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(Think Progress)   15 year old denied heart transplant in Georgia now at top of the list, nothing to do with national media attention   (thinkprogress.org) divider line 215
    More: Followup, heart transplants, Southern Christian Leadership Conference, Children's Healthcare of Atlanta  
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6122 clicks; posted to Main » on 14 Aug 2013 at 6:12 PM (1 year ago)   |  Favorite    |   share:  Share on Twitter share via Email Share on Facebook   more»



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2013-08-14 08:50:03 PM  

Deedeemarz: And cases like this are why I am not an organ donor anymore.


You are a huge part of the problem.
 
2013-08-14 08:54:10 PM  

OnlyM3: Karma Chameleon
2013-08-14 06:14:44 PM


his history of "non-compliance"

Is that what we're calling being black now?

I was assured in yesterday's thread the race card wasn't being played.

Guess fark medical experts are as wrong headed as fark's political ones.


Not by the kid's family anyway. They can't help it if some other people (mostly, if not all white) are pulling it on their behalf.
 
2013-08-14 09:08:42 PM  

Anastacya: I am sorry, but I disagree. This isn't a question of his health status, this is a question of whether or not he should get on the list in the first place. The kid has a history of not taking his meds and generally not taking care of himself. There are people, I am sure, who are in as severe, if not worse than, health than this kid. He biatched to the media because suddenly he had to be accountable for his actions and did the "bbbbb-ut racism!" and then the doctors CHANGED THEIR MINDS. That has nothing to do with whether or not this kid qualifies for a transplant, this has EVERYTHING to do with the hospital not wanting to be labeled as racist or any other negative connotation. This whole move is a PR stunt, and it is reprehensible.


Yeeea, no. Not even a little. It is NOT UNCOMMON for a patient to be labeled as non-compliant, told they won't be listed, and then have their status change when they get a wake up call and realize they need to sit up and pay attention to what the doctors are saying. This kid is being evaluated by an entire transplant team at a well-respected children's hospital and their transplant program HAS to comply with UNOS requirements at all time.

The most likely scenario is that this kid got the shiat scared out of him when he realized that his non-compliance was going to kill him, and he and his family sat down with the doctors and worked out a plan for managing his care- which makes him a positive candidate for a transplant.

And he didn't "jump to the top of the list" because of media attention. He's listed as high medical priority because he has six months to live, and THAT is the biggest factor in determining placement on the list. Read the damn UNOS link I provided.

You seem, to have  decided that A) this 15 year old kid doesn't deserve a transplant because like most 15 year old kids, he had a hard time dealing with a major medical diagnosis and B) that transplant programs are so flexible and loosely run that bad press can affect the UNOS matching system.

You're wrong on both counts.
 
2013-08-14 09:10:24 PM  

Genevieve Marie: The most likely scenario is that this kid got the shiat scared out of him when he realized that his non-compliance was going to kill him, and he and his family sat down with the doctors and worked out a plan for managing his care- which makes him a positive candidate for a transplant.


That's what I would bet happened here. "Scared straight" works, when it works.
 
2013-08-14 09:11:11 PM  

Thats_right_ALL_the_tea: Farking disgraceful. Stupid kid gets rewarded for breaking all the rules, will waste a heart, and everyone in the country learns a little more that it's not whether you earned something, it's whether you can get on TV when you biatch about not having itpull out the race card

 
2013-08-14 09:14:53 PM  

jso2897: atomic-age: Hobodeluxe: DarkVader: There's no valid reason that this should even be an issue.

Organ donation needs to change.  Plenty of people get killed in car wrecks in this country, there are plenty of organs available.  There shouldn't even be a waiting list.

Change the law.  Take the organs.  The dead people aren't using them any more.  At the very least, make organ donation the default, and if you don't want it to happen, you have to opt out, not opt in.  Stop asking the dead person's family what they want to do, just do it.

agreed

Cue all the religious asshats whining that their organs will get them into Heaven, so they must be embalmed and buried in complete format.

And the propertarians "it's MY body! I have no use for it, but it's MINE, and you can't have it!!!"
And slimiest of all, the lolbertarian concern trolls "Well, of course I'm donating my organs, 'cause I'm too smart to believe in supperstition, but I would NEVER (takes off hat, puts hand on breast, stares meaningfully into distance) take away another person's sacred RIGHT to their own rotting corpse that they need to get into their imaginary alpha ape's eternal night club!"


Yea, it's always about imaginary sky fairies, not legitimate fears that if they fall ill, their organs might be harvested (or nearly so) before they're even dead despite signs otherwise:

http://www.nydailynews.com/news/national/woman-wakes-organs-harveste d- article-1.1393821
 
2013-08-14 09:15:29 PM  
Just take the organs?

