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(Daily Mail)   Move over, thyroid problem. There's a new excuse for being fat   (dailymail.co.uk) divider line 120
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13280 clicks; posted to Main » on 31 Aug 2014 at 12:07 AM (16 weeks ago)   |  Favorite    |   share:  Share on Twitter share via Email Share on Facebook   more»



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2014-08-30 11:07:43 PM  
A friend of mine who had a brain tumor had her hypothalamus damaged from radiation. She gained almost 100 pounds. She was very active and didn't eat much. She beat the cancer 3 times over 20 years though and had a really lovely life.

I feel awful for this poor girl and her mother. What a horrible situation.
 
2014-08-30 11:34:44 PM  

ginandbacon: A friend of mine who had a brain tumor had her hypothalamus damaged from radiation. She gained almost 100 pounds. She was very active and didn't eat much. She beat the cancer 3 times over 20 years though and had a really lovely life.

I feel awful for this poor girl and her mother. What a horrible situation.


I had a girlfriend in college (when I was "straight") who had a walnut-size tumor that was pressing against her hypothalamus. Her appetite would become ravenous, then go away for days. She'd spend 2 or 3 days awake at a time, then sleep for 2 days. She went for CAT scan or MRI, and they admitted her immediately. They removed the tumor and she was released the next day. I showed up at the hospital to see her and she was already home. All of her previous problems were gone. It's weird how one little teeny tiny part of the brain can screw with you like that.
 
2014-08-30 11:55:36 PM  

ecmoRandomNumbers: ginandbacon: A friend of mine who had a brain tumor had her hypothalamus damaged from radiation. She gained almost 100 pounds. She was very active and didn't eat much. She beat the cancer 3 times over 20 years though and had a really lovely life.

I feel awful for this poor girl and her mother. What a horrible situation.

I had a girlfriend in college (when I was "straight") who had a walnut-size tumor that was pressing against her hypothalamus. Her appetite would become ravenous, then go away for days. She'd spend 2 or 3 days awake at a time, then sleep for 2 days. She went for CAT scan or MRI, and they admitted her immediately. They removed the tumor and she was released the next day. I showed up at the hospital to see her and she was already home. All of her previous problems were gone. It's weird how one little teeny tiny part of the brain can screw with you like that.


Wow.

And yeah, Rae's tumor (I can't remember the name for this type--it was like a spiderweb, so inoperable) was kind of centered in the part of the brain the handles language. That's how they knew something was wrong, she would garble her words. She was always extremely verbal and articulate so something was obviously really screwed up. But even when she was having trouble, what came out was really beautiful. Her husband brought her to the Cape to die and one day we were all sitting on the deck watching the sailboats in the bay and she pointed to them and said "Look at all the pretty dresses!"

I miss her something fierce.

And I was the girlfriend for more than a few "straight" guys. I like to think they felt safe with me :)
 
2014-08-31 12:10:28 AM  
"I'm not fat. I'm radially challenged,"
 
2014-08-31 12:10:32 AM  
I saw this CSI episode.  Don't let her near a hot dog eating contest.
 
2014-08-31 12:13:38 AM  
Damn, that would royally suck.
 
2014-08-31 12:16:53 AM  
TFA says she only consumes 1000 calories/day but at 343lbs her BMR is at least ~2,200 calories. Than again this is the Daily Fail.
 
2014-08-31 12:17:59 AM  
This thread is going to be delicious.
 
2014-08-31 12:20:28 AM  
Big boned.
 
2014-08-31 12:22:39 AM  

ginandbacon: ecmoRandomNumbers: ginandbacon: A friend of mine who had a brain tumor had her hypothalamus damaged from radiation. She gained almost 100 pounds. She was very active and didn't eat much. She beat the cancer 3 times over 20 years though and had a really lovely life.

I feel awful for this poor girl and her mother. What a horrible situation.

