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(News.com.au)   8-year-old British girl diagnosed with terminal brain cancer becomes the first person in the world to beat the illness   (news.com.au) divider line 91
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8890 clicks; posted to Main » on 12 Jun 2014 at 5:17 AM (5 weeks ago)   |  Favorite    |   share:  Share on Twitter share via Email Share on Facebook   more»



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2014-06-12 09:36:44 AM
www.thiefsden.net

Approves.
 
2014-06-12 09:40:58 AM
Her healing ability kicked in. Now to get her some adamantium claws...
 
2014-06-12 09:46:05 AM
Sounds like a bit of a Pyrrhic victory. But, as others have pointed out, the brain is pretty flexible at that age; she could recover more than any of us expect.
 
2014-06-12 10:11:21 AM

doczoidberg: That's me. I've seen so many relatives pointlessly spend their last few months of life getting poked and prodded and chopped into pieces in some vain attempt to beat the cancer. It never works.

When my turn comes, I will have three questions for the doctor: how long do I have, what will the end be like, and what meds can I have for the pain? I am not going to fight it.

I don't even plan on telling anyone.


Depends on the nature and prognosis, but I get your point.  I've had two good friends beat cancer, and are living almost as they did before.  Still sleep a little more, and need to really watch their diet and get iron treatments, but back to work, back to life, and enjoying things.  Family, love, sex, vacations, the whole shebang.

The hardest part is living with the fear of return.  Every pain, every cold, every weird feeling makes you ask "is this IT coming back?".  It's a hard voice to shut out.
 
2014-06-12 10:12:43 AM
My daughter had lift-threatening seizures from the time she was 3 till 9.  Then she started puberty, and hasn't had one since.  She is now 14.
 
2014-06-12 10:13:22 AM
*life, obviously
 
2014-06-12 10:23:54 AM

namatad: "A miracle science has happened, it really has. "

science is really confusing to people


Any sufficiently advanced technology is indistinguishable from magic".-Arthur C. Clarke.
 
2014-06-12 10:25:54 AM

Nidiot: encyclopediaplushuman: TFA says she has brain damage as a result of the treatment.

So basically the family fighting for their selfish desire to have their kid live ended up damaging their brain with the cure. Some cure. Depending on the level of damage, it would've been much more ethical to let her die from the cancer. I don't like saying it, but it's something we need to consider.

/feels like a scumbag
//trying to be an ethical scumbag

I agree, although they did rather gloss over the brain damage part somewhat, so I'd be rather interested in knowing exactly how brain damaged she is. Though I suspect it is less likely to be that she might be a slow learner, and more along the lines of cannot perform basic functions anymore. If she cannot go on to live an independent life in the future, then I'd certainly say her parents were indeed horrible selfish people.


Yeah, I'm sure it was all sunshine and roses for the family going through this. Part of it too, for anyone who has had a family member go through cancer, is that maybe, just maybe, something learned in the treatment for your family member who will almost likely die might help someone out in the future to survive for a bit longer or beat cancer. The cancer in this case would still be a terminal cancer - and likely will still have a low survival rate for some time - if it weren't for patients and their families willing to go through treatment like this. So are these parents selfish because they put their daughter through a treatment that may not have saved her life but only helped out in the research? What about the parents of all the other children who have suffered through this disease only to have to bury their children? Are they selfish too?
 
2014-06-12 10:46:21 AM
Obama? Obama? Obama? No? Huh. I thought Obama was the giver of all miracles ..
 
2014-06-12 11:04:20 AM

doglover: Survival rate less than 5%.

Survival rate 0% until this girl.

Which is it?


Technically, 0% is less than 5%
 
2014-06-12 11:05:47 AM

doczoidberg: That's me. I've seen so many relatives pointlessly spend their last few months of life getting poked and prodded and chopped into pieces in some vain attempt to beat the cancer. It never works.

When my turn comes, I will have three questions for the doctor: how long do I have, what will the end be like, and what meds can I have for the pain? I am not going to fight it.

I don't even plan on telling anyone.


