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(News.com.au)   8-year-old British girl diagnosed with terminal brain cancer becomes the first person in the world to beat the illness   (news.com.au ) divider line
    More: Spiffy  
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8964 clicks; posted to Main » on 12 Jun 2014 at 5:17 AM (1 year ago)   |   Favorite    |   share:  Share on Twitter share via Email Share on Facebook   more»



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2014-06-11 11:55:21 PM  
Survival rate less than 5%.

Survival rate 0% until this girl.

Which is it?
 
2014-06-12 12:00:07 AM  

doglover: Survival rate less than 5%.

Survival rate 0% until this girl.

Which is it?


Well they say it is exceedingly rare, so the article is horribly written.
 
2014-06-12 12:25:11 AM  
She's 8.  Classify her as a survivor when she's 65.
 
2014-06-12 01:08:33 AM  
Clearly she was misdiagnosed.
 
2014-06-12 02:30:21 AM  
"A miracle science has happened, it really has. "

science is really confusing to people
 
2014-06-12 03:39:53 AM  
Well, it is World Cup season. She was probably just trying to draw a red card on her classmates.
 
2014-06-12 04:10:46 AM  
...b-b-but socialised medicine ..
 
2014-06-12 05:18:21 AM  
TFA says she has brain damage as a result of the treatment.

So basically the family fighting for their selfish desire to have their kid live ended up damaging their brain with the cure. Some cure. Depending on the level of damage, it would've been much more ethical to let her die from the cancer. I don't like saying it, but it's something we need to consider.

/feels like a scumbag
//trying to be an ethical scumbag
 
2014-06-12 05:34:00 AM  

encyclopediaplushuman: TFA says she has brain damage as a result of the treatment.

So basically the family fighting for their selfish desire to have their kid live ended up damaging their brain with the cure. Some cure. Depending on the level of damage, it would've been much more ethical to let her die from the cancer. I don't like saying it, but it's something we need to consider.

/feels like a scumbag
//trying to be an ethical scumbag


I agree, although they did rather gloss over the brain damage part somewhat, so I'd be rather interested in knowing exactly how brain damaged she is. Though I suspect it is less likely to be that she might be a slow learner, and more along the lines of cannot perform basic functions anymore. If she cannot go on to live an independent life in the future, then I'd certainly say her parents were indeed horrible selfish people.
 
2014-06-12 05:35:25 AM  
normal= "we did loads of medicine and the kid got better"

miracle="we didn`t do any medicine and just prayed and the kid got better, also we got this awesome signed letter from God"
 
2014-06-12 05:37:09 AM  

encyclopediaplushuman: I don't like saying it, but it's something we need to consider.


This is FARK, we don`t need to consider anything and of course you liked saying it or you wouldn`t have said it.
 
2014-06-12 05:37:24 AM  
Based on the name of the disease (which makes me think the tumor is near the pineal gland) and the fact that the girl needs a wheelchair, I'd guess brain stem took the damage, meaning that things like her coordination would be affected.
 
2014-06-12 05:38:28 AM  
Whatever.

Her cancer will come back and kill her later, anyway.

Cancer always comes back.
 
2014-06-12 05:39:29 AM  
wasn't it really her oncologist who beat the disease?
 
2014-06-12 05:47:38 AM  

aerojockey: Based on the name of the disease (which makes me think the tumor is near the pineal gland) and the fact that the girl needs a wheelchair, I'd guess brain stem took the damage, meaning that things like her coordination would be affected.


From reading elsewhere, though unfortunately most of the articles seem to be carbon copies of this one, she is also legally blind and they are saying the total volume of her brain is now less than it would be for a normal child her age thanks to the amount of radiation/chemo she went through.
 
2014-06-12 05:49:32 AM  
God saved her so he can kill her with a horrible traffic accident when she's 22.
 
2014-06-12 05:52:28 AM  

Nidiot: encyclopediaplushuman: TFA says she has brain damage as a result of the treatment.

So basically the family fighting for their selfish desire to have their kid live ended up damaging their brain with the cure. Some cure. Depending on the level of damage, it would've been much more ethical to let her die from the cancer. I don't like saying it, but it's something we need to consider.

/feels like a scumbag
//trying to be an ethical scumbag

I agree, although they did rather gloss over the brain damage part somewhat, so I'd be rather interested in knowing exactly how brain damaged she is. Though I suspect it is less likely to be that she might be a slow learner, and more along the lines of cannot perform basic functions anymore. If she cannot go on to live an independent life in the future, then I'd certainly say her parents were indeed horrible selfish people.


Ask the lite girl is she'd rather be dead or not.

I know this is fark..but damn there are some sick bastards in here
 
2014-06-12 05:54:36 AM  
Statistics: almost 96% reliable.
 
2014-06-12 05:55:49 AM  
That was supposed to be:

Ask the little girl if she'd rather be dead or not.
 
2014-06-12 06:02:05 AM  

The more you eat the more you fart: Nidiot: encyclopediaplushuman: TFA says she has brain damage as a result of the treatment.

So basically the family fighting for their selfish desire to have their kid live ended up damaging their brain with the cure. Some cure. Depending on the level of damage, it would've been much more ethical to let her die from the cancer. I don't like saying it, but it's something we need to consider.