I had a girlfriend in college (when I was "straight") who had a walnut-size tumor that was pressing against her hypothalamus. Her appetite would become ravenous, then go away for days. She'd spend 2 or 3 days awake at a time, then sleep for 2 days. She went for CAT scan or MRI, and they admitted her immediately. They removed the tumor and she was released the next day. I showed up at the hospital to see her and she was already home. All of her previous problems were gone. It's weird how one little teeny tiny part of the brain can screw with you like that.

Wow.

And yeah, Rae's tumor (I can't remember the name for this type--it was like a spiderweb, so inoperable) was kind of centered in the part of the brain the handles language. That's how they knew something was wrong, she would garble her words. She was always extremely verbal and articulate so something was obviously really screwed up. But even when she was having trouble, what came out was really beautiful. Her husband brought her to the Cape to die and one day we were all sitting on the deck watching the sailboats in the bay and she pointed to them and said "Look at all the pretty dresses!"

I miss her something fierce.

And I was the girlfriend for more than a few "straight" guys. I like to think they felt safe with me :)


This is the most depressing story I have ever read on Fark...
 
2014-08-31 12:24:58 AM  

tzzhc4: TFA says she only consumes 1000 calories/day but at 343lbs her BMR is at least ~2,200 calories. Than again this is the Daily Fail.


That 2200 baseline is for a "normal" landwhale. For a girl with a busted hypothalamus, that number will be different.

I wonder what her body temperature is.
 
2014-08-31 12:29:18 AM  
Read it in the daily mail...
 
2014-08-31 12:31:05 AM  

tzzhc4: TFA says she only consumes 1000 calories/day but at 343lbs her BMR is at least ~2,200 calories. Than again this is the Daily Fail.


This isn't a particularly new story.

AZCentral link from April

No mention there of the 1,000 calorie claim.
 
2014-08-31 12:33:04 AM  

fusillade762: tzzhc4: TFA says she only consumes 1000 calories/day but at 343lbs her BMR is at least ~2,200 calories. Than again this is the Daily Fail.

This isn't a particularly new story.

AZCentral link from April

No mention there of the 1,000 calorie claim.


Just saying the kid is eating dogfood or something to get the extra calories.
 
2014-08-31 12:35:46 AM  
www.quickmeme.com
It's a vicious cycle.
 
2014-08-31 12:36:19 AM  

"I can help that poor girl."


images3.wikia.nocookie.net

 
2014-08-31 12:37:13 AM  

Pointy Tail of Satan: "I'm not fat. I'm radially challenged,"


No, you're an asshat. This girl has a serious neurological condition that is killing her.
 
2014-08-31 12:38:50 AM  
I'm fat because I'm lazy and enjoy beer.

I did an experiment a while back though. Quit drinking and exercised daily.

Women were attracted to me. I got into relationships. Every time we drove each other nuts after a short while. This went on for a few years.

So, I gave up sobriety and relationships as A Bad Idea For Me. *BRAAAAAAAAP*.
 
2014-08-31 12:40:58 AM  

Bonzo_1116: tzzhc4: TFA says she only consumes 1000 calories/day but at 343lbs her BMR is at least ~2,200 calories. Than again this is the Daily Fail.

That 2200 baseline is for a "normal" landwhale. For a girl with a busted hypothalamus, that number will be different.

I wonder what her body temperature is.


Prader-Willi syndrome doesn't make you burn less calories, it just makes you constantly hungry.  It may make you have trouble building muscle tone, which I suppose will result in you burning fewer calories, but not by a huge amount I wouldn't think.  She'd still still burn as many calories as anyone else without much muscle, she just eats more than them.
 
2014-08-31 12:41:02 AM  

tzzhc4: TFA says she only consumes 1000 calories/day but at 343lbs her BMR is at least ~2,200 calories. Than again this is the Daily Fail.


There's no possible way she is eating 1000 calories a day and gaining weight.

It's more like, she eats 1000 calories per day at meals, and when no one is looking, she's eating 2000 more calories per day of dog food, flour, crisco, and anything else she can find in the kitchen.
 