Cancer doesn't run in my family but on the off chance I should get it, I would ask "if I go through the chemo and radiation, will it buy me years?"  If it won't, drug me up and let me go.  I've seen enough friends and colleagues go through that shiat to say no farking way.
 
2014-06-12 11:06:30 AM

doglover: Survival rate less than 5%.
Survival rate 0% until this girl.
Which is it?

Only about four cases of metastatic pineoblastoma are
│  diagnosed every year and there is a survival rate of
│  less than five per cent worldwide. [...]
│  Claudia is believed to be the very first little girl in the
world ever to survive metastatic pineoblastoma.

I'm guessing that none of those in the 5% were "little girls". Or that the author of TFA doesn't know basic math[s] (which is typical for most journalists).
 
2014-06-12 11:11:22 AM

Khellendros: doczoidberg: That's me. I've seen so many relatives pointlessly spend their last few months of life getting poked and prodded and chopped into pieces in some vain attempt to beat the cancer. It never works.

When my turn comes, I will have three questions for the doctor: how long do I have, what will the end be like, and what meds can I have for the pain? I am not going to fight it.

I don't even plan on telling anyone.

Depends on the nature and prognosis, but I get your point.  I've had two good friends beat cancer, and are living almost as they did before.  Still sleep a little more, and need to really watch their diet and get iron treatments, but back to work, back to life, and enjoying things.  Family, love, sex, vacations, the whole shebang.

The hardest part is living with the fear of return.  Every pain, every cold, every weird feeling makes you ask "is this IT coming back?".  It's a hard voice to shut out.


"Sex"? They do sex anymore! They'll spread the disease to their partners!
 
2014-06-12 11:13:52 AM

encyclopediaplushuman: So basically the family fighting for their selfish desire to have their kid live ended up damaging their brain with the cure. Some cure. Depending on the level of damage, it would've been much more ethical to let her die from the cancer. I don't like saying it, but it's something we need to consider.


You don't know what the outcome will be when you start treatment. Whether the treatment is successful or not, or results in minor, moderate or severe life long side effects is something you only find out at the end.
 
2014-06-12 11:16:04 AM

Marisyana: doczoidberg: That's me. I've seen so many relatives pointlessly spend their last few months of life getting poked and prodded and chopped into pieces in some vain attempt to beat the cancer. It never works.

When my turn comes, I will have three questions for the doctor: how long do I have, what will the end be like, and what meds can I have for the pain? I am not going to fight it.

I don't even plan on telling anyone.

Cancer doesn't run in my family but on the off chance I should get it, I would ask "if I go through the chemo and radiation, will it buy me years?"  If it won't, drug me up and let me go.  I've seen enough friends and colleagues go through that shiat to say no farking way.


My plan is to buy a bus ticket to the northernmost station on the continent.  Then walk north.  Let what will happen, happen.
 
2014-06-12 11:16:20 AM
│  A miracle has happened, it really has.

If God, or her guardian angel, or her lucky rabbit's foot, or whatever had really been doing its job, the little girl would not have gotten terminal brain cancer in the first place, right?
 
2014-06-12 11:53:30 AM

lindseyp: Clearly she was misdiagnosed.

Obviously. She was diagnosed with terminal brain cancer; if she didn't die, then obviously she had some other kind of brain cancer.
 
2014-06-12 12:11:46 PM

Khellendros: doczoidberg: That's me. I've seen so many relatives pointlessly spend their last few months of life getting poked and prodded and chopped into pieces in some vain attempt to beat the cancer. It never works.

When my turn comes, I will have three questions for the doctor: how long do I have, what will the end be like, and what meds can I have for the pain? I am not going to fight it.

I don't even plan on telling anyone.

Depends on the nature and prognosis, but I get your point.  I've had two good friends beat cancer, and are living almost as they did before.  Still sleep a little more, and need to really watch their diet and get iron treatments, but back to work, back to life, and enjoying things.  Family, love, sex, vacations, the whole shebang.

The hardest part is living with the fear of return.  Every pain, every cold, every weird feeling makes you ask "is this IT coming back?".  It's a hard voice to shut out.



