benefit of having someone to answer questions or potentially work a patient through the first stages of shock or a stunning diagnosis. In cases where expected, Perhaps the workaround could be something like replacing the automated results with instructions to contact them if they haven't heard from teh doctor first?

///although with modern medicine, let's be honest. It's going to be an automated voice reassuring you with platitudes even hallmark wouldn't dare print...
 
2022-05-19 12:59:59 PM  
What about singing telegram?

Sorry, you've got cancer
It's malignant, not benign
But with proper treatment,
It's possible you'll be fine!
 
2022-05-19 1:01:49 PM  
Sadly, she'll probably be way more upset when she starts receiving the medical bills for her treatment.
 
2022-05-19 1:10:37 PM  

Lars The Canadian Viking: Mikey1969: I think the idea is that the doctor can not only deliver the news in a less clinical way than an email, but also that they are immediately there to answer questions.

The flip side to this that you'll probably not hear anything the doctor has to say after they tell you, and won't think of the questions you wanted to ask until after you leave. Having some time lets you get over the initial shock and lets you research some ideas about treatment options so you can see the doctor more informed with the necessary terminology and a basic idea of the options.

I just had to play telephone tag with the doctor just for her to tell me there was no issue. Was freaked out for a couple days about my STI test.

Apparently, it's common in China to not even tell the patient they have cancer, just the family.


Oh yeah, I see that. I preferred knowing, but I can see where some people would rather get it straight from the person who can answer all of the questions.
 
2022-05-19 1:17:51 PM  

Unobtanium: As I get older, and have had more serious health issues (prostate cancer, for one), the major issue I have is with all the different "portals" used by hospital systems, healthcare insurers, pharmacies, and the medical practice offices.

I have two different doctor's offices that use the same portal provider, and they each gave me a different login. But something got crossed up, and I can't log in to either account. I can't reset anything on my own, the company that runs the system only does support for the doctor's offices, where the underpaid and overwhelmed receptionist is expected to support the damn thing.

I managed to track down the portal company support people, but they were completely useless. Everything goes back to the doctor's office. It's a stupid system.


In Canada, my prostate cancer diagnosis came directly from the assigned urologist in a face to face meeting.   Can't imagine it being done just via email, as as soon as you are diagnosed a whole series of events take place that are best explained in person.
 
2022-05-19 1:23:01 PM  
I never look at test results until the doctor contacts me, since I'm one of those people who would misunderstand the results or either under or over react to the findings.
 
2022-05-19 1:28:39 PM  
No matter how you find out , Cancer sucks ..
 
2022-05-19 1:28:52 PM  
If you don't want this to happen, don't give them your email address. They don't need to have it. I have a health portal, which gives me all my info that's up to date. If I want to know something, test results etc, I can and do log in. And no, they don't have my email address.
 
2022-05-19 1:31:43 PM  

Mikey1969: Oh yeah, I see that. I preferred knowing, but I can see where some people would rather get it straight from the person who can answer all of the questions.


Agreed, seems like one of those things to let people decide what they want and check a box when they get the test done.
 
2022-05-19 1:33:13 PM  

northernmanor: If you don't want this to happen, don't give them your email address. They don't need to have it. I have a health portal, which gives me all my info that's up to date. If I want to know something, test results etc, I can and do log in. And no, they don't have my email address.


edit: they do have my email address. I do get emails from the office saying that there is an update in my portal. It's up to me to log in if I want, and/or call the Dr if I choose.
 
2022-05-19 1:35:50 PM  

Mega Steve: What about singing telegram?

Sorry, you've got cancer
It's malignant, not benign
But with proper treatment,
It's possible you'll be fine!


Cancer-grams?!
 
2022-05-19 1:39:04 PM  

trippdogg: [Fark user image 425x304]


i.pinimg.comView Full Size
 
2022-05-19 1:39:09 PM  
https://twitter.com/OffbeatLook/status/1526618863646949376

Fark user imageView Full Size

Weeping at the gas station can save you money.
 
2022-05-19 1:41:00 PM  
All my medical people use MyChart.  I frequently see the results before the doctors.  For example, I knew the results of my last CT scan showing my tumors had shrunk 76% before my oncologist did.
 
2022-05-19 1:46:26 PM  
My wife had a brain tumor removed 2 weeks ago.  In the lead up she had to have a lot of tests done.  She got the results on her MyChart app before the doctors were even able to review them.  Like the results of a blood test that showed that her blood sugar was high.  She was crying because with all the pain drugs she was on she thought that meant she was type 2 diabetic.  I explained that she had eaten an hour or so before the blood test and they hadn't had her fast because blood sugar wasn't something they were looking for.  It's was just part of the range of tests they had done.  The doctor confirmed this.  She also got the results of the biopsy of the tumor, thankfully benign, before the doctor was able to review that too.

Her doctor said that they used to be able to delay those test results being posted to MyChart until after they had spoken with the patient but no longer can.  He said that people are getting, and in some cases misinterpreting test results and they are getting hysterical phone calls almost every day.
 
2022-05-19 1:48:04 PM  

bighairyguy: All my medical people use MyChart.  I frequently see the results before the doctors.  For example, I knew the results of my last CT scan showing my tumors had shrunk 76% before my oncologist did.


Yeah, I love MyChart. Now that my health provider has gotten it updated, that is. For the longest time, my history on there was almost non existent. Now it's all good, and yeah, it's a great tool.
 
2022-05-19 1:49:25 PM  
With fewer people wanting to be doctors and the coming medical shortage. I can see this being the new norm.
 
