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(Mashable)   Remember yesterday's story about how the ALS "ice bucket challenge" is a heinous waste? Yeah, Bill Gates just did it. Better: in awesomely dorky style. Best: he challenges Elon Musk to go next   (mashable.com) divider line 109
    More: Followup, Bill Gates, I'm Glad, Chris Anderson, Mark Zuckerberg  
•       •       •

6717 clicks; posted to Main » on 16 Aug 2014 at 11:03 AM (40 weeks ago)   |  Favorite    |   share:  Share on Twitter share via Email Share on Facebook   more»



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2014-08-16 12:22:50 PM  

GardenWeasel: noitsnot: RTOGUY: Arkanaut: I think Bill Gates would help the cause a lot more if he contributed a few million dollars. You know, pocket change.

Gates has spent a fortune on charity work around the world if he wants to sit this one out (we don't know that he didn't donate something) that would be fine by me.

See, Bill Gates and Jimmy Carter ACTUALLY CURE DISEASE around the world.

http://www.cartercenter.org/health/guinea_worm/index.html

http://www.cartercenter.org/health/river_blindness/index.html

Awareness campaigns let teenage girls wear "save the boobies" t-shirts to school so they can feel naughty  and get all giggly.

And HOW do they do that? Money. Awareness campaigns lead to donations. Stop being a such a damn cynic.


Fine.  The amount of overhead is just annoying.  Plus the idea that the best marketing determines who gets funded.  Lung and colon cancer each kill more people than breast cancer every year, but, ya know - TITS!

Plus I worked for a grant funded cancer research start-up for a while and it was a bit sick the way the founder pretty much was just good at grant applications, and got the same grants every year and went to a lot of conferences and had fun with his buddies.  Meanwhile the work we were doing was pointless 20 year old technology.
 
2014-08-16 12:45:39 PM  
I lost my father last year to ALS.  It's an absolutely horrible, nightmarish disease and the lack of attention its received is sickening.  Thank god this ice bucket challenge has come along to to make people more aware of it, because its a disease that truly LACKS AWARENESS.  It slowly paralyzes you, gradually making you weaker and weaker, while you're 100% aware of it the whole time.

How do you get it?  Nobody knows.  Of all the non-genetic cases, there's no single common thread.  50% of the cases have a genetic component.  The other half are completely farking random.  You don't get it by stepping on a rusty nail or smoking for 30 years.  You're just healthy one day, then you notice some twitching and weakness, then you can't tie your tie, then you can't move, then you can't breathe.

How do you find out you have it?  Well first you have to rule out every other goddamn thing it could possibly be (lyme disease, B12 deficiency, etc.).  Once you do that, you undergo a very painful procedure where they measure your muscle response by stabbing your muscles with electrodes and zap them.  Then, maybe you might have it.  There's no definitive test.  It's not like the doctor can look at an xray or a blood test and say "Yes, you have ALS".  Also, due to the deductive nature of the diagnosis, you pretty far into the disease by the time you're diagnosed.

So what do I do if I have the diagnosis?  Wait to die.  There's no treatment, except for Rilutek, which only gives you another year.  You just wait for your muscles to gradually stop working.

How does it progress?  Nobody's the same.  Some people lose their leg movement first.  Some, like my dad, lose their arms.  Some lose their throat muscles and can't eat.  Some lose their diaphragm muscle and lose the ability to breathe unassisted.

But what about Stephen Hawking?  His case is a super rare case.  To call him a representation of ALS would be to call Bill Gates an average representation of a computer nerd.  The vast vast majority of people don't make it past two to three years after their diagnosis.

I have to go, but, bottom line, this disease has been in everyone's blindspot for years.
 
2014-08-16 12:54:29 PM  
Bob Iger did it.
(Disney)

Nominated Olivia Pope, Tony Stark and Peter Quill
 
2014-08-16 12:59:45 PM  
How about a hot broken glass challenge?
 