You guys do realize that many donors start off alive and doctors make a decision about whether or not they'll get better. Then if they decide they won't, they take the organs. I sure as hell don't want them making life and death decisions about me based on my donor status, whether it's an opt-in or opt-out system! religious superstition doesn't enter into it.

http://online.wsj.com/article/SB1000142405297020460300457726991090635 1 598.html

I know, they deny that this kind of thing happens, but what can you prove when all the witnesses are dead? And relaxing the policies can't possibly make this less likely.
 
2013-08-14 09:16:08 PM  
Good job you just killed two with one stone.
 
2013-08-14 09:16:15 PM  
fark this kid, fark this kid's parents, fark his lawyer, fark the media, fark idiot "activists" on the internet who didn't read more than a headline about this story, and fark the chickenshiat hospital. I HATE this kid for the way he gamed the system.
 
2013-08-14 09:17:32 PM  

Misconduc: Thats_right_ALL_the_tea: Farking disgraceful. Stupid kid gets rewarded for breaking all the rules, will waste a heart, and everyone in the country learns a little more that it's not whether you earned something, it's whether you can get on TV when you biatch about not having itpull out the race card


Can you tell me where exactly they (the family, that is) did that? I'm serious, people are presuming shiat left and right and drawing their own misguided and ignorant opinions.
 
2013-08-14 09:18:16 PM  

brainiac-dumdum: Tumunga: brainiac-dumdum: DarkVader: There's no valid reason that this should even be an issue.

Organ donation needs to change.  Plenty of people get killed in car wrecks in this country, there are plenty of organs available.  There shouldn't even be a waiting list.

Change the law.  Take the organs.  The dead people aren't using them any more.  At the very least, make organ donation the default, and if you don't want it to happen, you have to opt out, not opt in.  Stop asking the dead person's family what they want to do, just do it.

I agree

No, pay the dead person's 1/4 of what the hospital is charging for the operation/care instead of stealing what doesn't belong to you, or spending money to guilt people into checking a box when they renew their license.

Can a dead person claim ownership of that which s/he no longer needs?


No, but I'm betting the family (spouse, children, parents) could use the compensation. Treat the organs as a commodity. Every farking one else in that donor chain of custody gets compensated for their services, but the person making the operation possible gets nothing. That's not right.
 
2013-08-14 09:26:50 PM  

Genevieve Marie: Anastacya: I am sorry, but I disagree. This isn't a question of his health status, this is a question of whether or not he should get on the list in the first place. The kid has a history of not taking his meds and generally not taking care of himself. There are people, I am sure, who are in as severe, if not worse than, health than this kid. He biatched to the media because suddenly he had to be accountable for his actions and did the "bbbbb-ut racism!" and then the doctors CHANGED THEIR MINDS. That has nothing to do with whether or not this kid qualifies for a transplant, this has EVERYTHING to do with the hospital not wanting to be labeled as racist or any other negative connotation. This whole move is a PR stunt, and it is reprehensible.

Yeeea, no. Not even a little. It is NOT UNCOMMON for a patient to be labeled as non-compliant, told they won't be listed, and then have their status change when they get a wake up call and realize they need to sit up and pay attention to what the doctors are saying. This kid is being evaluated by an entire transplant team at a well-respected children's hospital and their transplant program HAS to comply with UNOS requirements at all time.

The most likely scenario is that this kid got the shiat scared out of him when he realized that his non-compliance was going to kill him, and he and his family sat down with the doctors and worked out a plan for managing his care- which makes him a positive candidate for a transplant.

And he didn't "jump to the top of the list" because of media attention. He's listed as high medical priority because he has six months to live, and THAT is the biggest factor in determining placement on the list. Read the damn UNOS link I provided.

You seem, to have  decided that A) this 15 year old kid doesn't deserve a transplant because like most 15 year old kids, he had a hard time dealing with a major medical diagnosis and B) that transplant programs are so flexible and loosely run that bad press can affe ...


You are trying to educate people out of believing what they want to believe.
Because it is all protected by HIPPA, nobody knows why the kid's parents were initially told he might not get on the list, beyond their garbled, emotional account - and no official reason was given for his reinstatement (if he was ever actually off the program) either - the WHOLE GODDAMN CONVERSATION IS CONJECTURE. But you can't talk all these amateur scriptwriters out of their pet scenarios - I think imagining shiat brings some excitement into their empty lives.
I'd give it up, if I were you.
 
2013-08-14 09:28:58 PM  

Vector R: a, it's always about imaginary sky fairies, not legitimate fears that if they fall ill, their organs might be harvested (or nearly so) before they're even dead despite signs otherwise:


8/10 - the link to the NY Daily News was a nice touch.
 
2013-08-14 09:38:01 PM  

A. Snatchfold: Misconduc: Thats_right_ALL_the_tea: Farking disgraceful. Stupid kid gets rewarded for breaking all the rules, will waste a heart, and everyone in the country learns a little more that it's not whether you earned something, it's whether you can get on TV when you biatch about not having itpull out the race card

Can you tell me where exactly they (the family, that is) did that? I'm serious, people are presuming shiat left and right and drawing their own misguided and ignorant opinions.


