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(Mashable)   Remember yesterday's story about how the ALS "ice bucket challenge" is a heinous waste? Yeah, Bill Gates just did it. Better: in awesomely dorky style. Best: he challenges Elon Musk to go next   (mashable.com) divider line 27
    More: Followup, Bill Gates, I'm Glad, Chris Anderson, Mark Zuckerberg  
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6718 clicks; posted to Main » on 16 Aug 2014 at 11:03 AM (41 weeks ago)   |  Favorite    |   share:  Share on Twitter share via Email Share on Facebook   more»



Voting Results (Smartest)
View Voting Results: Smartest and Funniest

2014-08-16 11:06:56 AM  
8 votes:
Since July 29, the ALS Association has received $9.5 million in donations compared to $1.6 million during the same time period last year. The donations were from existing donors and 184,812 new donors.

Read more here: http://www.sacbee.com/2014/08/15/6631418/buckets-of-money-als-challen g e.html#storylink=cpy


F*ck you all and your cynicism.
2014-08-16 11:15:25 AM  
5 votes:
Amyotrophic lateral sclerosis (ALS), often referred to as "Lou Gehrig's Disease," is a progressive neurodegenerative disease that affects nerve cells in the brain and the spinal cord. Motor neurons reach from the brain to the spinal cord and from the spinal cord to the muscles throughout the body. The progressive degeneration of the motor neurons in ALS eventually leads to their death. When the motor neurons die, the ability of the brain to initiate and control muscle movement is lost. With voluntary muscle action progressively affected, patients in the later stages of the disease may become totally paralyzed.

This ranks pretty high up on my nightmare list of ways to die -- slowly losing control of your body, fully aware that you are losing control... until you can't move at all and then you die.

http://www.alsa.org/about-als/what-is-als.html

I think the ice bucket things is very dumb, but it's raised a lot of money for research, so that's good.  It will go away soon enough and, hopefully, so too will ALS.
2014-08-16 12:05:55 PM  
3 votes:

Delta1212: noitsnot: Delta1212: noitsnot: Gecko Gingrich: EvilEgg: Ok, I'm officially tired of this, and pre-tired of all the imitator challenges.

But awareness, man. *Awareness*.

God "awareness" is such horseshiat.  Yep, really curing disease with that.

Yeah, fark that $8 million dollars in awareness. What the hell good is that doing anyone?

It cures disease the same way the yellow ribbon car stickers "supported the troops".

If you're not physically working at a medical research lab, any funds you raise to pay for research is a worthless gesture.


Oh, right. Researchers work for free using equipment they find in the woods.
2014-08-16 11:09:13 AM  
3 votes:
I think Bill Gates would help the cause a lot more if he contributed a few million dollars. You know, pocket change.
2014-08-16 01:37:50 PM  
2 votes:

Arkanaut: I think Bill Gates would help the cause a lot more if he contributed a few million dollars. You know, pocket change.


Knowing how much Gates actually donates annually to various charities (hint: it's 95% of his income, as noted by many, many publications for years now), I think it's safe to say that not only did he drench himself, he donated far more than $100 as well.

As stated upthread, if he wanted to sit this one out, he's entitled, but I sincerely doubt he did, since he stated he's happy to donate but wanted to do the challenge better than it had been done.
2014-08-16 12:45:39 PM  
2 votes:
I lost my father last year to ALS.  It's an absolutely horrible, nightmarish disease and the lack of attention its received is sickening.  Thank god this ice bucket challenge has come along to to make people more aware of it, because its a disease that truly LACKS AWARENESS.  It slowly paralyzes you, gradually making you weaker and weaker, while you're 100% aware of it the whole time.

How do you get it?  Nobody knows.  Of all the non-genetic cases, there's no single common thread.  50% of the cases have a genetic component.  The other half are completely farking random.  You don't get it by stepping on a rusty nail or smoking for 30 years.  You're just healthy one day, then you notice some twitching and weakness, then you can't tie your tie, then you can't move, then you can't breathe.