2014-08-16 01:10:05 PM  
i970.photobucket.com
 
2014-08-16 01:10:31 PM  

noitsnot: Awareness campaigns let teenage girls wear "save the boobies" t-shirts to school so they can feel naughty  and get all giggly.



Since you're shiatting on what other people are doing, even though it simply provides funds to facilitate the efforts of others, why don't you share with us the actual good works you're doing.  You know, how you're practicing what you preach.
 
2014-08-16 01:15:49 PM  

Volts5000: But what about Stephen Hawking? His case is a super rare case. To call him a representation of ALS would be to call Bill Gates an average representation of a computer nerd. The vast vast majority of people don't make it past two to three years after their diagnosis.


I have never been able to figure out how Hawking is still alive. How come his lungs and heart don't just stop working?

My uncle died of ALS way back in the 70's. They did studies on him because he'd been in great shape before he got it. I wasn't around when he got bad, and only have a few memories of him sitting around in a wheelchair. My mother, bless her stupid heart, thought it was better that we didn't know anything about it, so we just ignored him while he slowly withered away.
 
2014-08-16 01:23:23 PM  

JK47: noitsnot: Awareness campaigns let teenage girls wear "save the boobies" t-shirts to school so they can feel naughty  and get all giggly.


Since you're shiatting on what other people are doing, even though it simply provides funds to facilitate the efforts of others, why don't you share with us the actual good works you're doing.  You know, how you're practicing what you preach.


I give money to the carter foundation and he uses it to cure parasitic diseases to directly improve the lives of thousands of people
 
2014-08-16 01:30:49 PM  

noitsnot: GardenWeasel: noitsnot: RTOGUY: Arkanaut: I think Bill Gates would help the cause a lot more if he contributed a few million dollars. You know, pocket change.

Gates has spent a fortune on charity work around the world if he wants to sit this one out (we don't know that he didn't donate something) that would be fine by me.

See, Bill Gates and Jimmy Carter ACTUALLY CURE DISEASE around the world.

http://www.cartercenter.org/health/guinea_worm/index.html

http://www.cartercenter.org/health/river_blindness/index.html

Awareness campaigns let teenage girls wear "save the boobies" t-shirts to school so they can feel naughty  and get all giggly.

And HOW do they do that? Money. Awareness campaigns lead to donations. Stop being a such a damn cynic.

Fine.  The amount of overhead is just annoying.  Plus the idea that the best marketing determines who gets funded.  Lung and colon cancer each kill more people than breast cancer every year, but, ya know - TITS!

Plus I worked for a grant funded cancer research start-up for a while and it was a bit sick the way the founder pretty much was just good at grant applications, and got the same grants every year and went to a lot of conferences and had fun with his buddies.  Meanwhile the work we were doing was pointless 20 year old technology.


St Jude's. best bang for your buck
 
2014-08-16 01:34:07 PM  

T-Servo: SO I assume what was edited out of the video was Gates trying several times to pull the rope, having to refill the bucket twice, and then waiting for the system to update before he could get doused.


Don't forget looking online for someone's bucket plans, and paying them $30M for the rights, then showing them to the public as their own idea all along.
 
2014-08-16 01:34:39 PM  

GardenWeasel: picturescrazy: Delta1212: noitsnot: Delta1212: noitsnot: Gecko Gingrich: EvilEgg: Ok, I'm officially tired of this, and pre-tired of all the imitator challenges.

But awareness, man. *Awareness*.

God "awareness" is such horseshiat.  Yep, really curing disease with that.

Yeah, fark that $8 million dollars in awareness. What the hell good is that doing anyone?

It cures disease the same way the yellow ribbon car stickers "supported the troops".

If you're not physically working at a medical research lab, any funds you raise to pay for research is a worthless gesture.

Oh, right. Researchers work for free using equipment they find in the woods.

He was being sarcastic.


I misread the names. Sorry Delta!
 