It's unbelievable. There is no reason whatsoever to believe that any of the things these idiots say happened happened, and they have pretty much written the whole scenario out of their confirmation biases. This is bad, even for Fark.
But that's the way (uh huh uh huh) I like it!
 
2013-08-14 09:39:10 PM  
"Loaner of an Only Heart"
 
2013-08-14 09:42:33 PM  

jso2897: A. Snatchfold: Misconduc: Thats_right_ALL_the_tea: Farking disgraceful. Stupid kid gets rewarded for breaking all the rules, will waste a heart, and everyone in the country learns a little more that it's not whether you earned something, it's whether you can get on TV when you biatch about not having itpull out the race card

Can you tell me where exactly they (the family, that is) did that? I'm serious, people are presuming shiat left and right and drawing their own misguided and ignorant opinions.

It's unbelievable. There is no reason whatsoever to believe that any of the things these idiots say happened happened, and they have pretty much written the whole scenario out of their confirmation biases. This is bad, even for Fark.
But that's the way (uh huh uh huh) I like it!


It really is pretty bad, yea. There's a ton of information about how organ transplant lists work, how matching works, and all the reasons a patient can be rejected- as well as how a patient can overcome initial rejection by working to become compliant. There's also a lot of information about the stringent guidelines transplant programs have to follow. Also? This hospital can't determine his place on the transplant list. That's what UNOS does, and the factors it's based on are readily available.

Time for folks to calm down on this one.
 
2013-08-14 09:49:17 PM  

Genevieve Marie: jso2897: A. Snatchfold: Misconduc: Thats_right_ALL_the_tea: Farking disgraceful. Stupid kid gets rewarded for breaking all the rules, will waste a heart, and everyone in the country learns a little more that it's not whether you earned something, it's whether you can get on TV when you biatch about not having itpull out the race card

Can you tell me where exactly they (the family, that is) did that? I'm serious, people are presuming shiat left and right and drawing their own misguided and ignorant opinions.

It's unbelievable. There is no reason whatsoever to believe that any of the things these idiots say happened happened, and they have pretty much written the whole scenario out of their confirmation biases. This is bad, even for Fark.
But that's the way (uh huh uh huh) I like it!

It really is pretty bad, yea. There's a ton of information about how organ transplant lists work, how matching works, and all the reasons a patient can be rejected- as well as how a patient can overcome initial rejection by working to become compliant. There's also a lot of information about the stringent guidelines transplant programs have to follow. Also? This hospital can't determine his place on the transplant list. That's what UNOS does, and the factors it's based on are readily available.

Time for folks to calm down on this one.


Folks don't like to calm down. They enjoy being outraged. That's why you can write the actual facts on a blackboard five feet high, and wave it in their faces, and they will still say the same stupid goddamn thing they heard some other outraged asshole say, because they want to be outraged too. It's like some weird form of blindness.
 
2013-08-14 09:51:47 PM  

jso2897: Vector R: a, it's always about imaginary sky fairies, not legitimate fears that if they fall ill, their organs might be harvested (or nearly so) before they're even dead despite signs otherwise:

8/10 - the link to the NY Daily News was a nice touch.


As much fun as trolling can be, no troll. Here's a local article:
http://www.syracuse.com/news/index.ssf/2013/07/st_joes_fined_over_de ad _patien.html

I will not be an organ donor, not just because I have questions on the "other side", but because I want to make sure something like that doesn't happen to me. If you're in the hospital for whatever reason and happen to match some prominent member of the community waiting for an organ, you're in just the right place for them to find a way to kill you off to get it with no one the wiser.
 
2013-08-14 09:54:09 PM  

Vector R: jso2897: Vector R: a, it's always about imaginary sky fairies, not legitimate fears that if they fall ill, their organs might be harvested (or nearly so) before they're even dead despite signs otherwise:

8/10 - the link to the NY Daily News was a nice touch.

As much fun as trolling can be, no troll. Here's a local article:
http://www.syracuse.com/news/index.ssf/2013/07/st_joes_fined_over_de ad _patien.html

I will not be an organ donor, not just because I have questions on the "other side", but because I want to make sure something like that doesn't happen to me. If you're in the hospital for whatever reason and happen to match some prominent member of the community waiting for an organ, you're in just the right place for them to find a way to kill you off to get it with no one the wiser.


Um, that's not how organ matching works. Like, at all.
 
2013-08-14 09:57:03 PM  

The My Little Pony Killer: Deedeemarz: And cases like this are why I am not an organ donor anymore.

You are a huge part of the problem.


