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(Very Well Health.com)   Not News: Farker has cognitive impairment. News: No alcohol was involved. Fark: Yep, it's long-haul COVID (DIT)   (verywellhealth.com) divider line
    More: Scary, Endothelium, Olfaction, Vagus nerve stimulation, Neurology, Blood vessel, Brain, Existential quantification, Long COVID  
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2055 clicks; posted to Main » on 26 Feb 2021 at 8:00 AM (6 weeks ago)   |   Favorite    |   share:  Share on Twitter share via Email Share on Facebook



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2021-02-25 11:41:18 AM  
Posting for Submitter, a long-time Farker:

Hi, everyone. Subby (and article subject) here. I've been sick for close to 10 months with long-haul COVID, or what Dr. Fauci and his team are now calling PASC (the full name's a bit complicated, but it basically means Post-Acute COVID Syndrome).

I'm really passionate about trying to advocate for long-haulers where I can, and the article deals a lot with the cognitive issues that many long-haulers face, but that haven't yet been talked about as much as the physical issues have been.

I know my writing may make it seem like I'm OK, but as you see in the article, I'm not.

The overwhelming majority of known long-haulers are also women, so I hope to raise awareness that it affects guys too and encourage ones who may have been dealing with these weird (to say the least) issues in silence to come forward and hopefully get the help they need.

If you want to learn more about all this, please check out https://longcovidalliance.org/, which went live today and is a partnership between many organizations dedicated to finding treatment and assistance for long-haulers.

Also, if you decide that you want and are able to help me out directly, you can donate to my GoFundMe here: https://www.gofundme.com/f/comm​unity-h​elp-for-mike-and-lexi.

Please do NOT feel obligated in any way to donate - I'm mostly sharing my story to raise awareness - but I'm not going to lie: it would really help my wife and me if you could.

Thanks for your support, and for reading this far!
 
2021-02-25 10:05:00 PM  
*hug*
 
2021-02-25 10:18:10 PM  
Thank you for sharing and good luck dude.
 
2021-02-25 10:18:11 PM  
Best of luck, subby.
 
2021-02-25 10:18:19 PM  
Sorry Subs. I hope they can get this figured out.
 
2021-02-25 10:19:27 PM  
I am very sorry to hear that. I am very sorry to hear anybody will suffer because of a freak quirk of the Covid-19 virus which allows it to invade several different systems in the human body. It's a very nasty disease that apparently has little effect on some and horrible effects on others, without much rhyme or reason.
 
2021-02-26 2:24:35 AM  
Thanks for sharing your story. People need to know about this. I hope you can recover completely and soon.
 
2021-02-26 4:46:47 AM  
Good article, and thanks for being so open about your struggles. Wishing you hugs and peace.
 
2021-02-26 6:38:46 AM  
 Heidenberg? It sounds like things, in principle, are uncertain right now

But I hope your recovery continues and more people stop seeing masks as some political statement, and more of a caring act toward their fellow human beings
 
2021-02-26 7:08:10 AM  
I hope you get better.
 
2021-02-26 8:04:56 AM  
I am capable of prodigious amounts of snark, but I'm putting all of that aside right now and giving my heartfelt sympathies instead.  Carry on, brother.
 
2021-02-26 8:07:26 AM  
Damn.

Thank you for sharing your story.
 
2021-02-26 8:08:26 AM  
64.media.tumblr.comView Full Size
 
2021-02-26 8:14:11 AM  
Get well and stay strong subby.
 
2021-02-26 8:16:26 AM  
Oh man, that sounds like a huge daily challenge.  I'm hoping it clears up sooner than later.

And very good on you for setting up the site and putting together a community while you have your own personal issues to try to navigate through.

You're a good person.
 
2021-02-26 8:17:10 AM  
I am so sorry you are suffering from this.

Also, are you a hundred percent sure alcohol is not involved?  I mean I can not simply rap my mind around a fark moderator not having every aspect of hos life influenced by alcohol in some way.
 
2021-02-26 8:18:04 AM  
Reading the article, this sounds like hell on earth. Especially coming from a fellow academic. Thank you for sharing your story and raising my awareness.
 
2021-02-26 8:19:53 AM  
*Reads the Boobies*

Lessee... spelling checks out. Grammar is good. Spelli--

*looks around*

What?  This is Fark, fer crying out loud.