Theres and xkcd for everything imgs.xkcd.com
 
2014-06-12 12:15:05 PM

ArcadianRefugee: lindseyp: Clearly she was misdiagnosed.
Obviously. She was diagnosed with terminal brain cancer; if she didn't die, then obviously she had some other kind of brain cancer.


MALPRACTICE!!! LAWSUIT!!!
 
2014-06-12 12:21:00 PM
And the reason why I could never have been a doctor is that I would have just gotten TOTALLY pissed off when I diagnosed, worked, prescribed, treated, and cured a patient, and they and their family turn around and say "We prayed and God delivered a miracle."

FARK you! Fark you fark you fark you!!! You don't think the doctors who busted ass to save you/your loved one had anything to do with it? That science didn't save them? You insist that God "worked through them" to save you or your loved one?!?

ARRRGHHH!!
 
2014-06-12 12:22:57 PM

khitsicker: Theres and xkcd for everything


And I really wish there weren't, because XKCD is farking annoying.
 
2014-06-12 12:55:19 PM
They should have considered

37.media.tumblr.com

A brain transplant
 
2014-06-12 01:23:29 PM

Nidiot: encyclopediaplushuman: TFA says she has brain damage as a result of the treatment.

So basically the family fighting for their selfish desire to have their kid live ended up damaging their brain with the cure. Some cure. Depending on the level of damage, it would've been much more ethical to let her die from the cancer. I don't like saying it, but it's something we need to consider.

/feels like a scumbag
//trying to be an ethical scumbag

I agree, although they did rather gloss over the brain damage part somewhat, so I'd be rather interested in knowing exactly how brain damaged she is. Though I suspect it is less likely to be that she might be a slow learner, and more along the lines of cannot perform basic functions anymore. If she cannot go on to live an independent life in the future, then I'd certainly say her parents were indeed horrible selfish people.


You know how I know you don't have kids?
 
2014-06-12 01:35:26 PM

encyclopediaplushuman: TFA says she has brain damage as a result of the treatment.

So basically the family fighting for their selfish desire to have their kid live ended up damaging their brain with the cure. Some cure. Depending on the level of damage, it would've been much more ethical to let her die from the cancer. I don't like saying it, but it's something we need to consider.

/feels like a scumbag
//trying to be an ethical scumbag


The article says she, "has some residual brain damage," which I would read as, "she's not rocking back and forth, drooling and pooping her pants."

I work in an office where we employee people with mental disabilities (along the lines of Down syndrome, although that's not the cause for all of them). They are all adults. They all have distinct personalities. They laugh about stuff. They get annoyed with their co-workers. They participate in company-wide activities. They seem to take just as much enjoyment and sorrow from life as the lawyers, accountants, secretaries and IT people around them.

I'm sure none of them would prefer to be dead. I'm sure this girl is at least as well off as any of them, if not better.

/We don't use disposable cups, plates, forks, etc. They gather the mugs and other items from around the office and run them through the dishwasher on a regular basis, as well as helping to clean up after meetings and conferences.
 
2014-06-12 01:52:22 PM

lostcat: encyclopediaplushuman: TFA says she has brain damage as a result of the treatment.

So basically the family fighting for their selfish desire to have their kid live ended up damaging their brain with the cure. Some cure. Depending on the level of damage, it would've been much more ethical to let her die from the cancer. I don't like saying it, but it's something we need to consider.

/feels like a scumbag
//trying to be an ethical scumbag

The article says she, "has some residual brain damage," which I would read as, "she's not rocking back and forth, drooling and pooping her pants."

I work in an office where we employee people with mental disabilities (along the lines of Down syndrome, although that's not the cause for all of them). They are all adults. They all have distinct personalities. They laugh about stuff. They get annoyed with their co-workers. They participate in company-wide activities. They seem to take just as much enjoyment and sorrow from life as the lawyers, accountants, secretaries and IT people around them.

I'm sure none of them would prefer to be dead. I'm sure this girl is at least as well off as any of them, if not better.

/We don't use disposable cups, plates, forks, etc. They gather the mugs and other items from around the office and run them through the dishwasher on a regular basis, as well as helping to clean up after meetings and conferences.