No, I am not a huge part of the problem. My dead body will benefit the living in a different way is all. One that is less likely to be subject to the whims and vagaries of our whiny ass media-dependent catchphrase addicted public. Those lungs for the little CF girl certainly didn't do anyone any good for example. The way my corpse will be used wont save anybody that day, but it will help save someone down the road; and it certainly won't lead more people to die than would have anyway. Misappropriation of organs does: it kills other possible matches, and the candidate who shouldn't have gotten the organ will die too. My way is a different way to help is all.
 
2013-08-14 10:01:04 PM  

Deedeemarz: Those lungs for the little CF girl certainly didn't do anyone any good for example.


Her transplant was successful... http://www.cnn.com/2013/07/04/health/pennsylvania-girl-transplant
 
2013-08-14 10:04:16 PM  
This will really suck if he gets a bullet through the heart in an armed robbery attempt.
 
2013-08-14 10:10:35 PM  

Genevieve Marie: Anastacya: I am sorry, but I disagree. This isn't a question of his health status, this is a question of whether or not he should get on the list in the first place. The kid has a history of not taking his meds and generally not taking care of himself. There are people, I am sure, who are in as severe, if not worse than, health than this kid. He biatched to the media because suddenly he had to be accountable for his actions and did the "bbbbb-ut racism!" and then the doctors CHANGED THEIR MINDS. That has nothing to do with whether or not this kid qualifies for a transplant, this has EVERYTHING to do with the hospital not wanting to be labeled as racist or any other negative connotation. This whole move is a PR stunt, and it is reprehensible.

Yeeea, no. Not even a little. It is NOT UNCOMMON for a patient to be labeled as non-compliant, told they won't be listed, and then have their status change when they get a wake up call and realize they need to sit up and pay attention to what the doctors are saying. This kid is being evaluated by an entire transplant team at a well-respected children's hospital and their transplant program HAS to comply with UNOS requirements at all time.

The most likely scenario is that this kid got the shiat scared out of him when he realized that his non-compliance was going to kill him, and he and his family sat down with the doctors and worked out a plan for managing his care- which makes him a positive candidate for a transplant.

And he didn't "jump to the top of the list" because of media attention. He's listed as high medical priority because he has six months to live, and THAT is the biggest factor in determining placement on the list. Read the damn UNOS link I provided.

You seem, to have  decided that A) this 15 year old kid doesn't deserve a transplant because like most 15 year old kids, he had a hard time dealing with a major medical diagnosis and B) that transplant programs are so flexible and loosely run that bad press can affe ...


You can believe what you wish, as will I. This whole fiasco stinks to high hell. Not to mention it is morally repugnant to tell someone no, explain why (which matches donor criteria) and then after scaring them saying "oh, just kidding". I grew up bouncing from doctor to doctor because no one could explain the horrible pain that I lived in. This went from age 11 until my diagnosis of lupus came through at 22. I was able to comprehend at the age of 11 that there were things that I needed to do if I wanted my pain to subside so that I could function. If the KID didn't comprehend the severity of his situation, why didn't the Mom seek advice? He's 15, and she obviously neglected to ensure her son complied. If an alcoholic were to have 6 months to live because of his liver failing, and he had a history of falling off of the wagon, would you push him to the top of the list because he has such a short time? Oh wait, he wouldn't meet criteria because he didn't follow rules.

It is quite obvious that we will have different conclusions about this (I read your "damn" link as a courtesy because an argumentative discourse can be entertaining and educational). At this point, both of us are getting too pissed with the other person to defend their viewpoint without this degenerating into a pissing match. And while arguing on the internet IS fun, I have other things that I have to get finished. So, cheerio and all of that, and I wish you well.
 
2013-08-14 10:11:08 PM  

boinkingbill: This will really suck if he gets a bullet through the heart in an armed robbery attempt.


Or if he's trying to make himself some purple drank, and walking home from the 7-11 with an Arizona Watermelon drink, and a pack of skittles.
 
2013-08-14 10:18:18 PM  

Anastacya: You can believe what you wish, as will I. This whole fiasco stinks to high hell. Not to mention it is morally repugnant to tell someone no, explain why (which matches donor criteria) and then after scaring them saying "oh, just kidding". I grew up bouncing from doctor to doctor because no one could explain the horrible pain that I lived in. This went from age 11 until my diagnosis of lupus came through at 22. I was able to comprehend at the age of 11 that there were things that I needed to do if I wanted my pain to subside so that I could function. If the KID didn't comprehend the severity of his situation, why didn't the Mom seek advice? He's 15, and she obviously neglected to ensure her son complied. If an alcoholic were to have 6 months to live because of his liver failing, and he had a history of falling off of the wagon, would you push him to the top of the list because he has such a short time? Oh wait, he wouldn't meet criteria because he didn't follow rules.

It is quite obvious that we will have different conclusions about this (I read your "damn" link as a courtesy because an argumentative discourse can be entertaining and educational). At this point, both of us are getting too pissed with the other person to defend their viewpoint without this degenerating into a pissing match. And while arguing on the internet IS fun, I have other things that I have to get finished. So, cheerio and all of that, and I wish you well.