/feels like a scumbag
//trying to be an ethical scumbag

I agree, although they did rather gloss over the brain damage part somewhat, so I'd be rather interested in knowing exactly how brain damaged she is. Though I suspect it is less likely to be that she might be a slow learner, and more along the lines of cannot perform basic functions anymore. If she cannot go on to live an independent life in the future, then I'd certainly say her parents were indeed horrible selfish people.

Ask the lite girl is she'd rather be dead or not.

I know this is fark..but damn there are some sick bastards in here


Good point, but what if she just stares blankly and drools...?
 
2014-06-12 06:04:36 AM  

doczoidberg: Whatever.

Her cancer will come back and kill her later, anyway.

Cancer always comes back.


Debbie downer.

Anyway, you're thinking of Nosferatu. Easy mistake
 
2014-06-12 06:07:13 AM  

Nidiot: Good point, but what if she just stares blankly and drools...?


Then she's qualified to be a Fox News contributor
 
2014-06-12 06:07:45 AM  
No pill for treatment yet? Barbarians.
 
2014-06-12 06:13:43 AM  
Another article spoke of "loss of speech" but nothing more drastic... could be a consequence of tumor pressure on brain areas. If not, well, sign language is available; it's not like she was locked in by the damn thing, I hope she recovers from the whole damn thing soon. In the meantime...

Hey cancer!

1.bp.blogspot.com
Attn. SCIENCE!
 
2014-06-12 06:14:41 AM  
Can we try and inject some optimism into fark? This place is a hole of negativity, cynicism and pessimism. Cheer up you miserable bunch.
 
2014-06-12 06:26:26 AM  

doglover: Survival rate less than 5%.

Survival rate 0% until this girl.

Which is it?



I'm no expert, but things like this make me think it probably isn't zero percent:

"Nine patients are alive and disease-free at a median follow-up of 62 months (range, 28 to 125 months) from diagnosis. This includes three of four patients with metastatic disease at presentation (patients 5, 9, and 11; Table 1⇑) and two infants (patients 1 and 2; Table 1⇑) who did not receive radiotherapy."  http://jco.ascopubs.org/content/21/11/2187.full
 
2014-06-12 06:34:45 AM  
Good.
 
2014-06-12 06:38:22 AM  
wow, my sisters name was Claudia, and she had stage 4 glioblastoma multiforme.... coincidence?!

Yes, total coincidence, and just barely.


/her zodiac sign was Cancer, so we really should have seen it coming
 
2014-06-12 06:39:27 AM  
Obligatory.

http://xkcd.com/931/

Good that she beat it back for now, but that's going to haunt her for the rest of her life. Therapy and psychiatry may be needed.
 
2014-06-12 06:40:29 AM  
Well, she's 8. She might be rather delayed, but kids have loads of neuroplasticity.

All in all, bravo, you killed a cancer using radiological brute force. Inelegant compared to other stuff you see in the news. Like reprogramming a virus to attack a target cancer.

I have rather brutal things to say about spending hundreds of thousands to cure kids. These entities that have had little put into them, not even any education expenditures. Similar with the 85 year old hip replacement, the person has reached an end. But we see it perfectly fine to send 18 -21 year olds into combat when we just finished raising them. Same thing about reserving a vaccine for seniors and infants. One bad flu and all we have are old people and children.
 
2014-06-12 06:40:52 AM  

Nidiot: The more you eat the more you fart: Nidiot: encyclopediaplushuman: TFA says she has brain damage as a result of the treatment.

So basically the family fighting for their selfish desire to have their kid live ended up damaging their brain with the cure. Some cure. Depending on the level of damage, it would've been much more ethical to let her die from the cancer. I don't like saying it, but it's something we need to consider.

/feels like a scumbag
//trying to be an ethical scumbag

I agree, although they did rather gloss over the brain damage part somewhat, so I'd be rather interested in knowing exactly how brain damaged she is. Though I suspect it is less likely to be that she might be a slow learner, and more along the lines of cannot perform basic functions anymore. If she cannot go on to live an independent life in the future, then I'd certainly say her parents were indeed horrible selfish people.

Ask the lite girl is she'd rather be dead or not.

I know this is fark..but damn there are some sick bastards in here

Good point, but what if she just stares blankly and drools...?


Clearly thats not the case.
 
2014-06-12 06:49:08 AM  

The more you eat the more you fart: Nidiot: encyclopediaplushuman: TFA says she has brain damage as a result of the treatment.

So basically the family fighting for their selfish desire to have their kid live ended up damaging their brain with the cure. Some cure. Depending on the level of damage, it would've been much more ethical to let her die from the cancer. I don't like saying it, but it's something we need to consider.

/feels like a scumbag
//trying to be an ethical scumbag

I agree, although they did rather gloss over the brain damage part somewhat, so I'd be rather interested in knowing exactly how brain damaged she is. Though I suspect it is less likely to be that she might be a slow learner, and more along the lines of cannot perform basic functions anymore. If she cannot go on to live an independent life in the future, then I'd certainly say her parents were indeed horrible selfish people.

