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(ABC)   Tufts Medical Center says a teenager has mitochondrial disease. Boston Children's Hospital disagrees--by declaring the symptoms psychosomatic, taking her from her parents, and denying her any medical treatment except to say it's all in her head   (abcnews.go.com) divider line 224
    More: Followup, mitochondrial disease, Tufts Medical Center, Children's Hospital Boston, foster care  
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8911 clicks; posted to Main » on 25 Feb 2014 at 6:47 PM (29 weeks ago)   |  Favorite    |   share:  Share on Twitter share via Email Share on Facebook   more»



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2014-02-25 06:12:05 PM
From the stories I've been told via my super intelligent doctor friend, the number of "weird illnesses" in children that are actually some combination of Munchhausen Syndrome by Proxy and psychosomatic illness is surprisingly high.
 
2014-02-25 06:13:56 PM
Oh, and then there's the upsetting prevalence of "there's something wrong with my child" claims that are answered with "well, you can start by not abusing them physically".
 
2014-02-25 06:16:45 PM
Does mitochondrial disease prevent her from using the Force?
 
2014-02-25 06:19:02 PM
We are only hearing one side of the story

Before everyone goes apeshiat lets remember that
 
2014-02-25 06:19:43 PM

TheBeastOfYuccaFlats: Oh, and then there's the upsetting prevalence of "there's something wrong with my child" claims that are answered with "well, you can start by not abusing them physically".


Well if they were normal I wouldn't have to beat them.
 
433 [TotalFark]
2014-02-25 06:28:26 PM
arlingtonwa.org
 
2014-02-25 06:30:01 PM

TheBeastOfYuccaFlats: Oh, and then there's the upsetting prevalence of "there's something wrong with my child" claims that are answered with "well, you can start by not abusing them physically".


Related to this, it's not actually terribly easy to get a child taken away from a parent (less easy than it really should be, even in cases when abuse seems obvious), regardless of what some alarmists may say.

It's pretty likely there's a lot more going on here than the parents' "she was fine and now she's a disaster, and it's cuz of her mitochondria" story.
 
2014-02-25 06:36:28 PM
Mitochondrial Disease...isn't that a Dire Straits tune?
 
2014-02-25 06:37:05 PM

TheBeastOfYuccaFlats: TheBeastOfYuccaFlats: Oh, and then there's the upsetting prevalence of "there's something wrong with my child" claims that are answered with "well, you can start by not abusing them physically".

Related to this, it's not actually terribly easy to get a child taken away from a parent (less easy than it really should be, even in cases when abuse seems obvious), regardless of what some alarmists may say.

It's pretty likely there's a lot more going on here than the parents' "she was fine and now she's a disaster, and it's cuz of her mitochondria" story.


Yup.  And, because of HIPAA (and a gag order imposed by the judge in this case), the hospital & state can't explain what's going on, leaving the parents' story as the only one getting any publicity.
 
2014-02-25 06:38:37 PM

Barfmaker: Mitochondrial Disease...isn't that a Dire Straits tune?


Still not as good as "Brothers in Arms" though.
 
2014-02-25 06:50:00 PM
Yeeeah, I'm gonna go ahead and guess that this hospital wouldnt be inclined to go through the hellish process of removing a child from their parents custody and receive all the obvious negative publicity just because they felt like stirring the pot.
 
2014-02-25 06:50:53 PM

czetie: Does mitochondrial disease prevent her from using the Force?


I was going to say "why doesn't she just force choke her way out of it"...
 
2014-02-25 06:51:48 PM

cman: We are only hearing one side of the story

Before everyone goes apeshiat lets remember that


2 sets of doctors, 2 different opinions. Instead of state sanctioned kidnapping, how about a tiebreaker first.
 
2014-02-25 06:53:05 PM

El_Perro: TheBeastOfYuccaFlats: TheBeastOfYuccaFlats: Oh, and then there's the upsetting prevalence of "there's something wrong with my child" claims that are answered with "well, you can start by not abusing them physically".

Related to this, it's not actually terribly easy to get a child taken away from a parent (less easy than it really should be, even in cases when abuse seems obvious), regardless of what some alarmists may say.

It's pretty likely there's a lot more going on here than the parents' "she was fine and now she's a disaster, and it's cuz of her mitochondria" story.

Yup.  And, because of HIPAA (and a gag order imposed by the judge in this case), the hospital & state can't explain what's going on, leaving the parents' story as the only one getting any publicity.


Gag order should be illegal. What jury is being tainted?
 