2014-08-16 01:36:16 PM  
Generally, I despise awareness raising because the funds appear to return to groups focused on awareness raising, not actual research or services or policy as needed. However, this has been an effective campaign with minimal cost for an organization which does the research and services and policy.
 
2014-08-16 01:37:50 PM  

Arkanaut: I think Bill Gates would help the cause a lot more if he contributed a few million dollars. You know, pocket change.


Knowing how much Gates actually donates annually to various charities (hint: it's 95% of his income, as noted by many, many publications for years now), I think it's safe to say that not only did he drench himself, he donated far more than $100 as well.

As stated upthread, if he wanted to sit this one out, he's entitled, but I sincerely doubt he did, since he stated he's happy to donate but wanted to do the challenge better than it had been done.
 
2014-08-16 01:38:51 PM  

picturescrazy: noitsnot: Delta1212: noitsnot: Gecko Gingrich: EvilEgg: Ok, I'm officially tired of this, and pre-tired of all the imitator challenges.

But awareness, man. *Awareness*.

God "awareness" is such horseshiat.  Yep, really curing disease with that.

Yeah, fark that $8 million dollars in awareness. What the hell good is that doing anyone?

It cures disease the same way the yellow ribbon car stickers "supported the troops".

That's why you guys need to STFU about this. Putting yellow ribbons in a car or adding green to your website makes no real world difference. This raised a significant sum of money for research. For some reason you guys can't tell the difference.


How about just donating to a particular charity because it helps people, instead of "because it's all over YouTube, and all the cool people are doing it"?

I am happy your favorite charity is getting some money this week. Is it necessary for you to be self righteous and snippy in triumph?

\I give when I can because I can, and people need it
\\not because it's suddenly cool to do so
 
2014-08-16 01:40:54 PM  
ALS is a horrible disease to die from. I had neighbors who lost their father to that when they were still in school, and it took him a long, long time to waste away.

Good on Bill for not only donating when his turn came to do so (and I'm sure he gave way more than $100 for this), but for finding a creative way to pull off the "punked" part of that deal.
 
2014-08-16 01:43:28 PM  

Arkanaut: I think Bill Gates would help the cause a lot more if he contributed a few million dollars. You know, pocket change.


How do you know he didn't?
 
2014-08-16 01:43:37 PM  

MrHappyRotter: mikeray: What are the odds that a man named Lou Gehrig would actually get Lou Gerhig's disease?

No, dummy. Lou Gehrig was the guy that invented it.


"What about Lou Gehrig's disease?"
"Yeah, leave it in. Oh, but wait for Lou!"
 
2014-08-16 01:43:58 PM  

Aigoo: Arkanaut: I think Bill Gates would help the cause a lot more if he contributed a few million dollars. You know, pocket change.

Knowing how much Gates actually donates annually to various charities (hint: it's 95% of his income, as noted by many, many publications for years now), I think it's safe to say that not only did he drench himself, he donated far more than $100 as well.

As stated upthread, if he wanted to sit this one out, he's entitled, but I sincerely doubt he did, since he stated he's happy to donate but wanted to do the challenge better than it had been done.


Sir Richard Branson would do it with supermodels.
 
2014-08-16 01:45:24 PM  

jtown: You know he didn't design or build that rig.


Yeah, cuz Bill is a dumb shiat.  He didn't build that.  Someone else made that happen.
 
2014-08-16 01:52:14 PM  

cryinoutloud: Volts5000: But what about Stephen Hawking? His case is a super rare case. To call him a representation of ALS would be to call Bill Gates an average representation of a computer nerd. The vast vast majority of people don't make it past two to three years after their diagnosis.

I have never been able to figure out how Hawking is still alive. How come his lungs and heart don't just stop working?

My uncle died of ALS way back in the 70's. They did studies on him because he'd been in great shape before he got it. I wasn't around when he got bad, and only have a few memories of him sitting around in a wheelchair. My mother, bless her stupid heart, thought it was better that we didn't know anything about it, so we just ignored him while he slowly withered away.