Um... I wasn't pissed at you, I was just baffled by your arguments. You might have too personal a connection to this to see it objectively, but it's really not uncommon for a 15 year old to have difficulty accepting a diagnosis as difficult as his and trouble with the concept of taking 20 or so pills every day at specific times and rearranging his entire life to support his heart transplant. And if you go read some of the stories available from people who have undergone transplants- being told you're not compliant and then being given a chance to become compliant is not uncommon. Alcoholics for example- they have to be dry for a predetermined length of time, but if they manage to sober up and stay sober for the set period of time, they can become eligible.

And the mom can't undergo the psychological assessments for the kid. He's the one being assessed, not her.

You can believe that it "stinks to high heaven" but you're basing that on a few hyperbolic media reports and your conjecture from them, not off of any concrete evidence that the transplant program works the way you think it does.
 
2013-08-14 10:19:07 PM  

Genevieve Marie: Deedeemarz: Those lungs for the little CF girl certainly didn't do anyone any good for example.

Her transplant was successful... http://www.cnn.com/2013/07/04/health/pennsylvania-girl-transplant


I thought I read she had either two separate sets or that she had to take two individual lungs--my apologies if that was incorrect.

Another case of misappropriation due to outrage occurred a few years ago with a girl who needed an multi-organ transplant, very low probability of survival; got the organ set but it was a poor match after implant, so they magically managed to find her a whole 'nother set of organs and gave those to her. I think it was heart and lungs but maybe not. Then she died anyway. So, she got the wrong organs and they felt guilty so they took organs destined for another sick person and stuck them in her despite her incredibly delicate condition--and she died anyway. The fact that they found a matching set if organs so quickly is what made me finally realize that the organ donor program has very serious flaws (or rather it works likes any other business: money talks and so does bad publicity),and I didn't want my organs or my kids' organs to be involved with.
 
2013-08-14 10:22:33 PM  

Full Metal Retard: I could fill this thread with hundreds and hundreds of pics of people waiting on organs.


But they aren't entitled attention whores.  So it doesn't matter.  No one would care -  especially not all of the morons here demanding that the children you posted be bumped down the list for someone who doesn't meet the compliance criteria.
 
2013-08-14 10:24:53 PM  
Im sorry but non compliance (not taking your meds) is a perfectly legitimate reason to turn someone down. I hope the kid rejects his organ for killing the compliant kid that didnt get an organ because of the kids media whoreing mom.
 
2013-08-14 10:26:03 PM  

Deedeemarz: Genevieve Marie: Deedeemarz: Those lungs for the little CF girl certainly didn't do anyone any good for example.

Her transplant was successful... http://www.cnn.com/2013/07/04/health/pennsylvania-girl-transplant

I thought I read she had either two separate sets or that she had to take two individual lungs--my apologies if that was incorrect.

Another case of misappropriation due to outrage occurred a few years ago with a girl who needed an multi-organ transplant, very low probability of survival; got the organ set but it was a poor match after implant, so they magically managed to find her a whole 'nother set of organs and gave those to her. I think it was heart and lungs but maybe not. Then she died anyway. So, she got the wrong organs and they felt guilty so they took organs destined for another sick person and stuck them in her despite her incredibly delicate condition--and she died anyway. The fact that they found a matching set if organs so quickly is what made me finally realize that the organ donor program has very serious flaws (or rather it works likes any other business: money talks and so does bad publicity),and I didn't want my organs or my kids' organs to be involved with.


She received a first set that was in poor condition that weren't suitable for transplant for anyone else, but she was days away from dying so they did it to buy her some time. Then she stabilized enough that when a second set of healthier lungs became available, she went through another transplant surgery and is doing well.

And you should really look for evidence that "money talks and so does bad publicity" before concluding that based off of media reports of a few cases. Maybe research the process yourself, and follow the cases of a few people who aren't in the news.

Full disclosure here: A friend of mine received a heart/lung transplant several years ago as lifesaving treatment for primary pulmonary hypertension. She was very, very close to death at the time and because of her transplant, and because of her amazing team, she lived for three more years.

That may not seem like much, but it was three years where she felt healthy and got to live her life doing things instead of in a hospital bed, and she got to marry her long time boyfriend in an amazing ceremony where everyone cried like a baby, and that gift meant a hell of a lot to a lot of people.

While she was waiting I spent a ton of time researching this stuff because I was curious about it, and I've come to the conclusion that while no system is perfect, the organ matching system we have is about the best that can be done in a world where there's a chronic organ shortage. I also read a ton of personal stories of people either on the list or post-transplant, and that's where I came across a lot of the information about the process.

It's your body and do what you want with it, but before you spread misleading information that encourages other people not to register as donors, you might want to do some more homework.
 