Ask the lite girl is she'd rather be dead or not.

I know this is fark..but damn there are some sick bastards in here


Aaaaaaaaaaaannnnnnd now we have 'quality of life' in play. is the cure worse than the disease?

/too early for popcorn, gets coffee
 
2014-06-12 06:51:05 AM  

dready zim: normal= "we did loads of medicine and the kid got better"

miracle="we didn`t do any medicine and just prayed and the kid got better, also we got this awesome signed letter from God"


you know, reading what I wrote I see the `awesome signed letter from God` part as the least likely thing to be true in my post...
 
2014-06-12 06:51:20 AM  

doczoidberg: Whatever.

Her cancer will come back and kill her later, anyway.

Cancer always comes back.


And everyday, she tells the God of Cancer, "Not today."

/seen too many people with bonus post-diagnosis life
 
2014-06-12 06:51:32 AM  

OtherLittleGuy: The more you eat the more you fart: Nidiot: encyclopediaplushuman: TFA says she has brain damage as a result of the treatment.

So basically the family fighting for their selfish desire to have their kid live ended up damaging their brain with the cure. Some cure. Depending on the level of damage, it would've been much more ethical to let her die from the cancer. I don't like saying it, but it's something we need to consider.

/feels like a scumbag
//trying to be an ethical scumbag

I agree, although they did rather gloss over the brain damage part somewhat, so I'd be rather interested in knowing exactly how brain damaged she is. Though I suspect it is less likely to be that she might be a slow learner, and more along the lines of cannot perform basic functions anymore. If she cannot go on to live an independent life in the future, then I'd certainly say her parents were indeed horrible selfish people.

Ask the lite girl is she'd rather be dead or not.

I know this is fark..but damn there are some sick bastards in here

Aaaaaaaaaaaannnnnnd now we have 'quality of life' in play. is the cure worse than the disease?

/too early for popcorn, gets coffee


It probably wasnt the treatment that caused the blindness or motor deficits.

The antineoplastics and ionizing radiation probably lowered her brain volume but she's 8.

The brain's plasticity at that age is still very high.
 
2014-06-12 06:55:52 AM  

doczoidberg: Whatever.

Her cancer will come back and kill her later, anyway.

Cancer always comes back.


Not if a bus gets you first.
 
2014-06-12 06:57:54 AM  

doglover: Survival rate less than 5%.

Survival rate 0% until this girl.

Which is it?


Came to ask this.
 
2014-06-12 07:10:51 AM  

Nidiot: The more you eat the more you fart: Nidiot: encyclopediaplushuman: TFA says she has brain damage as a result of the treatment.

So basically the family fighting for their selfish desire to have their kid live ended up damaging their brain with the cure. Some cure. Depending on the level of damage, it would've been much more ethical to let her die from the cancer. I don't like saying it, but it's something we need to consider.

/feels like a scumbag
//trying to be an ethical scumbag

I agree, although they did rather gloss over the brain damage part somewhat, so I'd be rather interested in knowing exactly how brain damaged she is. Though I suspect it is less likely to be that she might be a slow learner, and more along the lines of cannot perform basic functions anymore. If she cannot go on to live an independent life in the future, then I'd certainly say her parents were indeed horrible selfish people.

Ask the lite girl is she'd rather be dead or not.

I know this is fark..but damn there are some sick bastards in here

Good point, but what if she just stares blankly and drools...?


I doubt they would be touting this as a success if that was the case.

The brain can be quite resilient, especially at her age. There are people living somewhat normal lives after having half their brain removed.

Check over at the politics tab; some of show a modicum of sentience.
 
2014-06-12 07:46:12 AM  
It seems there is a chance to survive it even with no treatment so maybe she is just one of those... except now with brain damage from the treatment.
 
2014-06-12 07:50:52 AM  
How quickly can we carve her up and preserve her?  She's got the cure, we just need to discover how she did it.  Longer we wait, the more time her body has to cover up the evidence of its shameful betrayal upon itself.  It did, after all, murder a biological development with the same DNA.  She's not human anymore.
 
2014-06-12 08:07:50 AM  
I hate articles like this.  My mother and uncle died of Brain cancer, each at age 50.  My poor grandmother, at the time, was convinced by Reader's Digest articles that there were "MIRACLE CURES" out there, and was flat out frantic that the doctors just weren't trying.

During the misery of brain surgeries and chemo, my mother had 3 more years of "life" in which she was keenly aware and ashamed that her mental capacity was diminished and that she no longer even felt like the same person.  She just knew that she was stupid, bloated, bald, uncoordinated and in pain.

When my time comes, I'll be focusing on my remaining quality of life, personal dignity and pain management with an ultimate exit plan.
 
2014-06-12 08:20:42 AM  
I knew a woman who had a brain cancer when she was young, like 12. Her family found out when she collapsed and was rushed to hospital. A couple of years later, having had emergency brain surgery with follow up radiation/chemo, she was bald, in a wheelchair, and with one heck of a scar in the back of her skull (and missing bits of skull). Ten years after that, I met her in university, where she was walking again and getting on with her life. Ten years on, after I first met her, she's strong, well-educated, and still missing some hair. And she's more functional, self-disciplined, and determined that most other people our age that I know. So good for her, and good for this little girl for surviving. I hope she thrives like my friend has thrived when given the chance.
 