How do you find out you have it?  Well first you have to rule out every other goddamn thing it could possibly be (lyme disease, B12 deficiency, etc.).  Once you do that, you undergo a very painful procedure where they measure your muscle response by stabbing your muscles with electrodes and zap them.  Then, maybe you might have it.  There's no definitive test.  It's not like the doctor can look at an xray or a blood test and say "Yes, you have ALS".  Also, due to the deductive nature of the diagnosis, you pretty far into the disease by the time you're diagnosed.

So what do I do if I have the diagnosis?  Wait to die.  There's no treatment, except for Rilutek, which only gives you another year.  You just wait for your muscles to gradually stop working.

How does it progress?  Nobody's the same.  Some people lose their leg movement first.  Some, like my dad, lose their arms.  Some lose their throat muscles and can't eat.  Some lose their diaphragm muscle and lose the ability to breathe unassisted.

But what about Stephen Hawking?  His case is a super rare case.  To call him a representation of ALS would be to call Bill Gates an average representation of a computer nerd.  The vast vast majority of people don't make it past two to three years after their diagnosis.

I have to go, but, bottom line, this disease has been in everyone's blindspot for years.
2014-08-16 11:57:24 AM  
2 votes:

noitsnot: Delta1212: noitsnot: Gecko Gingrich: EvilEgg: Ok, I'm officially tired of this, and pre-tired of all the imitator challenges.

But awareness, man. *Awareness*.

God "awareness" is such horseshiat.  Yep, really curing disease with that.

Yeah, fark that $8 million dollars in awareness. What the hell good is that doing anyone?

It cures disease the same way the yellow ribbon car stickers "supported the troops".


That's why you guys need to STFU about this. Putting yellow ribbons in a car or adding green to your website makes no real world difference. This raised a significant sum of money for research. For some reason you guys can't tell the difference.
2014-08-16 11:15:54 AM  
2 votes:

noitsnot: Gecko Gingrich: EvilEgg: Ok, I'm officially tired of this, and pre-tired of all the imitator challenges.

But awareness, man. *Awareness*.

God "awareness" is such horseshiat.  Yep, really curing disease with that.


I gave $50. Awareness seems to work.
2014-08-16 11:07:16 AM  
2 votes:

Gecko Gingrich: EvilEgg: Ok, I'm officially tired of this, and pre-tired of all the imitator challenges.

But awareness, man. *Awareness*.


It'd make sense to poke fun at awareness efforts here if this ice bucket challenge hadn't been so successful in raising actual money.
2014-08-16 08:30:47 AM  
2 votes:
Ok, I'm officially tired of this, and pre-tired of all the imitator challenges.
2014-08-16 02:52:57 PM  
1 votes:

GDubDub: Arkanaut: GDubDub: Arkanaut: I think Bill Gates would help the cause a lot more if he contributed a few million dollars. You know, pocket change.

How do you know he didn't?

TFA didn't say.

Well his foundation has $31B in assets, I'm guessing he doesn't write checks for only $100 too much.


He could have easily written a check for $100 million. What's the ALS Association going to do, tell him it's against the rules of the ice bucket challenge?
2014-08-16 01:52:14 PM  
1 votes:

cryinoutloud: Volts5000: But what about Stephen Hawking? His case is a super rare case. To call him a representation of ALS would be to call Bill Gates an average representation of a computer nerd. The vast vast majority of people don't make it past two to three years after their diagnosis.

I have never been able to figure out how Hawking is still alive. How come his lungs and heart don't just stop working?

My uncle died of ALS way back in the 70's. They did studies on him because he'd been in great shape before he got it. I wasn't around when he got bad, and only have a few memories of him sitting around in a wheelchair. My mother, bless her stupid heart, thought it was better that we didn't know anything about it, so we just ignored him while he slowly withered away.


Basically? He is kept alive by the NIH and money.