2013-08-14 10:28:34 PM  

Genevieve Marie: B) that transplant programs are so flexible and loosely run that bad press can affect the UNOS matching system.


You've got to admit that it's odd that he went from not being on the list to being at the top of the list at the same time his family went into media outrage mode. Wonder what the doctors discovered that suddenly made this kid's history of non-compliance turn into a history of compliance.

Molavian: You'd better hope you're not a match for someone who's wealthy.


Or well armed.  "Well shucks, ain't it crazy that the same day Billy got to the top of the transplant list someone with a  healthy heart got shot in the back of the head by a random stranger. The Lord sure works in mysterious ways."
 
2013-08-14 10:34:57 PM  
At the top of my favorite transplant Hx ever:

"Chronic Rejection x3"

/got a 4th.
 
2013-08-14 10:37:47 PM  

EngineerAU: You've got to admit that it's odd that he went from not being on the list to being at the top of the list at the same time his family went into media outrage mode. Wonder what the doctors discovered that suddenly made this kid's history of non-compliance turn into a history of compliance.


No I don't- because it's not at all odd. His medical need means that as soon as he was eligible for the list, he was automatically going to go near the top, because the list is need based.

And as I've stated many times, it is not uncommon for a patient to be told they're not compliant, and then work with their team to figure out a way to become compliant. My best guess, and the thing that seems most likely to me is that learning that he needed to work with his doctors or die soon was what this kid needed to get it together and start working with his team. He and his family have probably been in several meetings with his team- including a psychologist, because that's always the case with a transplant patient, and it's been determined that he's now ready to do this.

I also think there's a good chance that doctors explained at the time that he could become compliant, but his family reacted in fear and went to the media rather than work with them.

Hopefully this kid manages a successful outcome.
 
2013-08-14 10:37:57 PM  

EngineerAU: Or well armed.  "Well shucks, ain't it crazy that the same day Billy got to the top of the transplant list someone with a  healthy heart got shot in the back of the head by a random stranger. The Lord sure works in mysterious ways."


Ha, right?
 
2013-08-14 10:48:56 PM  

Deedeemarz: The My Little Pony Killer: Deedeemarz: And cases like this are why I am not an organ donor anymore.

You are a huge part of the problem.

No, I am not a huge part of the problem. My dead body will benefit the living in a different way is all. One that is less likely to be subject to the whims and vagaries of our whiny ass media-dependent catchphrase addicted public. Those lungs for the little CF girl certainly didn't do anyone any good for example. The way my corpse will be used wont save anybody that day, but it will help save someone down the road; and it certainly won't lead more people to die than would have anyway. Misappropriation of organs does: it kills other possible matches, and the candidate who shouldn't have gotten the organ will die too. My way is a different way to help is all.


You're an idiot.
 
2013-08-14 10:52:19 PM  

jso2897: A. Snatchfold: Misconduc: Thats_right_ALL_the_tea: Farking disgraceful. Stupid kid gets rewarded for breaking all the rules, will waste a heart, and everyone in the country learns a little more that it's not whether you earned something, it's whether you can get on TV when you biatch about not having itpull out the race card

Can you tell me where exactly they (the family, that is) did that? I'm serious, people are presuming shiat left and right and drawing their own misguided and ignorant opinions.

It's unbelievable. There is no reason whatsoever to believe that any of the things these idiots say happened happened, and they have pretty much written the whole scenario out of their confirmation biases. This is bad, even for Fark.
But that's the way (uh huh uh huh) I like it!


I've been following the story from day one, the parents went to the civil rights and media to grab attention because they felt the doctors would not give their son a new heart because of "Bad grades and run ins with the law" fact is he skipped out on a few doctor appointments and disregarded medication over 5 times. The parents are painting the story the Doctors refused the heart because of his school grades and law runs ins. This is what the media ran, and sure enough the ghetto rats come out the wood work claiming the hospital is wrong.

They painted a sob story of a black boy blah blah racial discrimination, fact is he blew off his medication time and time again and doctor appointments.

I have a tenant whose 65 and african, he used to drink outside with me every other day - few months ago he started bleeding from the nose like no tomarrow. Come to find out his blood pressure was through the roof. Ever since then he quit drinking and exercises, something I've never seen him do or figured he would. He even shops with my help (he's legally blind) for the right food and stuff, ever since he had the scare he took it serious from day one.

If the doctors tell you, you are going to die if you dont take the medication and you still blow off appointments, what does that tell you? He's crying the blues now the doctors said from 1 year to live to now 6 months.
 
2013-08-14 10:55:50 PM  
I don't care. I withdrew from being an organ donor years ago when some other politcal correct bullshiat popped up.

You don't fark with acts of charity. Because at the end of day the people giving have the final word, not the lawyers, activists, lobbyists, administrators etc.
 