2014-06-12 08:35:56 AM  

DrunkenBob: How quickly can we carve her up and preserve her?  She's got the cure, we just need to discover how she did it.  Longer we wait, the more time her body has to cover up the evidence of its shameful betrayal upon itself.  It did, after all, murder a biological development with the same DNA.  She's not human anymore.


She didn't cure herself, the doctors radiated and chemo'ed her almost to death, and they just managed to kill the tumour before they managed to kill her. That's how it's mostly done.
 
2014-06-12 08:38:20 AM  
Sadly, this will end any chance she had at a political career, right?
 
2014-06-12 08:44:41 AM  

Ker_Thwap: I hate articles like this.  My mother and uncle died of Brain cancer, each at age 50.  My poor grandmother, at the time, was convinced by Reader's Digest articles that there were "MIRACLE CURES" out there, and was flat out frantic that the doctors just weren't trying.

During the misery of brain surgeries and chemo, my mother had 3 more years of "life" in which she was keenly aware and ashamed that her mental capacity was diminished and that she no longer even felt like the same person.  She just knew that she was stupid, bloated, bald, uncoordinated and in pain.

When my time comes, I'll be focusing on my remaining quality of life, personal dignity and pain management with an ultimate exit plan.


That's me. I've seen so many relatives pointlessly spend their last few months of life getting poked and prodded and chopped into pieces in some vain attempt to beat the cancer. It never works.

When my turn comes, I will have three questions for the doctor: how long do I have, what will the end be like, and what meds can I have for the pain? I am not going to fight it.

I don't even plan on telling anyone.
 
2014-06-12 08:48:40 AM  

Nidiot: The more you eat the more you fart: Nidiot: encyclopediaplushuman: TFA says she has brain damage as a result of the treatment.

So basically the family fighting for their selfish desire to have their kid live ended up damaging their brain with the cure. Some cure. Depending on the level of damage, it would've been much more ethical to let her die from the cancer. I don't like saying it, but it's something we need to consider.

/feels like a scumbag
//trying to be an ethical scumbag

I agree, although they did rather gloss over the brain damage part somewhat, so I'd be rather interested in knowing exactly how brain damaged she is. Though I suspect it is less likely to be that she might be a slow learner, and more along the lines of cannot perform basic functions anymore. If she cannot go on to live an independent life in the future, then I'd certainly say her parents were indeed horrible selfish people.

Ask the lite girl is she'd rather be dead or not.

I know this is fark..but damn there are some sick bastards in here

Good point, but what if she just stares blankly and drools...?



Always room for one more in the politics tab.
 
2014-06-12 08:54:50 AM  

doczoidberg: Ker_Thwap: I hate articles like this.  My mother and uncle died of Brain cancer, each at age 50.  My poor grandmother, at the time, was convinced by Reader's Digest articles that there were "MIRACLE CURES" out there, and was flat out frantic that the doctors just weren't trying.

During the misery of brain surgeries and chemo, my mother had 3 more years of "life" in which she was keenly aware and ashamed that her mental capacity was diminished and that she no longer even felt like the same person.  She just knew that she was stupid, bloated, bald, uncoordinated and in pain.

When my time comes, I'll be focusing on my remaining quality of life, personal dignity and pain management with an ultimate exit plan.

That's me. I've seen so many relatives pointlessly spend their last few months of life getting poked and prodded and chopped into pieces in some vain attempt to beat the cancer. It never works.

When my turn comes, I will have three questions for the doctor: how long do I have, what will the end be like, and what meds can I have for the pain? I am not going to fight it.

I don't even plan on telling anyone.


Ditto.
 
2014-06-12 09:08:57 AM  
I had a friend with brain cancer when I was 5.
/sad story bro
 
2014-06-12 09:24:46 AM  

Nidiot: encyclopediaplushuman: TFA says she has brain damage as a result of the treatment.

So basically the family fighting for their selfish desire to have their kid live ended up damaging their brain with the cure. Some cure. Depending on the level of damage, it would've been much more ethical to let her die from the cancer. I don't like saying it, but it's something we need to consider.

/feels like a scumbag
//trying to be an ethical scumbag

I agree, although they did rather gloss over the brain damage part somewhat, so I'd be rather interested in knowing exactly how brain damaged she is. Though I suspect it is less likely to be that she might be a slow learner, and more along the lines of cannot perform basic functions anymore. If she cannot go on to live an independent life in the future, then I'd certainly say her parents were indeed horrible selfish people.


Parents will often do irrational-seeming things to protect the life of their children.  If they didn't we
probably wouldn't have lasted as long as we have as a species.

But, there is another thing to consider:  at the age of 8, the brain is still plastic and could conceivably
be able to rewire itself or route around the damage.  Yes, she might not ever be 100%, but with time
she could work herself up to be able to live a normal life with only slight impairment.

Regardless:  why can't you be happy for her for now?
 
2014-06-12 09:32:27 AM  

encyclopediaplushuman: TFA says she has brain damage as a result of the treatment.