/ seriously though, subby: get better soon.
/ best of luck
/
 
2021-02-26 8:22:27 AM  
Damn Subs.  I hope you're improve.  Something tells me you'll still fit right in here.
 
2021-02-26 8:24:57 AM  
That sounds incredibly frustrating and scary to deal with all the moreso because it's not being fully recognized for the problem it is. I know the focus is on getting everyone vaccinated right now but at some point a lot of research needs to be done in this area to see how covid is causing these symptoms and if it can be rectified. There are a lot of people who's quality of life depends on it.
 
2021-02-26 8:38:04 AM  
I cannot imagine the affect this is having on your and your friends and family.  I am hoping that as time goes on, the symptoms subside and/or disappear completely.  What a life changing event.  I am glad you are sharing your story with others, as far too many people do not take Covid seriously.  I hope your recovery is quick and complete.  Stay strong.
 
2021-02-26 8:38:05 AM  

liltingbanshee: Thanks for sharing your story. People need to know about this. I hope you can recover completely and soon.


People really need to know.

I mentioned recently in another thread that my mom suffered from two things (post Covid), pain when inhaling, infrequently, and once playing jigsaw on her iPad when she didn't realize what she was doing, but then realized it was the iPad, but couldn't understand what she was doing on it, until her mind refocused. So to speak.
It only happened once, and I took her to the hospital to get her checked up for blood clots, was worried about both symptoms being clots.
The breathing thing turned out to be an infection in the layer around the lungs. The brain fuzziness was not explained.

Hope it doesn't recur.

Good luck, professor, this really hit where it hurts.
 
2021-02-26 8:41:26 AM  
Good luck subby, we're all pulling for you.
 
2021-02-26 8:41:52 AM  
Thanks for sharing your experience about your ordeal. It's very informative and I expect your story will help many others in this situation to understand their own issues. I hope you and your family and friends find some relief.
 
2021-02-26 8:51:05 AM  
Have you ever tried long-haul ... on weed!?

Kidding, sort of. Best wishes for your recovery and hope something comes along to alleviate your suffering.

/ Damned bug scares hell out of me, sad it happened to a Farker.
// Likely not the only one by a long shot either.
 
2021-02-26 8:52:23 AM  
I got sick a year ago and am convinced I had it. It was in February and COVID wasn't really on the radar yet but I felt like a giant belt was tightened around my chest for days. The rehab I was in wouldn't let me go to the doctor so I rode it out. I lost my sense of taste for a month afterwards. In the past year I have been exhausted, every day all day long. On days off I can easily sleep 18 hours. I've been hit with everything from bladder infection to migraines and cramps. I see flashing lights when I close my eyes and am sometimes woken up by a loud buzzing sound. Tinnitus, restless leg, it goes on and on. Subby makes me feel like I have it good.  Godspeed man.
 
2021-02-26 8:56:52 AM  
Hire a lawyer. It's the only way I've known people to get disability, ever.

Also, I'm suffering from long haul Covid as well. I have random smells that infiltrate my nose (cigarettes... and now cookies). I have fatigue randomly,  despite however much rest I got.  Only adderall seems to help there. My ability to find and use words is ok, but I've definitely noticed a general decline cognitively. I had pain in my lungs with breathing, but a steroid inhaler seemed to have helped. I no longer have inappropriate tachycardia, but that was definitely weird to experience.

I hope you keep fighting everyday for what you deserve. It farking sucks. But you'll get it.
 
2021-02-26 8:57:18 AM  
Being human is difficult.  I think being young sets our expectations incorrectly because you won't ever feel that good, you won't ever heal that quickly and you don't have to worry about disease.

As we get older we all face these issues you are experiencing, it is just part of the game.  Thanks for sharing and I wish you the best!
 
2021-02-26 8:59:57 AM  
Subby, here's hoping these afyer-effects are short-loved and you get back to yoir old self soon.
 
2021-02-26 9:15:28 AM  
Well...shiat.

Hang in there, dude, and keep pummeling social security. We're gonna see a whole lot more of these in the next few months and years, and it sucks one of our own is in the first wave.
 
2021-02-26 9:22:38 AM  
Subs, I wish you well and a complete recovery.

And thanks for making a brutally clear case in favor of M4A. Too many folk are going to need it, goddammitallsomuch
 
2021-02-26 9:29:59 AM  
Donated what I could at this time.

