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(ABC)   Tufts Medical Center says a teenager has mitochondrial disease. Boston Children's Hospital disagrees--by declaring the symptoms psychosomatic, taking her from her parents, and denying her any medical treatment except to say it's all in her head   (abcnews.go.com) divider line 30
    More: Followup, mitochondrial disease, Tufts Medical Center, Children's Hospital Boston, foster care  
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8919 clicks; posted to Main » on 25 Feb 2014 at 6:47 PM (42 weeks ago)   |  Favorite    |   share:  Share on Twitter share via Email Share on Facebook   more»



Voting Results (Funniest)
View Voting Results: Smartest and Funniest

2014-02-25 06:16:45 PM  
13 votes:
Does mitochondrial disease prevent her from using the Force?
2014-02-25 06:53:06 PM  
5 votes:
Sounds like an episode of House.  I'm sure it's been said, but why does no one ever suspect House?  People have these crazy diseases and only House can fix them.  It's like Murder She Wrote.  Every time she comes to town somebody dies.
2014-02-25 06:36:28 PM  
4 votes:
Mitochondrial Disease...isn't that a Dire Straits tune?
2014-02-25 07:16:23 PM  
2 votes:

czetie: Does mitochondrial disease prevent her from using the Force?


No but she has smokers cough from smoking, brewers droop from drinking beer.
2014-02-25 07:15:33 PM  
2 votes:

hardinparamedic: MyRandomName: So Tufts is a fake hospital to you. Got it.

Boston Children's Hospital is world renown for it's immunology, cancer, genetics, and metabolic disorder research and treatment team.

Tufts is renown for it's Pediatric Trauma history.


Quiet, you! It is more important for us to figure out which side Fox & the Republicans are on, and which side Obama & the Democrats are on.
2014-02-25 07:10:34 PM  
2 votes:
I have a novel idea: she dies due to untreated mitochondrial disease then the judge and doctors at the MA hospital get instant death penalty.
2014-02-25 07:09:00 PM  
2 votes:

Boojum2k: MyRandomName: cman: We are only hearing one side of the story

Before everyone goes apeshiat lets remember that

2 sets of doctors, 2 different opinions. Instead of state sanctioned kidnapping, how about a tiebreaker first.

Two doctors enter, one doctor leaves.

Thunderdome!


Cut the kid in two. Parents get half, state gets the other half.
2014-02-25 07:05:34 PM  
2 votes:
Mr Boobieser? WTF

#1, post - er
2014-02-25 06:54:43 PM  
2 votes:

Rapmaster2000: Sounds like an episode of House.  I'm sure it's been said, but why does no one ever suspect House?  People have these crazy diseases and only House can fix them.  It's like Murder She Wrote.  Every time she comes to town somebody dies.


Who would continue to live in the town that Murder She Wrote lived in?  At least there was an explanation for why people continued to live in Sunnydale.
2014-02-25 06:53:49 PM  
2 votes:

MyRandomName: cman: We are only hearing one side of the story

Before everyone goes apeshiat lets remember that

2 sets of doctors, 2 different opinions. Instead of state sanctioned kidnapping, how about a tiebreaker first.


Two doctors enter, one doctor leaves.

Thunderdome!
433 [TotalFark]
2014-02-25 06:28:26 PM  
2 votes:
arlingtonwa.org
2014-02-25 06:19:43 PM  
2 votes:

TheBeastOfYuccaFlats: Oh, and then there's the upsetting prevalence of "there's something wrong with my child" claims that are answered with "well, you can start by not abusing them physically".


Well if they were normal I wouldn't have to beat them.
2014-02-26 09:44:24 AM  
1 votes:
RavenOnyx:

I have two daughters with autism.

 Our previously-neurotypical son had a tonic clonic seizure a year ago and was diagnosed - through Children's - with Juvenile Myoclonic Epilepsy.


Please stop having kids. You have farked up genetics.
2014-02-26 01:46:04 AM  
1 votes:
They won't let the family take care of her because she was brain dead, now mostly dead. Every week, the parents get to see an embalmed corpse in a viewing area of a specially set up backroom in a mortuary.

The parents themselves are under court-ordered psychiatric watch, but cannot be confined against their wills as long as they are non-violent.

The parents see their child getting worse because the body is slowly decaying.
2014-02-25 11:35:13 PM  
1 votes:

LowbrowDeluxe: Almost every time we've ever had a case anywhere similar to this we get a couple of days of OMG OUTRAGE HOW DARE THEY DOWN WITH THIS SORT OF THING and then it turns out the parents are giant humungous massive scumbags of one order or another.


As someone who has frequently been either a public servant or involved in the medical field, I can say this without reservation:

Always doubt the story the claimant/litigant is making in the media.

Although none of my own clients have been in the media, clients of my departments or companies have and there has literally not been a single case where the client has not twisted the story, omitted pertinent facts, or outright lied.

And it is endlessly frustrating that we are totally unable to correct the facts or defend ourselves because of privacy laws, we just have to put up with the resultant abuse from other clients.  The media will say "we contacted the company/department but they declined to comment" and treat that as "fact checking".  Of course we declined to comment, we're legally unable to do so in any meaningful manner!

I would 100% be in support of changing privacy laws so that if a person goes to the media with a complaint, the subject of the complaint is allowed, through some form of tribunal process, to release information to correct or clarify the story.
2014-02-25 11:32:30 PM  
1 votes:

justtray: Over in two.

I'm always siding with the Doctors barring facts that prove otherwise.

On one hand we have people professionally educated and trained to diagnose disease. On the other we have a woman that faints in a court room, who is simply convinced her child has a very rare genetic disease, based on.... things.


