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(Patch)   He's seven. His mom has Lou Gehrig's Disease. He thought up a fundraiser for her, and his aunt and several volunteers are making it happen. The dust is strong with this one   (bristol-warren.patch.com) divider line 42
    More: Hero, ALS, aunts, volunteers, mom  
•       •       •

5588 clicks; posted to Main » on 06 Apr 2013 at 2:49 PM (1 year ago)   |  Favorite    |   share:  Share on Twitter share via Email Share on Facebook   more»



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2013-04-06 01:39:52 PM
Do they have a paypal account for this?  Dreadful disease, I hate the thought of anyone going through this.

/god bless the MDA
//god bless Jerry Lewis for the work he did with them
///suck it haters
 
2013-04-06 01:43:33 PM

basemetal: Do they have a paypal account for this?  Dreadful disease, I hate the thought of anyone going through this.

/god bless the MDA
//god bless Jerry Lewis for the work he did with them
///suck it haters


ALS is not MD.
 
2013-04-06 02:03:44 PM

ThatGuyGreg: basemetal: Do they have a paypal account for this?  Dreadful disease, I hate the thought of anyone going through this.

/god bless the MDA
//god bless Jerry Lewis for the work he did with them
///suck it haters

ALS is not MD.


No, but they fund research, help people with ALS and help the families.  Have seen it first hand.
 
2013-04-06 02:52:15 PM
All funds will go to purchase a time machine, so he can go back in time and murder Lou Gehrig.
 
2013-04-06 02:53:01 PM
In before Family Guy Lou Gehrig
 
2013-04-06 02:54:10 PM
She's the luckiest woman on the face of the Earth.
 
2013-04-06 03:06:15 PM
I've seen the progression from ALS diagnosis to death firsthand, what a truly horrific disease. With any luck this kid will find someone who will offer to set up a donation website, local bake sales are only going to go so far. Good on him for trying, though.
 
2013-04-06 03:09:49 PM

ausfahrk: All funds will go to purchase a time machine, so he can go back in time and murder Lou Gehrig.


I am going to hell because I find this statement quite funny for some reason.
 
2013-04-06 03:11:01 PM
If you go to the FB page, it looks like someone has set something up for donations.  Some kind of foundation.

Hard on the mother, but the poor kid also.  Having to watch that at such a young age.
 
2013-04-06 03:20:16 PM
Fark Lou Gehrig. He unleashed this plauge on Earth
images4.wikia.nocookie.net
 
2013-04-06 03:25:13 PM
This is why people shouldn't have sex with Lou Gehrig.....
 
2013-04-06 03:26:25 PM
Fundraiser? You live in the USA without the boot of socialized medicine standing on your neck. Freedom is its own reward!
 
2013-04-06 03:34:47 PM
I have no experience with the disease, but the reason the story makes me sad is that a 7-year-old son feels he has to spearhead efforts to raise money to help his mom cope with a disease she did nothing to bring about.

In my opinion, this is exactly why government-underwritten (yes, tiny contributions by all taxpayers) catastrophic health care insurance is needed in the United States.

Someday we'll look back at penny-for-charity jars at the local convenience store as a sign of barbaric helplessness, not neighborly generosity for someone who needs a life-saving operation or daily medical care.
 
2013-04-06 03:43:42 PM
What a very beautiful expression. It honestly makes me cry at how pure and genuine the gesture is. I was diagnosed with ALS 3 days ago. It's been a very horrible past 72 hours where I've done nothing but question how awful will my last months be? I would rather have been told I had a fatal aneurysm with less than 3 hours than be told that within the next 3months to 3years ill no longer be able to care for myself, let alone my family. I've spent my entire life caring for others as a paramedic and a nurse and it horrifies me to think that has come to an end. My wife has always been a stay at home mom, I've always been a very strong role model for my kids, but for the past 3 days I've been trying to come to an agreement at what point of debilitation is it acceptable for me to pull the trigger. It's an ugly, shameful truth but I just can't stand the ideal of dependence and eventual wasting into death, where my families last memories of me aren't of the strong, capable, caring man I am today, but the pathetic, needy, sickened thing I will be in the near future. My kids are very wonderful, sensitive, and caring people, as is my wife. I know they'll stand by my side through anything. I just hate the entire thought of them having to suffer through it.
 
2013-04-06 03:46:18 PM
Today, I consider meself the Lou Gerigest Man, on the face of the earth
 
2013-04-06 03:51:43 PM

Huck And Molly Ziegler: I have no experience with the disease, but the reason the story makes me sad is that a 7-year-old son feels he has to spearhead efforts to raise money to help his mom cope with a disease she did nothing to bring about.