So basically the family fighting for their selfish desire to have their kid live ended up damaging their brain with the cure. Some cure. Depending on the level of damage, it would've been much more ethical to let her die from the cancer. I don't like saying it, but it's something we need to consider.

/feels like a scumbag
//trying to be an ethical scumbag


What's ethical about preferring that someone, especially a small child, should suffer an agonizing death rather than suffer a little brain damage?

/mother died of brain cancer
//she probably would have taken the brain damage over dying.
 
2014-06-12 09:36:44 AM  
www.thiefsden.net

Approves.
 
2014-06-12 09:40:58 AM  
Her healing ability kicked in. Now to get her some adamantium claws...
 
2014-06-12 09:46:05 AM  
Sounds like a bit of a Pyrrhic victory. But, as others have pointed out, the brain is pretty flexible at that age; she could recover more than any of us expect.
 
2014-06-12 10:11:21 AM  

doczoidberg: That's me. I've seen so many relatives pointlessly spend their last few months of life getting poked and prodded and chopped into pieces in some vain attempt to beat the cancer. It never works.

When my turn comes, I will have three questions for the doctor: how long do I have, what will the end be like, and what meds can I have for the pain? I am not going to fight it.

I don't even plan on telling anyone.


Depends on the nature and prognosis, but I get your point.  I've had two good friends beat cancer, and are living almost as they did before.  Still sleep a little more, and need to really watch their diet and get iron treatments, but back to work, back to life, and enjoying things.  Family, love, sex, vacations, the whole shebang.

The hardest part is living with the fear of return.  Every pain, every cold, every weird feeling makes you ask "is this IT coming back?".  It's a hard voice to shut out.
 
2014-06-12 10:12:43 AM  
My daughter had lift-threatening seizures from the time she was 3 till 9.  Then she started puberty, and hasn't had one since.  She is now 14.
 
2014-06-12 10:13:22 AM  
*life, obviously
 
2014-06-12 10:23:54 AM  

namatad: "A miracle science has happened, it really has. "

science is really confusing to people


Any sufficiently advanced technology is indistinguishable from magic".-Arthur C. Clarke.
 
2014-06-12 10:25:54 AM  

Nidiot: encyclopediaplushuman: TFA says she has brain damage as a result of the treatment.

So basically the family fighting for their selfish desire to have their kid live ended up damaging their brain with the cure. Some cure. Depending on the level of damage, it would've been much more ethical to let her die from the cancer. I don't like saying it, but it's something we need to consider.

/feels like a scumbag
//trying to be an ethical scumbag

I agree, although they did rather gloss over the brain damage part somewhat, so I'd be rather interested in knowing exactly how brain damaged she is. Though I suspect it is less likely to be that she might be a slow learner, and more along the lines of cannot perform basic functions anymore. If she cannot go on to live an independent life in the future, then I'd certainly say her parents were indeed horrible selfish people.


Yeah, I'm sure it was all sunshine and roses for the family going through this. Part of it too, for anyone who has had a family member go through cancer, is that maybe, just maybe, something learned in the treatment for your family member who will almost likely die might help someone out in the future to survive for a bit longer or beat cancer. The cancer in this case would still be a terminal cancer - and likely will still have a low survival rate for some time - if it weren't for patients and their families willing to go through treatment like this. So are these parents selfish because they put their daughter through a treatment that may not have saved her life but only helped out in the research? What about the parents of all the other children who have suffered through this disease only to have to bury their children? Are they selfish too?
 
2014-06-12 10:46:21 AM  
Obama? Obama? Obama? No? Huh. I thought Obama was the giver of all miracles ..
 
2014-06-12 11:04:20 AM  

doglover: Survival rate less than 5%.

Survival rate 0% until this girl.

Which is it?


Technically, 0% is less than 5%
 
2014-06-12 11:05:47 AM  

doczoidberg: That's me. I've seen so many relatives pointlessly spend their last few months of life getting poked and prodded and chopped into pieces in some vain attempt to beat the cancer. It never works.

When my turn comes, I will have three questions for the doctor: how long do I have, what will the end be like, and what meds can I have for the pain? I am not going to fight it.

I don't even plan on telling anyone.


Cancer doesn't run in my family but on the off chance I should get it, I would ask "if I go through the chemo and radiation, will it buy me years?"  If it won't, drug me up and let me go.  I've seen enough friends and colleagues go through that shiat to say no farking way.
 
2014-06-12 11:06:30 AM  

doglover: Survival rate less than 5%.
Survival rate 0% until this girl.
Which is it?

Only about four cases of metastatic pineoblastoma are
│  diagnosed every year and there is a survival rate of
│  less than five per cent worldwide. [...]
│  Claudia is believed to be the very first little girl in the
world ever to survive metastatic pineoblastoma.

I'm guessing that none of those in the 5% were "little girls". Or that the author of TFA doesn't know basic math[s] (which is typical for most journalists).
 
2014-06-12 11:11:22 AM  

Khellendros: doczoidberg: That's me. I've seen so many relatives pointlessly spend their last few months of life getting poked and prodded and chopped into pieces in some vain attempt to beat the cancer. It never works.