2014-08-31 12:41:10 AM  

tzzhc4: fusillade762: tzzhc4: TFA says she only consumes 1000 calories/day but at 343lbs her BMR is at least ~2,200 calories. Than again this is the Daily Fail.

This isn't a particularly new story.

AZCentral link from April

No mention there of the 1,000 calorie claim.

Just saying the kid is eating dogfood or something to get the extra calories.


The article does mention that her metabolism is much lower due to the condition.
 
2014-08-31 12:42:51 AM  
THe insensitive asshole side of me came here for a chuckle.  I RTFA and the thread and now I'm sad.

*sigh*
 
2014-08-31 12:43:04 AM  

gund: ginandbacon: ecmoRandomNumbers: ginandbacon: A friend of mine who had a brain tumor had her hypothalamus damaged from radiation. She gained almost 100 pounds. She was very active and didn't eat much. She beat the cancer 3 times over 20 years though and had a really lovely life.

I feel awful for this poor girl and her mother. What a horrible situation.

I had a girlfriend in college (when I was "straight") who had a walnut-size tumor that was pressing against her hypothalamus. Her appetite would become ravenous, then go away for days. She'd spend 2 or 3 days awake at a time, then sleep for 2 days. She went for CAT scan or MRI, and they admitted her immediately. They removed the tumor and she was released the next day. I showed up at the hospital to see her and she was already home. All of her previous problems were gone. It's weird how one little teeny tiny part of the brain can screw with you like that.

Wow.

And yeah, Rae's tumor (I can't remember the name for this type--it was like a spiderweb, so inoperable) was kind of centered in the part of the brain the handles language. That's how they knew something was wrong, she would garble her words. She was always extremely verbal and articulate so something was obviously really screwed up. But even when she was having trouble, what came out was really beautiful. Her husband brought her to the Cape to die and one day we were all sitting on the deck watching the sailboats in the bay and she pointed to them and said "Look at all the pretty dresses!"

I miss her something fierce.

And I was the girlfriend for more than a few "straight" guys. I like to think they felt safe with me :)

This is the most depressing story I have ever read on Fark...


It is? I'm so sorry. My friend really did have a wonderful life for twenty years after her diagnosis. They originally said she had six months to live, so those other two hundred and thirty four months were very much a gift for her and everyone who had the honor of knowing her. Even with the two remissions and the first round of treatment, she had a career she loved, got her masters, got very happily married, traveled all over and enjoyed herself immensely.
 
2014-08-31 12:45:05 AM  

Emposter: Bonzo_1116: tzzhc4: TFA says she only consumes 1000 calories/day but at 343lbs her BMR is at least ~2,200 calories. Than again this is the Daily Fail.

That 2200 baseline is for a "normal" landwhale. For a girl with a busted hypothalamus, that number will be different.

I wonder what her body temperature is.

Prader-Willi syndrome doesn't make you burn less calories, it just makes you constantly hungry.  It may make you have trouble building muscle tone, which I suppose will result in you burning fewer calories, but not by a huge amount I wouldn't think.  She'd still still burn as many calories as anyone else without much muscle, she just eats more than them.


Errr, correction to myself, they aren't supposed to have low metabolisms once they pass 8-10 years or so.  It's a phase one vs phase 2 thing.

/Not a doctor
//didn't stay in a holiday in last night
 
2014-08-31 12:47:45 AM  
http://www.nichd.nih.gov/health/topics/prader-willi/conditioninfo/Pag e s/symptoms.aspx indicates that people with Prader-Willi typically should only consume 60% of normal caloric intake.
 
2014-08-31 12:48:12 AM  

Emposter: Bonzo_1116: tzzhc4: TFA says she only consumes 1000 calories/day but at 343lbs her BMR is at least ~2,200 calories. Than again this is the Daily Fail.

That 2200 baseline is for a "normal" landwhale. For a girl with a busted hypothalamus, that number will be different.

I wonder what her body temperature is.

Prader-Willi syndrome doesn't make you burn less calories, it just makes you constantly hungry.  It may make you have trouble building muscle tone, which I suppose will result in you burning fewer calories, but not by a huge amount I wouldn't think.  She'd still still burn as many calories as anyone else without much muscle, she just eats more than them.