Everyone makes fun of his computer, but most can't afford that. They cost in the 10s of thousands of dollars, and insurance/hospice doesn't pay for it, Some are available on a limited loan through foundations, but you have to wait for the last person to die before it gets transferred to the next patient. There is hope as eye tracking comes to consumer devices, that this will improve, but it hasn't so far. My sister in law had to wait, unable to communicate for over a year, and then was only able to use it for a month before she succumbed. Maddening.
2014-08-16 01:43:58 PM  
1 votes:

Aigoo: Arkanaut: I think Bill Gates would help the cause a lot more if he contributed a few million dollars. You know, pocket change.

Knowing how much Gates actually donates annually to various charities (hint: it's 95% of his income, as noted by many, many publications for years now), I think it's safe to say that not only did he drench himself, he donated far more than $100 as well.

As stated upthread, if he wanted to sit this one out, he's entitled, but I sincerely doubt he did, since he stated he's happy to donate but wanted to do the challenge better than it had been done.


Sir Richard Branson would do it with supermodels.
2014-08-16 01:40:54 PM  
1 votes:
ALS is a horrible disease to die from. I had neighbors who lost their father to that when they were still in school, and it took him a long, long time to waste away.

Good on Bill for not only donating when his turn came to do so (and I'm sure he gave way more than $100 for this), but for finding a creative way to pull off the "punked" part of that deal.
2014-08-16 01:36:16 PM  
1 votes:
Generally, I despise awareness raising because the funds appear to return to groups focused on awareness raising, not actual research or services or policy as needed. However, this has been an effective campaign with minimal cost for an organization which does the research and services and policy.
2014-08-16 01:23:23 PM  
1 votes:

JK47: noitsnot: Awareness campaigns let teenage girls wear "save the boobies" t-shirts to school so they can feel naughty  and get all giggly.


Since you're shiatting on what other people are doing, even though it simply provides funds to facilitate the efforts of others, why don't you share with us the actual good works you're doing.  You know, how you're practicing what you preach.


I give money to the carter foundation and he uses it to cure parasitic diseases to directly improve the lives of thousands of people
2014-08-16 12:22:50 PM  
1 votes:

GardenWeasel: noitsnot: RTOGUY: Arkanaut: I think Bill Gates would help the cause a lot more if he contributed a few million dollars. You know, pocket change.

Gates has spent a fortune on charity work around the world if he wants to sit this one out (we don't know that he didn't donate something) that would be fine by me.

See, Bill Gates and Jimmy Carter ACTUALLY CURE DISEASE around the world.

http://www.cartercenter.org/health/guinea_worm/index.html

http://www.cartercenter.org/health/river_blindness/index.html

Awareness campaigns let teenage girls wear "save the boobies" t-shirts to school so they can feel naughty  and get all giggly.

And HOW do they do that? Money. Awareness campaigns lead to donations. Stop being a such a damn cynic.


Fine.  The amount of overhead is just annoying.  Plus the idea that the best marketing determines who gets funded.  Lung and colon cancer each kill more people than breast cancer every year, but, ya know - TITS!

Plus I worked for a grant funded cancer research start-up for a while and it was a bit sick the way the founder pretty much was just good at grant applications, and got the same grants every year and went to a lot of conferences and had fun with his buddies.  Meanwhile the work we were doing was pointless 20 year old technology.
2014-08-16 12:15:25 PM  
1 votes:

RTOGUY: Arkanaut: I think Bill Gates would help the cause a lot more if he contributed a few million dollars. You know, pocket change.

Gates has spent a fortune on charity work around the world if he wants to sit this one out (we don't know that he didn't donate something) that would be fine by me.


Yeah, that.

The man has an organization whose sole purpose is to find ways to charitably get rid of his money.
2014-08-16 12:09:59 PM  
1 votes:

RTOGUY: Arkanaut: I think Bill Gates would help the cause a lot more if he contributed a few million dollars. You know, pocket change.