2014-02-25 06:53:06 PM
Sounds like an episode of House.  I'm sure it's been said, but why does no one ever suspect House?  People have these crazy diseases and only House can fix them.  It's like Murder She Wrote.  Every time she comes to town somebody dies.
 
2014-02-25 06:53:43 PM
Tuft luck kid.
 
2014-02-25 06:53:49 PM

MyRandomName: cman: We are only hearing one side of the story

Before everyone goes apeshiat lets remember that

2 sets of doctors, 2 different opinions. Instead of state sanctioned kidnapping, how about a tiebreaker first.


Two doctors enter, one doctor leaves.

Thunderdome!
 
2014-02-25 06:54:35 PM
Ah, here ya go, ftfa:

"The court really didn't accomplish much," said Mathew Staves of Liberty Counsel , a conservative organization that advocates for "religious freedom, the sanctity of life, and the family," who was at hearing.

//that should clear it up.
 
2014-02-25 06:54:43 PM

Rapmaster2000: Sounds like an episode of House.  I'm sure it's been said, but why does no one ever suspect House?  People have these crazy diseases and only House can fix them.  It's like Murder She Wrote.  Every time she comes to town somebody dies.


Who would continue to live in the town that Murder She Wrote lived in?  At least there was an explanation for why people continued to live in Sunnydale.
 
2014-02-25 06:55:24 PM
I'm useless
But not for long
My future
Is goin on
Is goin on
Is goin on
 
2014-02-25 06:55:58 PM

MyRandomName: cman: We are only hearing one side of the story

Before everyone goes apeshiat lets remember that

2 sets of doctors, 2 different opinions. Instead of state sanctioned kidnapping, how about a tiebreaker first.


Hell in a Cell...?
 
2014-02-25 06:56:06 PM

wyltoknow: Yeeeah, I'm gonna go ahead and guess that this hospital wouldnt be inclined to go through the hellish process of removing a child from their parents custody and receive all the obvious negative publicity just because they felt like stirring the pot.


And the other hospital was just doing procedures on the girl for shiats and giggles? One hospital good, other bad? Based on?
 
2014-02-25 06:56:56 PM

Zik-Zak: MyRandomName: cman: We are only hearing one side of the story

Before everyone goes apeshiat lets remember that

2 sets of doctors, 2 different opinions. Instead of state sanctioned kidnapping, how about a tiebreaker first.

Hell in a the Cell...?


*womp womp*
 
2014-02-25 06:58:49 PM
All power to the state! Individuals have no rights! Woo hoo! Liberalism!

Liberal Vermonters just got a 2 year old killed because they gave her back to a mom that previously broke her leg. Here the state won't even let a second opinion be heard?

Maybe we should let the government take care of everything, they are so good at it.
 
2014-02-25 06:59:01 PM
Over in two.

I'm always siding with the Doctors barring facts that prove otherwise.

On one hand we have people professionally educated and trained to diagnose disease. On the other we have a woman that faints in a court room, who is simply convinced her child has a very rare genetic disease, based on.... things.
 
2014-02-25 06:59:34 PM

Ow! That was my feelings!: Ah, here ya go, ftfa:

"The court really didn't accomplish much," said Mathew Staves of Liberty Counsel , a conservative organization that advocates for "religious freedom, the sanctity of life, and the family," who was at hearing.

//that should clear it up.


Strangely, just by having someone like him involved,it makes me think the hospital is doing the correct thing without any additional information.
 
2014-02-25 07:01:23 PM

justtray: Over in two.

I'm always siding with the Doctors barring facts that prove otherwise.

On one hand we have people professionally educated and trained to diagnose disease. On the other we have a woman that faints in a court room, who is simply convinced her child has a very rare genetic disease, based on.... things.


And they keep trying to try it in the press.  That's always a bad sign.
 
2014-02-25 07:01:35 PM

TheBeastOfYuccaFlats: Oh, and then there's the upsetting prevalence of "there's something wrong with my child" claims that are answered with "well, you can start by not abusing them physically".


How about mental abuse and belittling them? Is that okay?
 
2014-02-25 07:02:36 PM
SHE JUST WANTED A PEPSI.
 
2014-02-25 07:03:41 PM

MyRandomName: And the other hospital was just doing procedures on the girl for shiats and giggles? One hospital good, other bad? Based on?


If you have a child who is ill, you don't take them to an adult or non-pediatric specialty hospital for anything like a mitochondrial disorder - something that SHOULD be diagnosed only after an expert in genetics, metabolic diseases and/or endocrinology sees the child.