I just took a Google tour about prader Willi, and it can affect temp regulation to the point that some folks with it don't run a fever when they get sick.

Some Elsevier paper had an abstract that said prader Willi people have a statistically significant temp difference from normals. Paywall was hiding the number itself. Bastard paywall.
 
2014-08-31 12:48:18 AM  
Unfortunately this genetic defect also comes with some mental retardation so even if she beats the metabolic problems, she's going to have many other issues.

Insurance probably says it's a "Preexisting condition" which is correct. It's her mother's chromosome 15 that got a piece knocked off. If she had got the broken chromosome from her father - she would have Angelman's syndrome which comes with severe mental disabilities. She would have also been a lot happier as one of the other features is victims express frequent laughter and excitability.

The difference led to the discovery of epigenes. Pretty neat stuff, but poor kid.
 
2014-08-31 12:49:01 AM  
"'I know I will hear "How much longer till snack," "What will I get for snack today," and "What are we having for dinner?" frequently for the rest of the morning,' Tonya told 20/20."

Why is a woman from Arizona using 'snack' in the British manner of (first time) uncountable/(second time) event-as-destination?

Why, Daily Fail, why?
 
2014-08-31 12:55:01 AM  

Bonzo_1116: Emposter: Bonzo_1116: tzzhc4: TFA says she only consumes 1000 calories/day but at 343lbs her BMR is at least ~2,200 calories. Than again this is the Daily Fail.

That 2200 baseline is for a "normal" landwhale. For a girl with a busted hypothalamus, that number will be different.

I wonder what her body temperature is.

Prader-Willi syndrome doesn't make you burn less calories, it just makes you constantly hungry.  It may make you have trouble building muscle tone, which I suppose will result in you burning fewer calories, but not by a huge amount I wouldn't think.  She'd still still burn as many calories as anyone else without much muscle, she just eats more than them.

I just took a Google tour about prader Willi, and it can affect temp regulation to the point that some folks with it don't run a fever when they get sick.

Some Elsevier paper had an abstract that said prader Willi people have a statistically significant temp difference from normals. Paywall was hiding the number itself. Bastard paywall.


Bonzo_1116: Emposter: Bonzo_1116: tzzhc4: TFA says she only consumes 1000 calories/day but at 343lbs her BMR is at least ~2,200 calories. Than again this is the Daily Fail.

That 2200 baseline is for a "normal" landwhale. For a girl with a busted hypothalamus, that number will be different.

I wonder what her body temperature is.

Prader-Willi syndrome doesn't make you burn less calories, it just makes you constantly hungry.  It may make you have trouble building muscle tone, which I suppose will result in you burning fewer calories, but not by a huge amount I wouldn't think.  She'd still still burn as many calories as anyone else without much muscle, she just eats more than them.

I just took a Google tour about prader Willi, and it can affect temp regulation to the point that some folks with it don't run a fever when they get sick.

Some Elsevier paper had an abstract that said prader Willi people have a statistically significant temp difference from normals. Paywall was hiding the number itself. Bastard paywall.


Interdasting.  I had to search harder, but I eventually ran across the same thing, difficulty regulating temperature.  However, it said they have difficulty regulating temperature in hot AND cold places, which makes it sound like it could go lower OR higher depending on the ambient temp.
 
2014-08-31 12:55:43 AM  
Like lizards. Hungry lizards.
 
2014-08-31 12:56:42 AM  

farkingismybusiness: [www.quickmeme.com image 625x337]
It's a vicious cycle.


Until you find something besides food to make you happy.

Like heroin.  Look at how thin those junkies are!
 
2014-08-31 12:59:07 AM  
Look I'm fat and will be the first person to admit that being fat is for the most part within ones control but ....

On a strict diet of just 900 calories a day (the average teen girl needs between 1,800 and 2,200), Hannah is gaining weight.