Gates has spent a fortune on charity work around the world if he wants to sit this one out (we don't know that he didn't donate something) that would be fine by me.


See, Bill Gates and Jimmy Carter ACTUALLY CURE DISEASE around the world.

http://www.cartercenter.org/health/guinea_worm/index.html

http://www.cartercenter.org/health/river_blindness/index.html

Awareness campaigns let teenage girls wear "save the boobies" t-shirts to school so they can feel naughty  and get all giggly.
2014-08-16 12:01:54 PM  
1 votes:

Arkanaut: I think Bill Gates would help the cause a lot more if he contributed a few million dollars. You know, pocket change.


Gates has spent a fortune on charity work around the world if he wants to sit this one out (we don't know that he didn't donate something) that would be fine by me.
2014-08-16 11:58:13 AM  
1 votes:

picturescrazy: Gecko Gingrich: EvilEgg: Ok, I'm officially tired of this, and pre-tired of all the imitator challenges.

But awareness, man. *Awareness*.

It'd make sense to poke fun at awareness efforts here if this ice bucket challenge hadn't been so successful in raising actual money.


I agree with you the AW generations really need for someone to pay attention to them. Meanwhile most people just quietly write checks and no one ever knows
2014-08-16 11:58:04 AM  
1 votes:

noitsnot: Delta1212: noitsnot: Gecko Gingrich: EvilEgg: Ok, I'm officially tired of this, and pre-tired of all the imitator challenges.

But awareness, man. *Awareness*.

God "awareness" is such horseshiat.  Yep, really curing disease with that.

Yeah, fark that $8 million dollars in awareness. What the hell good is that doing anyone?

It cures disease the same way the yellow ribbon car stickers "supported the troops".


If you're not physically working at a medical research lab, any funds you raise to pay for research is a worthless gesture.
2014-08-16 11:57:02 AM  
1 votes:

noitsnot: Delta1212: noitsnot: Gecko Gingrich: EvilEgg: Ok, I'm officially tired of this, and pre-tired of all the imitator challenges.

But awareness, man. *Awareness*.

God "awareness" is such horseshiat.  Yep, really curing disease with that.

Yeah, fark that $8 million dollars in awareness. What the hell good is that doing anyone?

It cures disease the same way the yellow ribbon car stickers "supported the troops".


Wrong. Unlike those idiotic magnets, the money raised is actually going to help research on a cure. It actually is helping because the money goes where it is needed.

Internet awareness campaigns work.
2014-08-16 11:25:19 AM  
1 votes:

Scorpitron is reduced to a thin red paste: I haven't been arsed to figure out what ALS is, but I do know it exists now.


Imagine your body is completely atrophied, your arms/legs/fingers/toes curled up and unmovable, you are unable to talk, live in diapers, you have to be bathed carefully or the skin will peel off... oh, and you know every agonizing second because your mind is %100 functional inside. And you live that way for 1-2 years until your organs give out.
2014-08-16 11:22:05 AM  
1 votes:

noitsnot: Gecko Gingrich: EvilEgg: Ok, I'm officially tired of this, and pre-tired of all the imitator challenges.

But awareness, man. *Awareness*.

God "awareness" is such horseshiat.  Yep, really curing disease with that.


Yeah, fark that $8 million dollars in awareness. What the hell good is that doing anyone?
2014-08-16 11:17:16 AM  
1 votes:

noitsnot: Gecko Gingrich: EvilEgg: Ok, I'm officially tired of this, and pre-tired of all the imitator challenges.

But awareness, man. *Awareness*.

God "awareness" is such horseshiat.  Yep, really curing disease with that.


More awareness equals more
Money, more money helps cure disease.

And for diseases that can be prevented or cured if caught early, awareness matters a lot ( see AIDS, breast cancer, etc. )
2014-08-16 11:08:45 AM  
1 votes:
SO I assume what was edited out of the video was Gates trying several times to pull the rope, having to refill the bucket twice, and then waiting for the system to update before he could get doused.
 
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