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(Daily Mail)   Bad: Your best friend has a rare genetic condition with little money for research. Good: You write a book and raise over $750,000 for research. FARK: You're 6-years-old   (dailymail.co.uk) divider line 23
    More: Cool, genetic condition, First Graders, low blood sugar, kcal, bake sales, New York's Times Square, illustrated books  
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4414 clicks; posted to Main » on 01 Mar 2014 at 5:25 PM (1 year ago)   |  Favorite    |   share:  Share on Twitter share via Email Share on Facebook   more»



23 Comments   (+0 »)
   
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2014-03-01 05:35:34 PM  
SuperUltraFark: It's an imaginary friend.

/i can dream, can't i?
 
2014-03-01 05:37:56 PM  
Gettin' all dusty up in here.
 
2014-03-01 05:48:07 PM  
Sappy tag on vacay?
 
2014-03-01 05:49:17 PM  
Props to the kid and big props to the folks and company who made the effort a true phenomenon.

Now, how to raise the 10s and 100s of millions it will take to adequately research the disease and test a cure?
 
2014-03-01 05:49:55 PM  
Hillary can get the dick though...
 
2014-03-01 05:54:27 PM  
Re: the cost of research, I'm not joking.  The new Nutrition Science Institute (NuSci), just received a $25M grant to do a *16-person* study in a locked metabolic ward for 1 month, and the study will take a year to plan, and then another year to run and analyze.
 
2014-03-01 05:58:22 PM  

acohn: Re: the cost of research, I'm not joking.  The new Nutrition Science Institute (NuSci), just received a $25M grant to do a *16-person* study in a locked metabolic ward for 1 month, and the study will take a year to plan, and then another year to run and analyze.


I would love to see the itemized breakdown on how it could possibly cost twenty five million dollars to do that. Is the experiment taking place in upper orbit?
 
2014-03-01 05:58:52 PM  
www.super-science-fair-projects.com

I've been called to judge science fairs and sometimes it's like Will Smith said after shooting little Tiffany. "Then I saw little Tiffany. I'm thinking, y'know, eight-year-old white girl, middle of the ghetto, bunch of monsters, this time of night with quantum physics books? She about to start some shiat, Zed. She's about eight years old, those books are WAY too advanced for her. If you ask me, I'd say she's up to something. And to be honest, I'd appreciate it if you eased up off my back about it. "
 
2014-03-01 06:14:21 PM  

HotWingAgenda: acohn: Re: the cost of research, I'm not joking.  The new Nutrition Science Institute (NuSci), just received a $25M grant to do a *16-person* study in a locked metabolic ward for 1 month, and the study will take a year to plan, and then another year to run and analyze.

I would love to see the itemized breakdown on how it could possibly cost twenty five million dollars to do that. Is the experiment taking place in upper orbit?


I can't find any mention of such a study or grant. In fact, the Nutrition Science Initiative website describes such studies as ineffective due to their short length.
 
2014-03-01 06:17:11 PM  
When they're all grown up and they go prowling for poon at the bar, this kid will have the best wingman ever.  "Yes, you have to fark the ugly fat one, because I saved your farking life when we were kids."
 
2014-03-01 06:45:55 PM  

OgreMagi: When they're all grown up and they go prowling for poon at the bar, this kid will have the best wingman ever.  "Yes, you have to fark the ugly fat one, because I saved your farking life when we were kids."


"That's okay....FARK says she's "smokin' hot"....
 
2014-03-01 07:00:43 PM  
As much as I applaud the sentiment I can't shake the unease at how this kid's writing reached an exposure that exceeded not only everything I've ever written but probably my net worth in one fell swoop as well.
 
2014-03-01 07:34:05 PM  

dragonchild: As much as I applaud the sentiment I can't shake the unease at how this kid's writing reached an exposure that exceeded not only everything I've ever written but probably my net worth in one fell swoop as well.



If it's any consolation, I've read your writing and thought it was *at Least* the level of an 8 year old, maybe even an niner!!! So, you've got that going for ya.