One amazing thing about the brain, is it can rewire itself... if some pathways are blocked, it will find an alternate route.    Residual cell damage is inevitable with radiotherapy on ANY part of the body, so yeah, the brain will be extra tricky, but i'm sure they took great pains to minimize it as much as possible.

I mean, the tumor itself was consuming some of the brain, even without the radiotherapy.   And with so many treatments, they are monitoring the ill effects with each successive session.
 
2014-06-12 01:54:31 PM

StrikitRich: Sadly, this will end any chance she had at a political career, right?


No, she's still too intelligent and coherent for that.
 
2014-06-12 02:00:23 PM

wildcardjack: Well, she's 8. She might be rather delayed, but kids have loads of neuroplasticity.

All in all, bravo, you killed a cancer using radiological brute force. Inelegant compared to other stuff you see in the news. Like reprogramming a virus to attack a target cancer.

I have rather brutal things to say about spending hundreds of thousands to cure kids. These entities that have had little put into them, not even any education expenditures. Similar with the 85 year old hip replacement, the person has reached an end. But we see it perfectly fine to send 18 -21 year olds into combat when we just finished raising them. Same thing about reserving a vaccine for seniors and infants. One bad flu and all we have are old people and children.


If you knew anything about "one bad flu," you'd know elderly and kids would be first to bite it.
 
2014-06-12 02:04:38 PM
Have we covered the "it's not a miracle" bit yet?
 
2014-06-12 02:28:28 PM
An awful lot of bromedicine in here.
 
2014-06-12 02:38:13 PM

Loreweaver: StrikitRich: Sadly, this will end any chance she had at a political career, right?

No, she's still too intelligent and coherent for that.


Well, that was my point, afterall
 
2014-06-12 02:55:50 PM

Clemkadidlefark: Obama? Obama? Obama? No? Huh. I thought Obama was the giver of all miracles ..


wow.

I'm ashamed for you just reading that. That's a downright embarrassing post, even for fark.
 
2014-06-12 02:58:28 PM

Nidiot: encyclopediaplushuman: TFA says she has brain damage as a result of the treatment.

So basically the family fighting for their selfish desire to have their kid live ended up damaging their brain with the cure. Some cure. Depending on the level of damage, it would've been much more ethical to let her die from the cancer. I don't like saying it, but it's something we need to consider.

/feels like a scumbag
//trying to be an ethical scumbag

I agree, although they did rather gloss over the brain damage part somewhat, so I'd be rather interested in knowing exactly how brain damaged she is. Though I suspect it is less likely to be that she might be a slow learner, and more along the lines of cannot perform basic functions anymore. If she cannot go on to live an independent life in the future, then I'd certainly say her parents were indeed horrible selfish people.


My daughter had 33 rounds of cranial radiation at about the same age as she did (with 11 fewer rounds of radiation).  At age 10, my daughter is independent, spot on socially, and an average reader, but has not yet been able to memorize multiplication tables, which we attribute to the treatments.  Most of the children that we have met who had to have a second set of radiation treatments will never be independent, which was a deciding factor in choosing an alternative treatment for our daughter when the tumor returned five years ago.  We likely made the right decision.

We know many parents who would fit the 'selfish' definition in trying to get their child to live over any cost.  I don't think we fit that definition, but then again I'm biased.
 
2014-06-12 03:01:35 PM

lostcat: Nidiot: encyclopediaplushuman: TFA says she has brain damage as a result of the treatment.

So basically the family fighting for their selfish desire to have their kid live ended up damaging their brain with the cure. Some cure. Depending on the level of damage, it would've been much more ethical to let her die from the cancer. I don't like saying it, but it's something we need to consider.

/feels like a scumbag
//trying to be an ethical scumbag

I agree, although they did rather gloss over the brain damage part somewhat, so I'd be rather interested in knowing exactly how brain damaged she is. Though I suspect it is less likely to be that she might be a slow learner, and more along the lines of cannot perform basic functions anymore. If she cannot go on to live an independent life in the future, then I'd certainly say her parents were indeed horrible selfish people.

You know how I know you don't have kids?