Ya this isn't a case of eating too much this seems like its a real medical condition if she's not even eating half of what she should be eating and still gaining weight.
 
2014-08-31 12:59:57 AM  
My girlfriend, at worst point in her life, was approaching 300 lbs.  Doctors told her her thyroid was completely farked up, she'd be on thyroid meds for the rest of her life.

After a while, she started roller skating. Joined a derby league.  Knocked off just a hair under 100 lbs in 2 years.  Her doctor is absolutely flabbergasted that her thyroid is now functioning as expected, and she's showing no signs of the rheumatoid arthritis that she was starting to experience.

Surprise!
 
2014-08-31 01:08:05 AM  

ginandbacon: gund: ginandbacon: ecmoRandomNumbers: ginandbacon: A friend of mine who had a brain tumor had her hypothalamus damaged from radiation. She gained almost 100 pounds. She was very active and didn't eat much. She beat the cancer 3 times over 20 years though and had a really lovely life.

I feel awful for this poor girl and her mother. What a horrible situation.

I had a girlfriend in college (when I was "straight") who had a walnut-size tumor that was pressing against her hypothalamus. Her appetite would become ravenous, then go away for days. She'd spend 2 or 3 days awake at a time, then sleep for 2 days. She went for CAT scan or MRI, and they admitted her immediately. They removed the tumor and she was released the next day. I showed up at the hospital to see her and she was already home. All of her previous problems were gone. It's weird how one little teeny tiny part of the brain can screw with you like that.

Wow.

And yeah, Rae's tumor (I can't remember the name for this type--it was like a spiderweb, so inoperable) was kind of centered in the part of the brain the handles language. That's how they knew something was wrong, she would garble her words. She was always extremely verbal and articulate so something was obviously really screwed up. But even when she was having trouble, what came out was really beautiful. Her husband brought her to the Cape to die and one day we were all sitting on the deck watching the sailboats in the bay and she pointed to them and said "Look at all the pretty dresses!"

I miss her something fierce.

And I was the girlfriend for more than a few "straight" guys. I like to think they felt safe with me :)

This is the most depressing story I have ever read on Fark...

It is? I'm so sorry. My friend really did have a wonderful life for twenty years after her diagnosis. They originally said she had six months to live, so those other two hundred and thirty four months were very much a gift for her and everyone who had the honor of knowing ...


Hey, thanks for telling this story. It's sad but it made me smile, you know?
 
2014-08-31 01:13:56 AM  
encrypted-tbn0.gstatic.com

Classic Fark meme!
/dnrtfa
 
2014-08-31 01:14:55 AM  
I work as a home health aide, and my one client I take care of has prader-willi. His family does not have to go to the extremes of locking up all food...as some food he will not even try to mess with...but they have to keep a lot of even their food that doesn't require refrigeration in the fridge, and the fridge is padlocked. When I get there, his mother literally has his food packed in a lunch box, and it is sat outside the front door until it's time for his meals. Because he also has the MRDD, he will also try to take off out doors, so the house doors all have the deadbolt locks with the key required on both side, and they give me a key before they leave.

He really is a sweet kid, though. He's always happy to see me. We usually have to make him exercise on a treadmill (walking) during our shift, but if it is nice out...I do take him on a really long walk for his exercise.
 
2014-08-31 01:16:34 AM  
We are our brains.
 
2014-08-31 01:17:47 AM  
I can see it now on the cover of Oprah's magazine:

Inactive hypothalamus? What your doctor won't tell you
 
2014-08-31 01:18:18 AM  
What a farking nightmare.

/the condition not the girl
 
2014-08-31 01:21:45 AM  
Let me guess. Is it laziness? I bet it's laziness.

/DNRTFA
 
2014-08-31 01:28:46 AM  
There's a British documentary about some kids with Prader-Willi called Can't Stop Eating. I've seen the main subject (I think his name is Joe) pop up before as a gif and it just makes me cringe, because people obviously don't know the context -- they just see a funny looking fat kid and lol, meme.
 