I think the best part is when the dad mentioned he got a look that said 'Don't patronize me.'. A kid with a good idea and a big heart is nice, but it's great to see some attitude!
 
2014-03-01 07:54:09 PM  

serialsuicidebomber: If it's any consolation, I've read your writing and thought it was *at Least* the level of an 8 year old, maybe even an niner!!


Damn, no wonder I can't get published. . . that's already too cerebral for today's pop culture.
 
2014-03-01 09:42:24 PM  
This is who Seth Rogan should be appealing to.

/They might be young and stupid, but I trust kids with stuff like this way more than elected officials.
 
2014-03-01 10:22:19 PM  
Well I just feel inadequate now...
 
2014-03-01 11:36:22 PM  
They raised the $750k BECAUSE the kid is six.

Adorable cuteness or titties are also the two main predictors of whether or not a kick starter gets funded.
 
2014-03-01 11:58:25 PM  
Just take some money from the hilarously overfunded breast cancer charities, which raise billions a year.
 
2014-03-02 12:48:55 AM  

octopied: Just take some money from the hilarously overfunded breast cancer charities, which raise billions a year.



*Any*thing to do with breasts can Never be over-inflated.

Played with........ Yes.
Handled........ Yes.
Built-up........ Yes.
Ballooned ......... Yes.
Arranged......... Yes.
Massaged ........ droooooolllll.......

As for this specific liver disease, I, for one, do not fault anyone for the assumed high price of $1 mill (or, as indicated earlier in the thread for similar research projects - $25 mill) for research. YES, a large percentage of that goes towards paying a few university researchers and their grad students for a year or two. However, keep in mind any of the equipment bought will also be used by regular medical studies students for several years. (BTW, the days of researchers buying just a few test tubes and bunsen burners for their experiments are long gone. Think of medical research equipment costs as a percentage of GDP and you'll be a lot closer).

More importantly, americans think nothing of having 5-10 aircraft carrier FLEETS (single carriers protected by destroyers, AEGIS cruisers and subs, no less) floating around the world at any given time. You might think that it is a Good idea to have numerous smart people in NASA searching the universe for clues to our existence, but perhaps it is far more important to realize that most of current North American society is based on exceptional health care that has evolved over the last century-and-a-half.

I, solely, consider myself to be fairly intelligent, yet I know for a fact that I could complete the courses/years required to be a medical researcher or doctor. *SO*, I do not begrudge the fact that they make far more money than I ever will.

Even if it is 'for just one 7 year old kid'.

Yes, I am drunk.
 
2014-03-02 07:20:10 AM  
$300k after taxes.

Still... Dear best friend.

You're gonna die, I'm going to Disneyland.

Peace out brostick.
 
2014-03-02 11:15:04 AM  
Anyone else notice the dad kinda looks like Anthony Weiner?
/or Carlos Danger?
 
2014-03-02 07:04:46 PM  

HotWingAgenda: acohn: Re: the cost of research, I'm not joking.  The new Nutrition Science Institute (NuSci), just received a $25M grant to do a *16-person* study in a locked metabolic ward for 1 month, and the study will take a year to plan, and then another year to run and analyze.

I would love to see the itemized breakdown on how it could possibly cost twenty five million dollars to do that. Is the experiment taking place in upper orbit?


Write to either Gary Taubes or Dr. Peter Attia, the co-founder and Director (and co-founder) of NuSi, respectively:
 The Nutrition Science Initiative

6020 Cornerstone Ct. W.  Suite 240
San Diego, CA 92121
office: (858) 914-5400  |  fax: (858) 914-5373  |  email:i­nf­o[nospam-﹫-backwards]is­un*or­g
 
2014-03-02 07:07:51 PM  
Alx_xlA:
I can't find any mention of such a study or grant. In fact, the Nutrition Science Initiative website describes such studies as ineffective due to their short length.

Sorry, the grant was $35M and "will support three experimental collaborations at six leading academic research institutions over the next four years."
 
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