In my opinion, this is exactly why government-underwritten (yes, tiny contributions by all taxpayers) catastrophic health care insurance is needed in the United States.

Someday we'll look back at penny-for-charity jars at the local convenience store as a sign of barbaric helplessness, not neighborly generosity for someone who needs a life-saving operation or daily medical care.


You sound like someone who would opt out of ObamaCare.
 
2013-04-06 03:52:00 PM

Minimum: If you go to the FB page, it looks like someone has set something up for donations.  Some kind of foundation.


Here's the link: http://aswiftcause.org/a_swift_cause/donations.html

Yes, there's a PayPal option.
 
2013-04-06 03:56:33 PM

Bender The Offender: What a very beautiful expression. It honestly makes me cry at how pure and genuine the gesture is. I was diagnosed with ALS 3 days ago. It's been a very horrible past 72 hours where I've done nothing but question how awful will my last months be? I would rather have been told I had a fatal aneurysm with less than 3 hours than be told that within the next 3months to 3years ill no longer be able to care for myself, let alone my family. I've spent my entire life caring for others as a paramedic and a nurse and it horrifies me to think that has come to an end. My wife has always been a stay at home mom, I've always been a very strong role model for my kids, but for the past 3 days I've been trying to come to an agreement at what point of debilitation is it acceptable for me to pull the trigger. It's an ugly, shameful truth but I just can't stand the ideal of dependence and eventual wasting into death, where my families last memories of me aren't of the strong, capable, caring man I am today, but the pathetic, needy, sickened thing I will be in the near future. My kids are very wonderful, sensitive, and caring people, as is my wife. I know they'll stand by my side through anything. I just hate the entire thought of them having to suffer through it.


Damn that sucks- best of luck dealing with a horrible disease. One note: there are lists of clinical trials for ALS available online: there might be one you can join that might help. http://clinicaltrials.gov/ct2/results?term=lateral+sclerosis&Search=S e arch
 
2013-04-06 04:00:29 PM
I'm not a religious person, but if I were, this is the type of disease that would cause me to question my beliefs.  This is one the worst and most heartbreaking conditions for a human being to have.  My mom was diagnosed with it six months ago and I've already seen her losing her ability to speak (the reason we knew something was wrong), her ability to swallow, and her ability to open something as simple as a water bottle.  And she's not even close to facing the worst of it.  I just can't imagine how truly terrifying it must be to have it; watching it is hard enough.  I feel so bad for this child to see this at such a young age.  His memories of his mom will probably always be of her illness.
 
2013-04-06 04:00:47 PM

ThatGuyGreg: basemetal: Do they have a paypal account for this?  Dreadful disease, I hate the thought of anyone going through this.

/god bless the MDA
//god bless Jerry Lewis for the work he did with them
///suck it haters

ALS is not MD.


The MDA and the ALSA are both huge contributors to research but also funding to help the family with needs.

/yes I did call him Jerry's kid.
//he laughed
 
2013-04-06 04:02:50 PM

A Shambling Mound: I've seen the progression from ALS diagnosis to death firsthand, what a truly horrific disease. With any luck this kid will find someone who will offer to set up a donation website, local bake sales are only going to go so far. Good on him for trying, though.


My husband was diagnosed when the kids wee 3&5 and died when they were 7&9. This kid has the right stuff. It's an impossible journey for adults but kids make it easier to be strong.

Heartbroken for them
 
2013-04-06 04:05:03 PM

Huck And Molly Ziegler: I have no experience with the disease, but the reason the story makes me sad is that a 7-year-old son feels he has to spearhead efforts to raise money to help his mom cope with a disease she did nothing to bring about.

In my opinion, this is exactly why government-underwritten (yes, tiny contributions by all taxpayers) catastrophic health care insurance is needed in the United States.

Someday we'll look back at penny-for-charity jars at the local convenience store as a sign of barbaric helplessness, not neighborly generosity for someone who needs a life-saving operation or daily medical care.


Conversely it's a story of a kid who feels helpless and is working at his problem in his own way and will feel proud.

I worked very very hard to make sure my kids wouldn't have a victim issue on top of everything else.
 