Or know anybody who has fought cancer.
 
2014-06-12 03:03:57 PM

piledhigheranddeeper: My daughter had 33 rounds of cranial radiation at about the same age as she did


Wow. You lived through every parent's worst nightmare. I hope you are all ok, especially her.
 
2014-06-12 04:02:11 PM
What's wrong with kids nowadays? Why not listen to the doctor?
 
2014-06-12 04:40:19 PM

Nidiot: The more you eat the more you fart: Nidiot: encyclopediaplushuman: TFA says she has brain damage as a result of the treatment.

So basically the family fighting for their selfish desire to have their kid live ended up damaging their brain with the cure. Some cure. Depending on the level of damage, it would've been much more ethical to let her die from the cancer. I don't like saying it, but it's something we need to consider.

/feels like a scumbag
//trying to be an ethical scumbag

I agree, although they did rather gloss over the brain damage part somewhat, so I'd be rather interested in knowing exactly how brain damaged she is. Though I suspect it is less likely to be that she might be a slow learner, and more along the lines of cannot perform basic functions anymore. If she cannot go on to live an independent life in the future, then I'd certainly say her parents were indeed horrible selfish people.

Ask the lite girl is she'd rather be dead or not.

I know this is fark..but damn there are some sick bastards in here

Good point, but what if she just stares blankly and drools...?


Good point. Why bother trying to save a stroke victim. They might end up only able to stare and drool. Or...
Maybe in trying to save people with this rare condition, they may discover something that helps prevent, or treat the condition better so the next survivor doesn't suffer as much.

I realize humans suck at the cold calculus of cutting their losses, but the fact that people are willing to risk themselves for others, even when they might all die is the one thing I think we humans get right.

/not trying to be too snarky, I do understand your point, I just think it's the kind of risk that is justified, all jmho
 
2014-06-12 06:11:56 PM

The My Little Pony Killer: lostcat: Nidiot: encyclopediaplushuman: TFA says she has brain damage as a result of the treatment.

So basically the family fighting for their selfish desire to have their kid live ended up damaging their brain with the cure. Some cure. Depending on the level of damage, it would've been much more ethical to let her die from the cancer. I don't like saying it, but it's something we need to consider.

/feels like a scumbag
//trying to be an ethical scumbag

I agree, although they did rather gloss over the brain damage part somewhat, so I'd be rather interested in knowing exactly how brain damaged she is. Though I suspect it is less likely to be that she might be a slow learner, and more along the lines of cannot perform basic functions anymore. If she cannot go on to live an independent life in the future, then I'd certainly say her parents were indeed horrible selfish people.

You know how I know you don't have kids?

Or know anybody who has fought cancer.


There's a difference between choosing to fight cancer than giving a barely-sentient 8-year old tons nearly fifty ionizing radiation hits to the brain to cure her cancer. If she's a drooling vegetable for the rest of her life, at least the parents will be happy she didn't die and be selfish bastards about it.
 
2014-06-12 06:38:20 PM
"Where is it I've read that someone condemned to death says or thinks, an hour before his death, that if he had to live on some high rock, on such a narrow ledge that he'd only room to stand, and the ocean, everlasting darkness, everlasting solitude, everlasting tempest around him, if he had to remain standing on a square yard of space all his life, a thousand years, eternity, it were better to live so than to die at once. Only to live, to live and live! Life, whatever it may be!"

- Fyodor Dostoevsky
 
2014-06-12 08:04:30 PM

encyclopediaplushuman: I don't like saying it, but it's something we need to consider.



Human knowledge will grow as they study her.
The greater good.
 
2014-06-12 09:46:30 PM
oyster.ignimgs.com
My Client, Claudia Burkill.....
 
2014-06-13 04:59:36 AM

encyclopediaplushuman: There's a difference between choosing to fight cancer than giving a barely-sentient 8-year old tons nearly fifty ionizing radiation hits to the brain to cure her cancer. If she's a drooling vegetable for the rest of her life, at least the parents will be happy she didn't die and be selfish bastards about it.


Do you think they should have tried nothing, and accepted inevitable death as the only possible outcome?
 
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