2022-05-19 1:51:19 PM  

northernmanor: If you don't want this to happen, don't give them your email address. They don't need to have it. I have a health portal, which gives me all my info that's up to date. If I want to know something, test results etc, I can and do log in. And no, they don't have my email address.


The default if they don't have your email is they  post them to Twitter.
 
2022-05-19 1:53:52 PM  

Arkkuss: My wife had a brain tumor removed 2 weeks ago.  In the lead up she had to have a lot of tests done.  She got the results on her MyChart app before the doctors were even able to review them.  Like the results of a blood test that showed that her blood sugar was high.  She was crying because with all the pain drugs she was on she thought that meant she was type 2 diabetic.  I explained that she had eaten an hour or so before the blood test and they hadn't had her fast because blood sugar wasn't something they were looking for.  It's was just part of the range of tests they had done.  The doctor confirmed this.  She also got the results of the biopsy of the tumor, thankfully benign, before the doctor was able to review that too.

Her doctor said that they used to be able to delay those test results being posted to MyChart until after they had spoken with the patient but no longer can.  He said that people are getting, and in some cases misinterpreting test results and they are getting hysterical phone calls almost every day.


Pathology and radiology reports in particular are so damn technical and have so many scary-sounding words that many patients get freaked out reading them or come to the wrong conclusion.
 
2022-05-19 1:54:23 PM  

alex10294: watching the trump puddle dry: It should be pointed out that these problems in American health care are not the fault of doctors and nurses, but on the carpet baggers that want healthcare to remain a publicly traded commodity

Actually, in this case, it was congress in 2021. The physicians told them this kind of thing would happen, but they pushed it through anyway. Now it happened, and the person is mad at the doctors/hospital for following a law they disagree with.


Word
 
2022-05-19 1:55:18 PM  

chucknasty: pretty sure I have cancer. I am okay with that. who wants to live forever.


I do.
 
2022-05-19 2:06:55 PM  

Arkkuss: My wife had a brain tumor removed 2 weeks ago.  In the lead up she had to have a lot of tests done.  She got the results on her MyChart app before the doctors were even able to review them.  Like the results of a blood test that showed that her blood sugar was high.  She was crying because with all the pain drugs she was on she thought that meant she was type 2 diabetic.  I explained that she had eaten an hour or so before the blood test and they hadn't had her fast because blood sugar wasn't something they were looking for.  It's was just part of the range of tests they had done.  The doctor confirmed this.  She also got the results of the biopsy of the tumor, thankfully benign, before the doctor was able to review that too.

Her doctor said that they used to be able to delay those test results being posted to MyChart until after they had spoken with the patient but no longer can.  He said that people are getting, and in some cases misinterpreting test results and they are getting hysterical phone calls almost every day.


Yes, this is where I can see it being an issue. I like to know ahead, but I try not to read TOO Much into it, because I'm not an expert. Some people are going to absolutely freak...
 
2022-05-19 2:10:58 PM  

KB202: chucknasty: pretty sure I have cancer. I am okay with that. who wants to live forever.

I do.


I've always found that those who want to live forever are afraid they're going to hell.
 
2022-05-19 2:18:51 PM  

fiddlehead: Arkkuss: My wife had a brain tumor removed 2 weeks ago.  In the lead up she had to have a lot of tests done.  She got the results on her MyChart app before the doctors were even able to review them.  Like the results of a blood test that showed that her blood sugar was high.  She was crying because with all the pain drugs she was on she thought that meant she was type 2 diabetic.  I explained that she had eaten an hour or so before the blood test and they hadn't had her fast because blood sugar wasn't something they were looking for.  It's was just part of the range of tests they had done.  The doctor confirmed this.  She also got the results of the biopsy of the tumor, thankfully benign, before the doctor was able to review that too.

Her doctor said that they used to be able to delay those test results being posted to MyChart until after they had spoken with the patient but no longer can.  He said that people are getting, and in some cases misinterpreting test results and they are getting hysterical phone calls almost every day.

Pathology and radiology reports in particular are so damn technical and have so many scary-sounding words that many patients get freaked out reading them or come to the wrong conclusion.


My doctor hates me because we argue about some of the tests and conclusions you can make from them.
 
2022-05-19 2:35:56 PM  
I gotta tell you, getting the phone call ain't much better.
 
2022-05-19 2:43:14 PM  

bighairyguy: All my medical people use MyChart.  I frequently see the results before the doctors.  For example, I knew the results of my last CT scan showing my tumors had shrunk 76% before my oncologist did.


That's great news, dude!  Here's to many more

I got my PET results monday before I got home from the hospital.  However, not before the radiologists put their unrelated-to-my-condition, revenue-generating findings on it, though.
 
2022-05-19 2:50:00 PM  
Fark user imageView Full Size
 
2022-05-19 4:15:16 PM  

bighairyguy: All my medical people use MyChart.  I frequently see the results before the doctors.  For example, I knew the results of my last CT scan showing my tumors had shrunk 76% before my oncologist did.


MyChart patient here, too. My first experience with it and so far, so good. I have been relieved to be able to see my reports and know what questions to ask when I get to the docs. But so far my reports have been good, it may change when I get a bad one.
Glad to hear your tumor is shrinking. I just went thru the scare and had one removed last week and recuperating. I haven't heard the results of my biopsy yet but the doc at the Duke Cancer Center that pulled it out had said these types were usually benign.
 
2022-05-19 4:17:56 PM  
Dermatologist
Youtube DMrseaF-Ybw
 
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