I applaud your courage to come forward and put a face on this. I heard about "long haul," but didn't know how severe it is, and how many are suffering, and how they and their families are suffering.

You're the best of us, brother. Stay strong.

Best to you and your family.
 
2021-02-26 9:52:59 AM  
Subby's headline is a perfect encapsulation of Fark.  Glad to hear your sense of humor is still working!!
 
2021-02-26 10:04:53 AM  
Fark user imageView Full Size

/Good luck and speedy recovery, Hindenberg!
 
2021-02-26 10:05:32 AM  

cheap_thoughts: Hire a lawyer. It's the only way I've known people to get disability, ever.

Also, I'm suffering from long haul Covid as well. I have random smells that infiltrate my nose (cigarettes... and now cookies). I have fatigue randomly,  despite however much rest I got.  Only adderall seems to help there. My ability to find and use words is ok, but I've definitely noticed a general decline cognitively. I had pain in my lungs with breathing, but a steroid inhaler seemed to have helped. I no longer have inappropriate tachycardia, but that was definitely weird to experience.

I hope you keep fighting everyday for what you deserve. It farking sucks. But you'll get it.


I am also smelling cigarettes everywhere!! I had COVID back in December right before Christmas, and the fatigue and dizziness have been the worst. Well, that and the CONSTANT smell of cigarette smoke/smushed out cigarettes. I thought I was going crazy! I am also a teacher and PhD student, and I'm finding that I can be in the middle of class with my kids and completely lose my train of thought. Or I'll be in my night class and want to contribute to the conversation, but by the time they get to me (PhD students talk FOREVER), I've completely forgotten what I was going to say and even what the question was. It's embarrassing because I don't want the prof to think I'm a complete idiot and my principal to think she hired a moron who can't teach. The only time I am not exhausted is farking 1030 at night when I should be asleep. It sucks. 

Subby, I am so sorry that you are going through this. I echo the suggestion that you get a lawyer and fight for disability. I hope that this is all temporary for all of us because I don't want to be like this for the rest of my life.
 
2021-02-26 10:17:09 AM  
Get your antibody titers tested monthly at the very least.  If they do anything other than decline, use the results to lobby on behalf of viral persistence with physicians and insurers.
 
2021-02-26 10:17:19 AM  

tudorgurl: cheap_thoughts: Hire a lawyer. It's the only way I've known people to get disability, ever.

Also, I'm suffering from long haul Covid as well. I have random smells that infiltrate my nose (cigarettes... and now cookies). I have fatigue randomly,  despite however much rest I got.  Only adderall seems to help there. My ability to find and use words is ok, but I've definitely noticed a general decline cognitively. I had pain in my lungs with breathing, but a steroid inhaler seemed to have helped. I no longer have inappropriate tachycardia, but that was definitely weird to experience.

I hope you keep fighting everyday for what you deserve. It farking sucks. But you'll get it.

I am also smelling cigarettes everywhere!! I had COVID back in December right before Christmas, and the fatigue and dizziness have been the worst. Well, that and the CONSTANT smell of cigarette smoke/smushed out cigarettes. I thought I was going crazy! I am also a teacher and PhD student, and I'm finding that I can be in the middle of class with my kids and completely lose my train of thought. Or I'll be in my night class and want to contribute to the conversation, but by the time they get to me (PhD students talk FOREVER), I've completely forgotten what I was going to say and even what the question was. It's embarrassing because I don't want the prof to think I'm a complete idiot and my principal to think she hired a moron who can't teach. The only time I am not exhausted is farking 1030 at night when I should be asleep. It sucks. 

Subby, I am so sorry that you are going through this. I echo the suggestion that you get a lawyer and fight for disability. I hope that this is all temporary for all of us because I don't want to be like this for the rest of my life.


Yes. I definitely lose concentration in the middle of conversations and reading.
 
2021-02-26 10:46:03 AM  
Shouldn't it be PACS, and not PASC?

I'm at a loss for words for your struggle. I hope you fully recover.
 
2021-02-26 10:52:34 AM  
I've had some long-haul symptoms as well, but mostly have remained OK.

The smell thing--i think my sense of smell has disappeared.   Or theres all kinds of phantom smells that i dont know if they are real or not.