Basically? He is kept alive by the NIH and money.

Everyone makes fun of his computer, but most can't afford that. They cost in the 10s of thousands of dollars, and insurance/hospice doesn't pay for it, Some are available on a limited loan through foundations, but you have to wait for the last person to die before it gets transferred to the next patient. There is hope as eye tracking comes to consumer devices, that this will improve, but it hasn't so far. My sister in law had to wait, unable to communicate for over a year, and then was only able to use it for a month before she succumbed. Maddening.
 
2014-08-16 02:10:44 PM  
Clearly Gates device was not Windows-powered or built by Microsoft -- because it actually farking worked.
 
2014-08-16 02:24:07 PM  
I wonder who has the stones to nominate Stephen Hawking.
 
2014-08-16 02:25:55 PM  

GDubDub: Arkanaut: I think Bill Gates would help the cause a lot more if he contributed a few million dollars. You know, pocket change.

How do you know he didn't?


TFA didn't say.
 
2014-08-16 02:45:39 PM  

Arkanaut: GDubDub: Arkanaut: I think Bill Gates would help the cause a lot more if he contributed a few million dollars. You know, pocket change.

How do you know he didn't?

TFA didn't say.


Well his foundation has $31B in assets, I'm guessing he doesn't write checks for only $100 too much.
 
2014-08-16 02:47:06 PM  

Delta1212: If you're not physically working at a medical research lab, any funds you raise to pay for research is a worthless gesture.


Listen to this man, for he speaks the truth. We didn't eradicate smallpox through people pouring billions of dollars into medical experiments and epidemiological models that they didn't understand. We got the job done by millions of working class Americans setting up medical labs in their basements or garages, and doing the research on their own instead of depending on big government to do it for them.
 
2014-08-16 02:52:57 PM  

GDubDub: Arkanaut: GDubDub: Arkanaut: I think Bill Gates would help the cause a lot more if he contributed a few million dollars. You know, pocket change.

How do you know he didn't?

TFA didn't say.

Well his foundation has $31B in assets, I'm guessing he doesn't write checks for only $100 too much.


He could have easily written a check for $100 million. What's the ALS Association going to do, tell him it's against the rules of the ice bucket challenge?
 
2014-08-16 02:53:47 PM  

Gecko Gingrich: EvilEgg: Ok, I'm officially tired of this, and pre-tired of all the imitator challenges.

But awareness, man. *Awareness*.


media.tumblr.com
 
2014-08-16 03:03:15 PM  

qlenfg: Clearly Gates device was not Windows-powered or built by Microsoft -- because it actually farking worked.


Oh, it was Microsoft. It took a couple of pulls to work correctly.

\demands to see the raw video
\\now that we've seen the Carefully Crafted Show Demo
 
2014-08-16 03:10:18 PM  

Arkanaut: GDubDub: Arkanaut: GDubDub: Arkanaut: I think Bill Gates would help the cause a lot more if he contributed a few million dollars. You know, pocket change.

How do you know he didn't?

TFA didn't say.

Well his foundation has $31B in assets, I'm guessing he doesn't write checks for only $100 too much.

He could have easily written a check for $100 million. What's the ALS Association going to do, tell him it's against the rules of the ice bucket challenge?


Considering that he is the biggest single charity contributor in the world and has pledged to give all of his money away after death, I think he was just having fun and enjoying himself. He got to feel like the cool kids for a minute. Geez you poors are something else.
 
2014-08-16 03:12:55 PM  
I like how Bill Gates briefly makes a half-hearted attempt to make it look like he actually built the frame.

But he puts his money where his lack of welding skill is.
 
2014-08-16 03:19:50 PM  
Did anyone notice there was no ice in the bucket? Isn't the whole point of this to dump ice cold water on yourself?
 