When my turn comes, I will have three questions for the doctor: how long do I have, what will the end be like, and what meds can I have for the pain? I am not going to fight it.

I don't even plan on telling anyone.

Depends on the nature and prognosis, but I get your point.  I've had two good friends beat cancer, and are living almost as they did before.  Still sleep a little more, and need to really watch their diet and get iron treatments, but back to work, back to life, and enjoying things.  Family, love, sex, vacations, the whole shebang.

The hardest part is living with the fear of return.  Every pain, every cold, every weird feeling makes you ask "is this IT coming back?".  It's a hard voice to shut out.


"Sex"? They do sex anymore! They'll spread the disease to their partners!
 
2014-06-12 11:13:52 AM  

encyclopediaplushuman: So basically the family fighting for their selfish desire to have their kid live ended up damaging their brain with the cure. Some cure. Depending on the level of damage, it would've been much more ethical to let her die from the cancer. I don't like saying it, but it's something we need to consider.


You don't know what the outcome will be when you start treatment. Whether the treatment is successful or not, or results in minor, moderate or severe life long side effects is something you only find out at the end.
 
2014-06-12 11:16:04 AM  

Marisyana: doczoidberg: That's me. I've seen so many relatives pointlessly spend their last few months of life getting poked and prodded and chopped into pieces in some vain attempt to beat the cancer. It never works.

When my turn comes, I will have three questions for the doctor: how long do I have, what will the end be like, and what meds can I have for the pain? I am not going to fight it.

I don't even plan on telling anyone.

Cancer doesn't run in my family but on the off chance I should get it, I would ask "if I go through the chemo and radiation, will it buy me years?"  If it won't, drug me up and let me go.  I've seen enough friends and colleagues go through that shiat to say no farking way.


My plan is to buy a bus ticket to the northernmost station on the continent.  Then walk north.  Let what will happen, happen.
 
2014-06-12 11:16:20 AM  
│  A miracle has happened, it really has.

If God, or her guardian angel, or her lucky rabbit's foot, or whatever had really been doing its job, the little girl would not have gotten terminal brain cancer in the first place, right?
 
2014-06-12 11:53:30 AM  

lindseyp: Clearly she was misdiagnosed.

Obviously. She was diagnosed with terminal brain cancer; if she didn't die, then obviously she had some other kind of brain cancer.
 
2014-06-12 12:11:46 PM  

Khellendros: doczoidberg: That's me. I've seen so many relatives pointlessly spend their last few months of life getting poked and prodded and chopped into pieces in some vain attempt to beat the cancer. It never works.

When my turn comes, I will have three questions for the doctor: how long do I have, what will the end be like, and what meds can I have for the pain? I am not going to fight it.

I don't even plan on telling anyone.

Depends on the nature and prognosis, but I get your point.  I've had two good friends beat cancer, and are living almost as they did before.  Still sleep a little more, and need to really watch their diet and get iron treatments, but back to work, back to life, and enjoying things.  Family, love, sex, vacations, the whole shebang.

The hardest part is living with the fear of return.  Every pain, every cold, every weird feeling makes you ask "is this IT coming back?".  It's a hard voice to shut out.



Theres and xkcd for everything imgs.xkcd.com
 
2014-06-12 12:15:05 PM  

ArcadianRefugee: lindseyp: Clearly she was misdiagnosed.
Obviously. She was diagnosed with terminal brain cancer; if she didn't die, then obviously she had some other kind of brain cancer.


MALPRACTICE!!! LAWSUIT!!!
 
2014-06-12 12:21:00 PM  
And the reason why I could never have been a doctor is that I would have just gotten TOTALLY pissed off when I diagnosed, worked, prescribed, treated, and cured a patient, and they and their family turn around and say "We prayed and God delivered a miracle."

FARK you! Fark you fark you fark you!!! You don't think the doctors who busted ass to save you/your loved one had anything to do with it? That science didn't save them? You insist that God "worked through them" to save you or your loved one?!?

ARRRGHHH!!
 
2014-06-12 12:22:57 PM  

khitsicker: Theres and xkcd for everything


And I really wish there weren't, because XKCD is farking annoying.
 
2014-06-12 12:55:19 PM  
They should have considered

37.media.tumblr.com

A brain transplant
 
2014-06-12 01:23:29 PM  

Nidiot: encyclopediaplushuman: TFA says she has brain damage as a result of the treatment.

So basically the family fighting for their selfish desire to have their kid live ended up damaging their brain with the cure. Some cure. Depending on the level of damage, it would've been much more ethical to let her die from the cancer. I don't like saying it, but it's something we need to consider.

/feels like a scumbag
//trying to be an ethical scumbag

I agree, although they did rather gloss over the brain damage part somewhat, so I'd be rather interested in knowing exactly how brain damaged she is. Though I suspect it is less likely to be that she might be a slow learner, and more along the lines of cannot perform basic functions anymore. If she cannot go on to live an independent life in the future, then I'd certainly say her parents were indeed horrible selfish people.


You know how I know you don't have kids?
 
2014-06-12 01:35:26 PM  

encyclopediaplushuman: TFA says she has brain damage as a result of the treatment.