And adult hospitals will, as a rule, overtreat or undertreat a child. Defensive medicine.
 
2014-02-25 07:04:00 PM

MyRandomName: wyltoknow: Yeeeah, I'm gonna go ahead and guess that this hospital wouldnt be inclined to go through the hellish process of removing a child from their parents custody and receive all the obvious negative publicity just because they felt like stirring the pot.

And the other hospital was just doing procedures on the girl for shiats and giggles? One hospital good, other bad? Based on?


Based upon your hatred for anything government-related I'm gonna go with "you have no idea what actually happened and are just being reactionary as usual"
 
2014-02-25 07:04:03 PM
More info from the fox news article.... *washes self afterwards*

KELLY: And DCF gets custody taken away from the parents. DCF basically, I mean they -- they basically deferred to Boston Children's. They go in there -- they don't have their own medical experts. They go to the judge and say the people at Boston Children says they're -- you know, basically abusing the girl. Gee, judge that's bad, and the judge says oh yeah, that is bad. Custody to DCF. But the problem is there is a whole medical team at Tufts saying it is not abuse, it's medical treatment based on a disease she has called mito.
But here's the thing I wanna ask you, Matt, because this is what the folks at Boston Children's basically say mito is a crock. That's -- that's -- if it exists, it doesn't exist in this case. And what actually is happening is it is not Justina that has psychological issues, it is the parents. From what I read in the Boston Globe, it's the parents, they used to call it Munchausen by proxy. Where the parent -- the child is not sick, but the parents working out some of his -- or her own and creating illnesses in the child and then getting unnecessary treatments and surgeries for the child.

Looks like Mr Boobieser is the big winner.
 
2014-02-25 07:05:34 PM
Mr Boobieser? WTF

#1, post - er
 
2014-02-25 07:06:00 PM

justtray: More info from the fox news article.... *washes self afterwards*

KELLY: And DCF gets custody taken away from the parents. DCF basically, I mean they -- they basically deferred to Boston Children's. They go in there -- they don't have their own medical experts. They go to the judge and say the people at Boston Children says they're -- you know, basically abusing the girl. Gee, judge that's bad, and the judge says oh yeah, that is bad. Custody to DCF. But the problem is there is a whole medical team at Tufts saying it is not abuse, it's medical treatment based on a disease she has called mito.
But here's the thing I wanna ask you, Matt, because this is what the folks at Boston Children's basically say mito is a crock. That's -- that's -- if it exists, it doesn't exist in this case. And what actually is happening is it is not Justina that has psychological issues, it is the parents. From what I read in the Boston Globe, it's the parents, they used to call it Munchausen by proxy. Where the parent -- the child is not sick, but the parents working out some of his -- or her own and creating illnesses in the child and then getting unnecessary treatments and surgeries for the child.

Looks like Mr Boobieser is the big winner.


And that is why people with no training in Science or Medicine should not be engaging in science or medical journalism.

That was painful to read.
 
2014-02-25 07:06:00 PM
Are they sure she just isn't mentally retarded?
 
2014-02-25 07:08:15 PM

snowshovel: Ow! That was my feelings!: Ah, here ya go, ftfa:

"The court really didn't accomplish much," said Mathew Staves of Liberty Counsel , a conservative organization that advocates for "religious freedom, the sanctity of life, and the family," who was at hearing.

//that should clear it up.

Strangely, just by having someone like him involved,it makes me think the hospital is doing the correct thing without any additional information.


He will be on Glen Beck's show to discuss the case.

//not kidding
 
2014-02-25 07:08:40 PM

MyRandomName: Gag order should be illegal. What jury is being tainted?


None.  It's for the protection of the child's privacy, to prevent a kid from being the center of a media circus like this.
 
2014-02-25 07:09:00 PM

Boojum2k: MyRandomName: cman: We are only hearing one side of the story

Before everyone goes apeshiat lets remember that

2 sets of doctors, 2 different opinions. Instead of state sanctioned kidnapping, how about a tiebreaker first.

Two doctors enter, one doctor leaves.

Thunderdome!


Cut the kid in two. Parents get half, state gets the other half.
 
2014-02-25 07:10:22 PM

snowshovel: Ow! That was my feelings!: Ah, here ya go, ftfa:

"The court really didn't accomplish much," said Mathew Staves of Liberty Counsel , a conservative organization that advocates for "religious freedom, the sanctity of life, and the family," who was at hearing.

//that should clear it up.

Strangely, just by having someone like him involved,it makes me think the hospital is doing the correct thing without any additional information.