2013-08-14 11:04:36 PM  

Misconduc: jso2897: A. Snatchfold: Misconduc: Thats_right_ALL_the_tea: Farking disgraceful. Stupid kid gets rewarded for breaking all the rules, will waste a heart, and everyone in the country learns a little more that it's not whether you earned something, it's whether you can get on TV when you biatch about not having itpull out the race card

Can you tell me where exactly they (the family, that is) did that? I'm serious, people are presuming shiat left and right and drawing their own misguided and ignorant opinions.

It's unbelievable. There is no reason whatsoever to believe that any of the things these idiots say happened happened, and they have pretty much written the whole scenario out of their confirmation biases. This is bad, even for Fark.
But that's the way (uh huh uh huh) I like it!

I've been following the story from day one, the parents went to the civil rights and media to grab attention because they felt the doctors would not give their son a new heart because of "Bad grades and run ins with the law" fact is he skipped out on a few doctor appointments and disregarded medication over 5 times. The parents are painting the story the Doctors refused the heart because of his school grades and law runs ins. This is what the media ran, and sure enough the ghetto rats come out the wood work claiming the hospital is wrong.

They painted a sob story of a black boy blah blah racial discrimination, fact is he blew off his medication time and time again and doctor appointments.

I have a tenant whose 65 and african, he used to drink outside with me every other day - few months ago he started bleeding from the nose like no tomarrow. Come to find out his blood pressure was through the roof. Ever since then he quit drinking and exercises, something I've never seen him do or figured he would. He even shops with my help (he's legally blind) for the right food and stuff, ever since he had the scare he took it serious from day one.

If the doctors tell you, you are going to die if you dont take the medication and you still blow off appointments, what does that tell you? He's crying the blues now the doctors said from 1 year to live to now 6 months.


Where did they claim racial discrimination? When did they even mention race? Quit making up your own goddamned scenarios based on your own racist assholery. I see you pulled out the 'I have a black acquaintance' shtick, speaking of race cards.
 
2013-08-14 11:06:24 PM  
Genevieve Marie:
I really hate the fact that the transplant team at a major hospital following UNOS regulations got painted as racist and insensitive with no corroborating evidence.

That's the country in which we live now, I'm afraid. Blame the people who let it (unsubstantiated cries of racism) get out of control to begin with.
 
2013-08-14 11:10:43 PM  

TerminalEchoes: Genevieve Marie:
I really hate the fact that the transplant team at a major hospital following UNOS regulations got painted as racist and insensitive with no corroborating evidence.

That's the country in which we live now, I'm afraid. Blame the people who let it (unsubstantiated cries of racism) get out of control to begin with.


Nope, not letting this go there either. A lot of times? Racism is VERY real and very under recognized and most people are really bad at knowing what it looks like and checking their own privilege long enough to see its effects on other people.

Just not in this particular case. But no, this does not get to be a rallying cry for "Stop talking about racism!"
 
2013-08-14 11:15:01 PM  

A. Snatchfold: Where did they claim racial discrimination? When did they even mention race? Quit making up your own goddamned scenarios based on your own racist assholery. I see you pulled out the 'I have a black acquaintance' shtick, speaking of race cards.


If you bothered to even read my comment which clearly you didn't. Nobody claimed racial discrimination, neither did I say anyone did. Scenarios? There is no scenario jackass its the actual facts. The parents felt the doctors refused him a heart transplant because of previous run ins with the law and the fact the kid was non compliant more then a few times on his medication and doctor appointments. So the parents went to the Civil Rights and media for attention over it, now tell me what the hell does the civil rights have to do with this? His rights were not violated, he chose not to attend nor take medication.
 
2013-08-14 11:19:31 PM  

Deedeemarz: There is a special sort of Medicare for transplants. And if u need further assistance there is Medicaid. Finances are not a problem for once--that is, once you are on the list and then post-op. There is even housing available if you cannot afford a place near your transplant center.


That depends on the state.

For example:  Two Dead Since Arizona Medicaid Program Slashed Transplant Coverage

After the deaths were publicized, of course, Arizona suddenly found the money to pay for organ transplants again.
 
2013-08-14 11:20:56 PM  

Misconduc: A. Snatchfold: Where did they claim racial discrimination? When did they even mention race? Quit making up your own goddamned scenarios based on your own racist assholery. I see you pulled out the 'I have a black acquaintance' shtick, speaking of race cards.

If you bothered to even read my comment which clearly you didn't. Nobody claimed racial discrimination, neither did I say anyone did. Scenarios? There is no scenario jackass its the actual facts. The parents felt the doctors refused him a heart transplant because of previous run ins with the law and the fact the kid was non compliant more then a few times on his medication and doctor appointments. So the parents went to the Civil Rights and media for attention over it, now tell me what the hell does the civil rights have to do with this? His rights were not violated, he chose not to attend nor take medication.