2014-08-16 03:20:11 PM  
It's nice they don't call it Lou Gehrig's disease any more since it's become obvious to everyone but the most luetic Yankees fan that he died of tertiary syphilis and not amyotrophic lateral sclerosis.
 
2014-08-16 03:40:51 PM  

An Epic of Epic Epicness: FirstNationalBastard: I'll pay to see someone take an icewater enema to raise awareness for ass cancer.

That's it.

I did the Tough Mudder run this year for the first time, and there is an obstacle called the Arctic Enema. Very BRRRR.


Did anyone wish you a happy Mudder's Day?

www.gereth.net

www.fireflyfans.net
 
2014-08-16 04:01:47 PM  

Cpl.D: I like how Bill Gates briefly makes a half-hearted attempt to make it look like he actually built the frame.

But he puts his money where his lack of welding skill is.


Dude actually always has been a brilliant engineer, you know, and now he's a retired old man who spends all day tinkering in his garage. Why wouldn't he? That contraption looks no more rickety than any other hobbyist project I've seen built.

One of these days someone's going to nominate Rob Walton, and he's going to send out a press release debunking all this charity nonsense as communist plot. That man's as close to a real-life Scrooge as it gets.
 
2014-08-16 04:34:18 PM  

FirstNationalBastard: I'll pay to see someone take an icewater enema to raise awareness for ass cancer.

That's it.


The Ice hits the Anus?
 
2014-08-16 04:52:54 PM  

Arkanaut: I think Bill Gates would help the cause a lot more if he contributed a few million dollars. You know, pocket change.


I believe he mentioned a donation at the beginning.
 
2014-08-16 05:11:06 PM  
Gates should have challenged Warren Buffett.  That's how football coach George Allen supposedly died.  Had a bucket of Gatorade poured over him at an advanced age buy his players, caught cold and eventually died.

Or Larry Ellison.
 
2014-08-16 05:11:16 PM  

Another Government Employee: Arkanaut: I think Bill Gates would help the cause a lot more if he contributed a few million dollars. You know, pocket change.

I believe he mentioned a donation at the beginning.


With how much money Gates pumps out to charitable causes.. Yea, I would imagine it was rather significant.
 
2014-08-16 05:42:08 PM  

foxyshadis: Cpl.D: I like how Bill Gates briefly makes a half-hearted attempt to make it look like he actually built the frame.

But he puts his money where his lack of welding skill is.

Dude actually always has been a brilliant engineer, you know, and now he's a retired old man who spends all day tinkering in his garage. Why wouldn't he? That contraption looks no more rickety than any other hobbyist project I've seen built.

One of these days someone's going to nominate Rob Walton, and he's going to send out a press release debunking all this charity nonsense as communist plot. That man's as close to a real-life Scrooge as it gets.


blog.pickcrew.com

\college dropouts aren't exactly engineers
\\he was a good programmer once. No need to award him any more honorary degrees along the way
\\\honestly surprised he knew which end of the torch to hold
 
2014-08-16 06:01:34 PM  
When are people going to figure out that "awareness" means "more donations"? That's the whole point of awareness.
 
2014-08-16 06:08:16 PM  

Massively Multiplayer Addict: When are people going to figure out that "awareness" means "more donations"? That's the whole point of awareness.


When are people going to figure out that we don't need awareness campaigns that only serve to keep awareness campaigns going?
 
2014-08-16 06:43:38 PM  

T-Servo: SO I assume what was edited out of the video was Gates trying several times to pull the rope, having to refill the bucket twice, and then waiting for the system to update before he could get doused.


If you notice, the dock was wet, so it looks like this thing had to be reboot at least once.
 
2014-08-16 07:14:47 PM  
 
2014-08-16 07:17:01 PM  

MrHappyRotter: mikeray: What are the odds that a man named Lou Gehrig would actually get Lou Gerhig's disease?

No, dummy. Lou Gehrig was the guy that invented it.