So basically the family fighting for their selfish desire to have their kid live ended up damaging their brain with the cure. Some cure. Depending on the level of damage, it would've been much more ethical to let her die from the cancer. I don't like saying it, but it's something we need to consider.

/feels like a scumbag
//trying to be an ethical scumbag


The article says she, "has some residual brain damage," which I would read as, "she's not rocking back and forth, drooling and pooping her pants."

I work in an office where we employee people with mental disabilities (along the lines of Down syndrome, although that's not the cause for all of them). They are all adults. They all have distinct personalities. They laugh about stuff. They get annoyed with their co-workers. They participate in company-wide activities. They seem to take just as much enjoyment and sorrow from life as the lawyers, accountants, secretaries and IT people around them.

I'm sure none of them would prefer to be dead. I'm sure this girl is at least as well off as any of them, if not better.

/We don't use disposable cups, plates, forks, etc. They gather the mugs and other items from around the office and run them through the dishwasher on a regular basis, as well as helping to clean up after meetings and conferences.
 
2014-06-12 01:52:22 PM  

lostcat: encyclopediaplushuman: TFA says she has brain damage as a result of the treatment.

So basically the family fighting for their selfish desire to have their kid live ended up damaging their brain with the cure. Some cure. Depending on the level of damage, it would've been much more ethical to let her die from the cancer. I don't like saying it, but it's something we need to consider.

/feels like a scumbag
//trying to be an ethical scumbag

The article says she, "has some residual brain damage," which I would read as, "she's not rocking back and forth, drooling and pooping her pants."

I work in an office where we employee people with mental disabilities (along the lines of Down syndrome, although that's not the cause for all of them). They are all adults. They all have distinct personalities. They laugh about stuff. They get annoyed with their co-workers. They participate in company-wide activities. They seem to take just as much enjoyment and sorrow from life as the lawyers, accountants, secretaries and IT people around them.

I'm sure none of them would prefer to be dead. I'm sure this girl is at least as well off as any of them, if not better.

/We don't use disposable cups, plates, forks, etc. They gather the mugs and other items from around the office and run them through the dishwasher on a regular basis, as well as helping to clean up after meetings and conferences.


One amazing thing about the brain, is it can rewire itself... if some pathways are blocked, it will find an alternate route.    Residual cell damage is inevitable with radiotherapy on ANY part of the body, so yeah, the brain will be extra tricky, but i'm sure they took great pains to minimize it as much as possible.

I mean, the tumor itself was consuming some of the brain, even without the radiotherapy.   And with so many treatments, they are monitoring the ill effects with each successive session.
 
2014-06-12 01:54:31 PM  

StrikitRich: Sadly, this will end any chance she had at a political career, right?


No, she's still too intelligent and coherent for that.
 
2014-06-12 02:00:23 PM  

wildcardjack: Well, she's 8. She might be rather delayed, but kids have loads of neuroplasticity.

All in all, bravo, you killed a cancer using radiological brute force. Inelegant compared to other stuff you see in the news. Like reprogramming a virus to attack a target cancer.

I have rather brutal things to say about spending hundreds of thousands to cure kids. These entities that have had little put into them, not even any education expenditures. Similar with the 85 year old hip replacement, the person has reached an end. But we see it perfectly fine to send 18 -21 year olds into combat when we just finished raising them. Same thing about reserving a vaccine for seniors and infants. One bad flu and all we have are old people and children.


If you knew anything about "one bad flu," you'd know elderly and kids would be first to bite it.
 
2014-06-12 02:04:38 PM  
Have we covered the "it's not a miracle" bit yet?
 
2014-06-12 02:28:28 PM  
An awful lot of bromedicine in here.
 
2014-06-12 02:38:13 PM  

Loreweaver: StrikitRich: Sadly, this will end any chance she had at a political career, right?

No, she's still too intelligent and coherent for that.


Well, that was my point, afterall
 
2014-06-12 02:55:50 PM  

Clemkadidlefark: Obama? Obama? Obama? No? Huh. I thought Obama was the giver of all miracles ..


wow.

I'm ashamed for you just reading that. That's a downright embarrassing post, even for fark.
 
2014-06-12 02:58:28 PM  

Nidiot: encyclopediaplushuman: TFA says she has brain damage as a result of the treatment.

So basically the family fighting for their selfish desire to have their kid live ended up damaging their brain with the cure. Some cure. Depending on the level of damage, it would've been much more ethical to let her die from the cancer. I don't like saying it, but it's something we need to consider.

/feels like a scumbag
//trying to be an ethical scumbag

I agree, although they did rather gloss over the brain damage part somewhat, so I'd be rather interested in knowing exactly how brain damaged she is. Though I suspect it is less likely to be that she might be a slow learner, and more along the lines of cannot perform basic functions anymore. If she cannot go on to live an independent life in the future, then I'd certainly say her parents were indeed horrible selfish people.


My daughter had 33 rounds of cranial radiation at about the same age as she did (with 11 fewer rounds of radiation).  At age 10, my daughter is independent, spot on socially, and an average reader, but has not yet been able to memorize multiplication tables, which we attribute to the treatments.  Most of the children that we have met who had to have a second set of radiation treatments will never be independent, which was a deciding factor in choosing an alternative treatment for our daughter when the tumor returned five years ago.  We likely made the right decision.