Things like a diagnosis from a different medical center?
2014-02-25 09:48:06 PM  
1 votes:

MemeSlave: Ask Meg and Charles Wallace about mitochondrial disease.


Haven't read that in 30 years and I immediately knew the reference. Bravo!
2014-02-25 09:17:43 PM  
1 votes:
Ask Meg and Charles Wallace about mitochondrial disease.
2014-02-25 07:41:09 PM  
1 votes:

MyRandomName: By the way, those of you claiming Boston Children's Hospital wins over Tufts because "fark you they do"...

It's not like BCH has ever, EVER, been guilty of malpractice.

http://www.boston.com/news/health/articles/2009/12/19/jury_finds_2_d oc tors_at_childrens_hospital_caused_boys_death/

BCH is infallible apparently, but Tufts is wrong.

Instead of a third opinion you are advocating for the State to be the Medical Doctor of the child as they are the ones choosing which opinion is valid and which is not.

Instead of the state deciding which opinion is valid, let a third respected doctor to do so.  The state has no medical training to make the necessary decision on which set of doctors is right.


Show me a hospital of any moderate-to-large size that has never had a malpractice suit won against them and I'll show you some green cheese from the moon.
2014-02-25 07:35:37 PM  
1 votes:

MyRandomName: hardinparamedic: MyRandomName: Mitochondrial disease doesn't have different symptoms based on age.

Which one? Do you even know what you're talking about?

MyRandomName: Basically your argument is Tuft Hospital is full of shiat doctors. Got it.

My argument is I am apt to believe a center world renown for metabolic disorders versus a center which does not specialize in it. Nothing more, nothing less. Stop putting words in my mouth and attributing them to me, ass.

That is the basis of your argument. Again, 2 sets of doctors, 2 opinions. Get a third. You dont get to pick and choose which doctor is to be trusted more. Medicine doesn't work that way. Get a third opinion. It would stop the whole mess fairly quickly, don't you think?

A 3rd independent analysis by a respected doctor would end the whole mess. Why is that not even a consideration in your book? This issue could have ended a year ago.


You know, I think this may be the first time I've ever agreed with a post of yours.  I guess it just goes to show that it's better not to put people you disagree with on ignore, because they may surprise you someday.


MyRandomName:Quite amazing that the only ones who have brought in politics are the ones hoping the state, and I guess liberalism, wins.

Aaaaaaaaand we're back to normal again, I see.  Carry on.
2014-02-25 07:25:24 PM  
1 votes:

beaverfetus: it's a small point but I think what a lot of medical people are thinking is a "set of doctors" isn't really a thing. They have like 30 genetics folks at Boston Childrens, and literally hundreds of internal medicine attendings there. I'm sure first, second, third and fourth opinions have already been obtained. Munchhausen by proxy is a diagnosis of last resort for pediatricians.


Shh. Don't let it slip that there are entire departments in these Children's Hospitals that specialize in the treatment of these disorders, not just one doctor. He might have to go with a new straw to grasp at.
Boe
2014-02-25 07:18:08 PM  
1 votes:

TheBeastOfYuccaFlats: Rapmaster2000: Sounds like an episode of House.  I'm sure it's been said, but why does no one ever suspect House?  People have these crazy diseases and only House can fix them.  It's like Murder She Wrote.  Every time she comes to town somebody dies.

Who would continue to live in the town that Murder She Wrote lived in?  At least there was an explanation for why people continued to live in Sunnydale.


Don't EVEN get me started on Midsomer.  What a deathtrap.
2014-02-25 07:15:14 PM  
1 votes:
Lou and Linda Pelletier, of West Hartford, Conn., have been fighting for their daughter who they say has mitochondrial disease, a rare genetic disorder with physical symptoms that can affect every part of the body.

Does that sound like arsenic poisoning to anyone else here?
2014-02-25 07:12:39 PM  
1 votes:

justtray: Mr Boobieser? WTF

#1, post - er


I'm okay with either title ;)
2014-02-25 07:03:41 PM  
1 votes:

MyRandomName: And the other hospital was just doing procedures on the girl for shiats and giggles? One hospital good, other bad? Based on?


If you have a child who is ill, you don't take them to an adult or non-pediatric specialty hospital for anything like a mitochondrial disorder - something that SHOULD be diagnosed only after an expert in genetics, metabolic diseases and/or endocrinology sees the child.

And adult hospitals will, as a rule, overtreat or undertreat a child. Defensive medicine.
2014-02-25 06:59:34 PM  
1 votes:

Ow! That was my feelings!: Ah, here ya go, ftfa:

"The court really didn't accomplish much," said Mathew Staves of Liberty Counsel , a conservative organization that advocates for "religious freedom, the sanctity of life, and the family," who was at hearing.

//that should clear it up.


Strangely, just by having someone like him involved,it makes me think the hospital is doing the correct thing without any additional information.
2014-02-25 06:58:49 PM  
1 votes:
All power to the state! Individuals have no rights! Woo hoo! Liberalism!

Liberal Vermonters just got a 2 year old killed because they gave her back to a mom that previously broke her leg. Here the state won't even let a second opinion be heard?

Maybe we should let the government take care of everything, they are so good at it.
2014-02-25 06:55:58 PM  
1 votes:

MyRandomName: cman: We are only hearing one side of the story

Before everyone goes apeshiat lets remember that

2 sets of doctors, 2 different opinions. Instead of state sanctioned kidnapping, how about a tiebreaker first.


Hell in a Cell...?
2014-02-25 06:53:43 PM  
1 votes:
Tuft luck kid.
2014-02-25 06:51:48 PM  
1 votes:

cman: We are only hearing one side of the story

Before everyone goes apeshiat lets remember that


2 sets of doctors, 2 different opinions. Instead of state sanctioned kidnapping, how about a tiebreaker first.
 
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