Damn Lou Gehrig - LOL
 
2014-08-16 07:18:06 PM  
On the technical side, he was using a mapp gas torch not a welding torch and didn't need a welding mask. You would use a mapp gas torch for soldering.
 
2014-08-16 07:22:44 PM  

noitsnot: GardenWeasel: noitsnot: RTOGUY: Arkanaut: I think Bill Gates would help the cause a lot more if he contributed a few million dollars. You know, pocket change.

Gates has spent a fortune on charity work around the world if he wants to sit this one out (we don't know that he didn't donate something) that would be fine by me.

See, Bill Gates and Jimmy Carter ACTUALLY CURE DISEASE around the world.

http://www.cartercenter.org/health/guinea_worm/index.html

http://www.cartercenter.org/health/river_blindness/index.html

Awareness campaigns let teenage girls wear "save the boobies" t-shirts to school so they can feel naughty  and get all giggly.

And HOW do they do that? Money. Awareness campaigns lead to donations. Stop being a such a damn cynic.

Fine.  The amount of overhead is just annoying.  Plus the idea that the best marketing determines who gets funded.   Lung and colon cancer each kill more people than breast cancer every year, but, ya know - TITS!


I'll agree it's unbalanced, but otoh...don't smoke, and eat your roughage, and you'll cut your chance of the first two considerably.  Not much the ladies can do about the lady parts, unless they go the Angelina Jolie route...
 
2014-08-16 07:53:26 PM  
Someone should start a challenge like this for conservative fundraising. Except use a bucket of molten lava.
 
2014-08-16 09:48:35 PM  
Bill Gates is only 58? He looks terrible. He looks like he's in his 70s.
 
2014-08-16 11:03:47 PM  

radiobiz: Being the self absorbed middle aged redneck that I am I have no idea what this is. I only heard of the ice bucket challenge this week.

So, um, I don't get it. What does dumping ice water on your head have to do with ALS?  Does it make you mimic a symptom or something?

Off to google.


And here we see what "awareness" is all about. Farker radiobiz gets it. Some of you other Farkers do not.

Awareness != cure. It = awareness. Because not everyone has heard of what you've heard of. (And vice versa.)

But for the record, what makes this particular campaign so brilliant, aside from its simplicity, is that it accomplishes *both* awareness-raising and fund-raising. Two separate goals beautifully, if annoyingly (to some) achieved simultaneously. I don't know if it was luck or skill but someone started a great campaign.
 
2014-08-16 11:15:23 PM  

noitsnot: GardenWeasel: noitsnot: RTOGUY: Arkanaut: I think Bill Gates would help the cause a lot more if he contributed a few million dollars. You know, pocket change.

Gates has spent a fortune on charity work around the world if he wants to sit this one out (we don't know that he didn't donate something) that would be fine by me.

See, Bill Gates and Jimmy Carter ACTUALLY CURE DISEASE around the world.

http://www.cartercenter.org/health/guinea_worm/index.html

http://www.cartercenter.org/health/river_blindness/index.html

Awareness campaigns let teenage girls wear "save the boobies" t-shirts to school so they can feel naughty  and get all giggly.

And HOW do they do that? Money. Awareness campaigns lead to donations. Stop being a such a damn cynic.

Fine.  The amount of overhead is just annoying.  Plus the idea that the best marketing determines who gets funded.  Lung and colon cancer each kill more people than breast cancer every year, but, ya know - TITS!

Plus I worked for a grant funded cancer research start-up for a while and it was a bit sick the way the founder pretty much was just good at grant applications, and got the same grants every year and went to a lot of conferences and had fun with his buddies.  Meanwhile the work we were doing was pointless 20 year old technology.


I see. So you personally had a bad experience with fundraising, and that's a valid reason to shiat all over every other attempt.

Lemme give you a little help here:

Charitynavigator.org

Now you can see who's having buddy fun at conferences every year, and who's really working towards the publicized charity goal.

So STFU.
 
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