2014-08-31 01:30:54 AM  
one of my friends is a psychologist and she did therapy with a woman whose son had this condition.  it was the same thing, she had to lock all the cupboards and lock the fridge to keep the kid from just eating everything in the house because he always felt hungry no matter how much he ate.  she could barely take him anywhere, because the first thing he tried to do was find food and just gorge himself.  it must be terrible to raise someone with that problem.
 
2014-08-31 01:32:09 AM  
I have been unemployed since December.  I fell off the wagon and started drinking a lot, and developed a new level of love for fast food, and chicken teryaki, and tv shows. I'm not working out much.  And I seem to be getting fat.  I can't figure it out.  I think it might be my thyroid.  Or just big bones.
 
2014-08-31 01:32:17 AM  
img.fark.netOblig.
 
2014-08-31 01:33:28 AM  

Inchoate: Hey, thanks for telling this story. It's sad but it made me smile, you know?


I do know! That's how I feel about her life and death. Mostly smiles.

And I now have you farkied as "I try to avoid commas when possible" which I keep trying to do. I hate those little assholes. You have a great handle and bio, just BTW.
 
2014-08-31 01:39:24 AM  
I realize that under the circumstances, the mother is run ragged with tough choices. But what about vegetables? Honestly I could eat brussel sprouts or steamed broccoli all day if need be. Straight or with a little seasoning or hot spice.

FTFA "Hannah will wake up hungry and wake her mother to ask for breakfast.

Tonya tries to prolong giving it to her as long as possible to minimize the stressful time between the next meal, but eventually will give her a low-calorie breakfast such as one cup of cereal or low-fat yoghurt with fruit, then lock the pantry and padlock the fridge.

As soon as this meal is finished, Hannah will ask when she can have a snack - usualy 10 grapes or some crackers."

It's not low calorie that is the key. It's satiety that matters. Grapes, cereal, yogurt wont do it. A can of tuna, being 120 calories of protein would be a better breakfast. Plus all the vegetables she likes. There be fiber in dem dere carrots.
 
2014-08-31 01:43:27 AM  

ginandbacon: Inchoate: Hey, thanks for telling this story. It's sad but it made me smile, you know?

I do know! That's how I feel about her life and death. Mostly smiles.

And I now have you farkied as "I try to avoid commas when possible" which I keep trying to do. I hate those little assholes. You have a great handle and bio, just BTW.


lol I had you greened already for being a not-asshole in some earlier thread

cdn.attackofthecute.com
 
2014-08-31 01:46:40 AM  

Bonzo_1116: Like lizards. Hungry lizards.


That part of the brain is the "lizard part" of us. It controls the most basic of functions. So, yea..
 
2014-08-31 02:03:02 AM  

Kevin72: I realize that under the circumstances, the mother is run ragged with tough choices. But what about vegetables? Honestly I could eat brussel sprouts or steamed broccoli all day if need be. Straight or with a little seasoning or hot spice.

FTFA "Hannah will wake up hungry and wake her mother to ask for breakfast.

Tonya tries to prolong giving it to her as long as possible to minimize the stressful time between the next meal, but eventually will give her a low-calorie breakfast such as one cup of cereal or low-fat yoghurt with fruit, then lock the pantry and padlock the fridge.

As soon as this meal is finished, Hannah will ask when she can have a snack - usualy 10 grapes or some crackers."

It's not low calorie that is the key. It's satiety that matters. Grapes, cereal, yogurt wont do it. A can of tuna, being 120 calories of protein would be a better breakfast. Plus all the vegetables she likes. There be fiber in dem dere carrots.


1. The secondary concern is that the patients sometimes choke to death from cramming food in. Remember that mental impairment is part of the condition.
2. The whole problem is that she will NEVER be sated. She does not have the capacity to feel not hungry. She will always be hungry no matter what she does.
 
2014-08-31 02:07:27 AM  
A disease that makes you constantly hungry yet reduces your metabolism such that you shouldn't eat nearly the calories that a normal person would. This is how you know that if there is a God, he's a real sonofabiatch.
 
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