I have to admit the same thing crossed my mind. What the hell is Liberty Counsel doing getting mixed up in a case like this? I'm hardly going to let Boston Children's off the hook, but something smells fishy here.

I also wonder why the Politics tab right-wing usual suspects are weighing in so heavily, though perhaps they're just having the same reaction to Liberty Counsel only in the opposite direction.
 
2014-02-25 07:10:34 PM
I have a novel idea: she dies due to untreated mitochondrial disease then the judge and doctors at the MA hospital get instant death penalty.
 
2014-02-25 07:11:08 PM

justtray: Over in two.

I'm always siding with the Doctors barring facts that prove otherwise.

On one hand we have people professionally educated and trained to diagnose disease. On the other we have a woman that faints in a court room, who is simply convinced her child has a very rare genetic disease, based on.... things.


So Tufts is a fake hospital to you. Got it.
 
2014-02-25 07:12:11 PM

MyRandomName: So Tufts is a fake hospital to you. Got it.


Boston Children's Hospital is world renown for it's immunology, cancer, genetics, and metabolic disorder research and treatment team.

Tufts is renown for it's Pediatric Trauma history.
 
2014-02-25 07:12:39 PM

justtray: Mr Boobieser? WTF

#1, post - er


I'm okay with either title ;)
 
2014-02-25 07:13:06 PM

hardinparamedic: MyRandomName: And the other hospital was just doing procedures on the girl for shiats and giggles? One hospital good, other bad? Based on?

If you have a child who is ill, you don't take them to an adult or non-pediatric specialty hospital for anything like a mitochondrial disorder - something that SHOULD be diagnosed only after an expert in genetics, metabolic diseases and/or endocrinology sees the child.

And adult hospitals will, as a rule, overtreat or undertreat a child. Defensive medicine.


Mitochondrial disease doesn't have different symptoms based on age. Basically your argument is Tuft Hospital is full of shiat doctors. Got it.
 
2014-02-25 07:13:52 PM
The older daughter also has a medically verified case of mitochondrial disorder....so I doubt the parents are making anything up

This story has been out for a year now...the family pretty much just ignored the gag order...I do not blame them

This is a kidnapping, plain and simple. This family has shown much restraint. I think a lot of folks having a hospital kidnap their child would be capping some hospital folks
 
2014-02-25 07:13:56 PM
"Boston Children's Hospital reported the Pelletier's to the Massachusetts Department of Children and Families for suspected child abuse in February 2013."

Editor FAIL.
 
2014-02-25 07:14:30 PM

cameroncrazy1984: MyRandomName: wyltoknow: Yeeeah, I'm gonna go ahead and guess that this hospital wouldnt be inclined to go through the hellish process of removing a child from their parents custody and receive all the obvious negative publicity just because they felt like stirring the pot.

And the other hospital was just doing procedures on the girl for shiats and giggles? One hospital good, other bad? Based on?

Based upon your hatred for anything government-related I'm gonna go with "you have no idea what actually happened and are just being reactionary as usual"


Based on your strawman of my views I will go with your continued ignorance.

Please do tell. What do I have wrong. Tuft was paid by the mother to make up a diagnosis. Do go on.
 
2014-02-25 07:14:32 PM

MyRandomName: Mitochondrial disease doesn't have different symptoms based on age.


Which one? Do you even know what you're talking about?

MyRandomName: Basically your argument is Tuft Hospital is full of shiat doctors. Got it.


My argument is I am apt to believe a center world renown for metabolic disorders versus a center which does not specialize in it. Nothing more, nothing less. Stop putting words in my mouth and attributing them to me, ass.
 
2014-02-25 07:14:33 PM

MyRandomName: cman: We are only hearing one side of the story

Before everyone goes apeshiat lets remember that

2 sets of doctors, 2 different opinions. Instead of state sanctioned kidnapping, how about a tiebreaker first.


Boston children's is about the size of every other pediatrics division in Massachusetts put together times maybe... 5?

Seriously. That place is massive, their GI/ nutrition department is the largest in the world, so is their genetic division. I'm just saying not all opinions are necessarily equal. Boston Children's is a pretty unique place.  Also given the HIPPA constraints, the doctors are always going to be at a massive PR disadvantage.
 
2014-02-25 07:15:14 PM
Lou and Linda Pelletier, of West Hartford, Conn., have been fighting for their daughter who they say has mitochondrial disease, a rare genetic disorder with physical symptoms that can affect every part of the body.

Does that sound like arsenic poisoning to anyone else here?
 
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