You do realize that information about his medication and doctor visits has not actually been made public due to HIPAA right? So while we can surmise that he was not compliant with medical instruction at some point, we have no idea in what way or for how long or exactly what his problems were.

For all we know the kid was just depressed and not cooperating with the psychologist doing his assessment.

This case probably had nothing to do with his civil rights, but let's also not rush to blame the 15 year old child? And let's maybe be understanding about the fact that if someone hears their child is going to die, and soon, they may not always react in the most logical way?
 
2013-08-14 11:24:43 PM  
Misconduc @ 11:15: Nobody claimed racial discrimination, neither did I say anyone did.

Misconduc @ 10:52: They painted a sob story of a black boy blah blah racial discrimination
 
2013-08-14 11:38:15 PM  

Genevieve Marie: Misconduc: A. Snatchfold: Where did they claim racial discrimination? When did they even mention race? Quit making up your own goddamned scenarios based on your own racist assholery. I see you pulled out the 'I have a black acquaintance' shtick, speaking of race cards.

If you bothered to even read my comment which clearly you didn't. Nobody claimed racial discrimination, neither did I say anyone did. Scenarios? There is no scenario jackass its the actual facts. The parents felt the doctors refused him a heart transplant because of previous run ins with the law and the fact the kid was non compliant more then a few times on his medication and doctor appointments. So the parents went to the Civil Rights and media for attention over it, now tell me what the hell does the civil rights have to do with this? His rights were not violated, he chose not to attend nor take medication.

You do realize that information about his medication and doctor visits has not actually been made public due to HIPAA right? So while we can surmise that he was not compliant with medical instruction at some point, we have no idea in what way or for how long or exactly what his problems were.

For all we know the kid was just depressed and not cooperating with the psychologist doing his assessment.


How come relatives of his family are saying otherwise they quoted that he has not been taking his medication. The doctors damn sure can't release any information on a patient but the family can release whatever information they want to the media. A few days ago she went on WSB Atlanta TV saying the hospital wouldn't put him on the list for "Fear" he would not be compliant. However his mother goes back on WSB Atlanta TV a day ago saying the hospital refused him because of poor grades and run ins with the law.So which is it? His mother is the one releasing the information, cite WSB TV as well as her relatives who quoted the non compliant comments.

The whole case stinks.
 
2013-08-14 11:40:38 PM  

Misconduc: How come relatives of his family are saying otherwise they quoted that he has not been taking his medication.


Link to a story with this information? I've read all I can and watched the videos, but I've not seen a story that directly quotes a relative of his as saying he didn't take his medication. Did I miss something?
 
2013-08-14 11:42:39 PM  

eraser8: Misconduc @ 11:15: Nobody claimed racial discrimination, neither did I say anyone did.

Misconduc @ 10:52: They painted a sob story of a black boy blah blah racial discrimination


http://www.atlantadailyworld.com/201308148232/Original/civil-rights- gr oups-win-petition-for-heart-transplant-originally-denied-to-15-year-ol d-african-american
The Southern Christian Leadership Conference is an African-American civil rights organization. SCLC was closely associated with its first president, Dr. Martin Luther King, Jr. The SCLC had a large role in the American Civil Rights Movement.

So explain that?
 
2013-08-14 11:47:12 PM  

Misconduc: eraser8: Misconduc @ 11:15: Nobody claimed racial discrimination, neither did I say anyone did.

Misconduc @ 10:52: They painted a sob story of a black boy blah blah racial discrimination

http://www.atlantadailyworld.com/201308148232/Original/civil-rights- gr oups-win-petition-for-heart-transplant-originally-denied-to-15-year-ol d-african-american
The Southern Christian Leadership Conference is an African-American civil rights organization. SCLC was closely associated with its first president, Dr. Martin Luther King, Jr. The SCLC had a large role in the American Civil Rights Movement.

So explain that?


So, were you lying at 11:15 (when you wrote that "nobody claimed racial discrimination, neither did I say anyone did") or were you lying at 10:52 & 11:42 (when you effectively claimed the "race card" was played)?
 
2013-08-14 11:56:34 PM  

Flash_NYC: Welcome to Obamacare!!!

Where if you don't shame or complain loud enough to get media attention, you're gonna get nothing.

/stocking up on prescription meds.
//have about 3 months in stock
///ready for a short disruption in supply.


Omg! So am I! Plus have got a Z-PAC I don't need set aside just in case and some other meds. Just in case.
 
2013-08-15 12:35:00 AM  

RenownedCurator: I wonder what sort of tragic post-transplant followup story we'll be hearing.


This...
 
2013-08-15 12:49:52 AM  

Benevolent Misanthrope: I do wonder what the difference would have been if he had been a white kid who has a problem doing what he's told and engages routinely in self-destructive behavior.


None, other reports were drugs/alcohol in his system along with smoking and selling/not taking meds.

And tattoos? At 15? Who did them? Because I could have sworn you had to be 18 in Georgia.
 
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