We know many parents who would fit the 'selfish' definition in trying to get their child to live over any cost.  I don't think we fit that definition, but then again I'm biased.
 
2014-06-12 03:01:35 PM  

lostcat: Nidiot: encyclopediaplushuman: TFA says she has brain damage as a result of the treatment.

So basically the family fighting for their selfish desire to have their kid live ended up damaging their brain with the cure. Some cure. Depending on the level of damage, it would've been much more ethical to let her die from the cancer. I don't like saying it, but it's something we need to consider.

/feels like a scumbag
//trying to be an ethical scumbag

I agree, although they did rather gloss over the brain damage part somewhat, so I'd be rather interested in knowing exactly how brain damaged she is. Though I suspect it is less likely to be that she might be a slow learner, and more along the lines of cannot perform basic functions anymore. If she cannot go on to live an independent life in the future, then I'd certainly say her parents were indeed horrible selfish people.

You know how I know you don't have kids?


Or know anybody who has fought cancer.
 
2014-06-12 03:03:57 PM  

piledhigheranddeeper: My daughter had 33 rounds of cranial radiation at about the same age as she did


Wow. You lived through every parent's worst nightmare. I hope you are all ok, especially her.
 
2014-06-12 04:02:11 PM  
What's wrong with kids nowadays? Why not listen to the doctor?
 
2014-06-12 04:40:19 PM  

Nidiot: The more you eat the more you fart: Nidiot: encyclopediaplushuman: TFA says she has brain damage as a result of the treatment.

So basically the family fighting for their selfish desire to have their kid live ended up damaging their brain with the cure. Some cure. Depending on the level of damage, it would've been much more ethical to let her die from the cancer. I don't like saying it, but it's something we need to consider.

/feels like a scumbag
//trying to be an ethical scumbag

I agree, although they did rather gloss over the brain damage part somewhat, so I'd be rather interested in knowing exactly how brain damaged she is. Though I suspect it is less likely to be that she might be a slow learner, and more along the lines of cannot perform basic functions anymore. If she cannot go on to live an independent life in the future, then I'd certainly say her parents were indeed horrible selfish people.

Ask the lite girl is she'd rather be dead or not.

I know this is fark..but damn there are some sick bastards in here

Good point, but what if she just stares blankly and drools...?


Good point. Why bother trying to save a stroke victim. They might end up only able to stare and drool. Or...
Maybe in trying to save people with this rare condition, they may discover something that helps prevent, or treat the condition better so the next survivor doesn't suffer as much.

I realize humans suck at the cold calculus of cutting their losses, but the fact that people are willing to risk themselves for others, even when they might all die is the one thing I think we humans get right.

/not trying to be too snarky, I do understand your point, I just think it's the kind of risk that is justified, all jmho
 
2014-06-12 06:11:56 PM  

The My Little Pony Killer: lostcat: Nidiot: encyclopediaplushuman: TFA says she has brain damage as a result of the treatment.

So basically the family fighting for their selfish desire to have their kid live ended up damaging their brain with the cure. Some cure. Depending on the level of damage, it would've been much more ethical to let her die from the cancer. I don't like saying it, but it's something we need to consider.

/feels like a scumbag
//trying to be an ethical scumbag

I agree, although they did rather gloss over the brain damage part somewhat, so I'd be rather interested in knowing exactly how brain damaged she is. Though I suspect it is less likely to be that she might be a slow learner, and more along the lines of cannot perform basic functions anymore. If she cannot go on to live an independent life in the future, then I'd certainly say her parents were indeed horrible selfish people.

You know how I know you don't have kids?

Or know anybody who has fought cancer.


There's a difference between choosing to fight cancer than giving a barely-sentient 8-year old tons nearly fifty ionizing radiation hits to the brain to cure her cancer. If she's a drooling vegetable for the rest of her life, at least the parents will be happy she didn't die and be selfish bastards about it.
 
2014-06-12 06:38:20 PM  
"Where is it I've read that someone condemned to death says or thinks, an hour before his death, that if he had to live on some high rock, on such a narrow ledge that he'd only room to stand, and the ocean, everlasting darkness, everlasting solitude, everlasting tempest around him, if he had to remain standing on a square yard of space all his life, a thousand years, eternity, it were better to live so than to die at once. Only to live, to live and live! Life, whatever it may be!"

- Fyodor Dostoevsky
 
2014-06-12 08:04:30 PM  

encyclopediaplushuman: I don't like saying it, but it's something we need to consider.



Human knowledge will grow as they study her.
The greater good.
 
2014-06-12 09:46:30 PM  
oyster.ignimgs.com
My Client, Claudia Burkill.....
 
2014-06-13 04:59:36 AM  

encyclopediaplushuman: There's a difference between choosing to fight cancer than giving a barely-sentient 8-year old tons nearly fifty ionizing radiation hits to the brain to cure her cancer. If she's a drooling vegetable for the rest of her life, at least the parents will be happy she didn't die and be selfish bastards about it.


Do you think they should have tried nothing, and accepted inevitable death as the only possible outcome?
 
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