Finally getting over the fatigue, a year later.  I may have recovered.  I'll see when I try some strenuous activity.   I couldn't do much of anything all last summer.  I was just too tired.
Good luck, subby, i hope you fully recover.  Like from a stroke--it just takes a while.
 
2021-02-26 11:03:18 AM  
I have a coworker who keeps on saying again and again that "this is no worse than the flu."

Newsmax and fox news are his gods.

Here's hoping for a better (if not full) recovery, subby.

i.makeagif.comView Full Size
 
2021-02-26 11:15:12 AM  
I got my first shot, still social distancing, wearing the mask, basically doing what I can on that end of the issue.

Hang tough and push for continuous improvement.
 
2021-02-26 11:25:10 AM  
Hang in there, submitter. Good vibes your way.

My 33-year-old, overweight, heavy-smoker brother caught COVID in November, and though he described his experience as a mild 72-hour flu, my mom and I are just waiting for any long-haul symptoms to start manifesting.
 
2021-02-26 11:27:38 AM  
The late Charlton Heston bequest of $12M was to go for research into how to deal with "long haulers," as they are now called.

He was concerned that people thus affected could make a  material and tasteful contribution to society in the food industry.
 
2021-02-26 11:31:57 AM  
Fellow acadamian that lost all his snark reading that and hopes for the best outcome, subby. Here's $100 in 2 dollar bills (well, most snark anyways).
 
2021-02-26 12:04:55 PM  
So sorry for your misery, Subby Mike.
You're doing the world a great service by letting the non-maskers know just what they could be in for - thank you.
 
2021-02-26 12:08:19 PM  
Has a robust conversation at the grocery yesterday with a braniac who thought it was cool to wear a mesh mask, under his chin. 3 others decided to join this debate. Trumple Thinskin was not happy when Manager POLITELY asked him to vacate.
I will continue calling out these naysayers on your and my m-i-l's behalf.
 
2021-02-26 1:36:47 PM  
I had a minor stroke (TIA). It lasted less than 36 hrs. During the 1st 12 hrs, I was speaking German (a language I grew up with) but thought I was speaking English. I understood English & couldn't understand why no one could understand me. Finally, I started to understand what was happening. I get this poor man's frustration but his is never-ending, whereas I reached a point where I started to see improvement.

I have occasional aphasia still. It's frustrating but minor. When I could only speak German I tried to say television but could only say Fehrnseherapparat (which must be a word I learned as a child in our bastardized American/Deutsch in Chicagoland) even after English began returning. I get the milk/guitar frustration.

I get my 1st shot in a couple of hours.
 
2021-02-26 1:56:09 PM  

Sexy Jesus: I got sick a year ago and am convinced I had it. It was in February and COVID wasn't really on the radar yet but I felt like a giant belt was tightened around my chest for days. The rehab I was in wouldn't let me go to the doctor so I rode it out. I lost my sense of taste for a month afterwards. In the past year I have been exhausted, every day all day long. On days off I can easily sleep 18 hours. I've been hit with everything from bladder infection to migraines and cramps. I see flashing lights when I close my eyes and am sometimes woken up by a loud buzzing sound. Tinnitus, restless leg, it goes on and on. Subby makes me feel like I have it good.  Godspeed man.


This sounds like pure hell. I'm so sorry you are going through all of this.
 
2021-02-26 4:33:03 PM  

Sexy Jesus: I got sick a year ago and am convinced I had it. It was in February and COVID wasn't really on the radar yet but I felt like a giant belt was tightened around my chest for days. The rehab I was in wouldn't let me go to the doctor so I rode it out. I lost my sense of taste for a month afterwards. In the past year I have been exhausted, every day all day long. On days off I can easily sleep 18 hours. I've been hit with everything from bladder infection to migraines and cramps. I see flashing lights when I close my eyes and am sometimes woken up by a loud buzzing sound. Tinnitus, restless leg, it goes on and on. Subby makes me feel like I have it good.  Godspeed man.


Christ... where are you statewise? NY?

If it stole your sense of taste or smell, almost 100% it actually was covid because basically nothing else remotely common does that.
 
2021-02-26 7:34:21 PM  
You have turned a tragedy into a source of help and support for others. That's what humanity is all about.

I hope this goes away some day, or a treatment is developed. English teachers make the world better.
 
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