2013-04-06 04:10:39 PM

Bender The Offender: What a very beautiful expression. It honestly makes me cry at how pure and genuine the gesture is. I was diagnosed with ALS 3 days ago. It's been a very horrible past 72 hours where I've done nothing but question how awful will my last months be? I would rather have been told I had a fatal aneurysm with less than 3 hours than be told that within the next 3months to 3years ill no longer be able to care for myself, let alone my family. I've spent my entire life caring for others as a paramedic and a nurse and it horrifies me to think that has come to an end. My wife has always been a stay at home mom, I've always been a very strong role model for my kids, but for the past 3 days I've been trying to come to an agreement at what point of debilitation is it acceptable for me to pull the trigger. It's an ugly, shameful truth but I just can't stand the ideal of dependence and eventual wasting into death, where my families last memories of me aren't of the strong, capable, caring man I am today, but the pathetic, needy, sickened thing I will be in the near future. My kids are very wonderful, sensitive, and caring people, as is my wife. I know they'll stand by my side through anything. I just hate the entire thought of them having to suffer through it.


Oh Bender. I remember and I'm devastated for you. I remember the moment we found out and the weeks after. Are you near an ALS or MDA clinic? Please contact me with questions your wife has. I can't fix this for you or her but I can offer support and advice.

This passes and then shock and then grief and then determination. He was always surrounded with love and I held him at home till the last day moment. He fought and loved and laughed and cried but he was happy he had 4 more years with the kids. We came to a peace within our pain. He was awesome.
 
2013-04-06 04:13:19 PM

PillsHere: I'm not a religious person, but if I were, this is the type of disease that would cause me to question my beliefs.  This is one the worst and most heartbreaking conditions for a human being to have.  My mom was diagnosed with it six months ago and I've already seen her losing her ability to speak (the reason we knew something was wrong), her ability to swallow, and her ability to open something as simple as a water bottle.  And she's not even close to facing the worst of it.  I just can't imagine how truly terrifying it must be to have it; watching it is hard enough.  I feel so bad for this child to see this at such a young age.  His memories of his mom will probably always be of her illness.


You're in my thoughts and heart also. I was religious when I went into it and also when I came out the other side but I will never say I wasn't really f'in gd pissed during.
 
2013-04-06 04:15:48 PM
Bender - I do have to say the look he had the first time I had to shave his face after 13 years of seeing me f up the job on my ankles and legs was one of horror but it turned to laughter quick ;-)
 
2013-04-06 04:26:52 PM

Bender The Offender: What a very beautiful expression. It honestly makes me cry at how pure and genuine the gesture is. I was diagnosed with ALS 3 days ago. It's been a very horrible past 72 hours where I've done nothing but question how awful will my last months be? I would rather have been told I had a fatal aneurysm with less than 3 hours than be told that within the next 3months to 3years ill no longer be able to care for myself, let alone my family. I've spent my entire life caring for others as a paramedic and a nurse and it horrifies me to think that has come to an end. My wife has always been a stay at home mom, I've always been a very strong role model for my kids, but for the past 3 days I've been trying to come to an agreement at what point of debilitation is it acceptable for me to pull the trigger. It's an ugly, shameful truth but I just can't stand the ideal of dependence and eventual wasting into death, where my families last memories of me aren't of the strong, capable, caring man I am today, but the pathetic, needy, sickened thing I will be in the near future. My kids are very wonderful, sensitive, and caring people, as is my wife. I know they'll stand by my side through anything. I just hate the entire thought of them having to suffer through it.


Dammit!  Now I'm a slobbering mess.

Stay tough, Amigo, and stay on FARK - I promise I'll be here for you.
 
2013-04-06 04:29:34 PM

Huck And Molly Ziegler: I have no experience with the disease, but the reason the story makes me sad is that a 7-year-old son feels he has to spearhead efforts to raise money to help his mom cope with a disease she did nothing to bring about.

In my opinion, this is exactly why government-underwritten (yes, tiny contributions by all taxpayers) catastrophic health care insurance is needed in the United States.

Someday we'll look back at penny-for-charity jars at the local convenience store as a sign of barbaric helplessness, not neighborly generosity for someone who needs a life-saving operation or daily medical care.



I thought the typical course of action was to rack up hundreds of thousands of dollars in medical bills, then declare bankruptcy.  I had a girlfriend a long time back who used this technique when her pancreas shat itself.
 
2013-04-06 04:31:18 PM
All we are is dust in the wind.
 
2013-04-06 04:53:41 PM
I consider myself a person with a callous heart who is unphased by most things.

and.... soo dusty
 
2013-04-06 05:17:36 PM
I really appreciate the kind thoughts. I'm still coming to terms with things. Only my wife, my HR, and my parents are aware at this point. Just very devestating and has taken a while to come to terms. I'll do what I can as long as I can to be a good and positive influence in the lives around me. I don't know what else I can do, or how ill feel in 2 weeks. It sucks, but life us never fair, it just is. I'll probably have another crying and cursing the fates moment here in a little while, but I'm hoping that will all pass.
 
2013-04-06 05:30:01 PM

rkiller1: She's the luckiest woman on the face of the Earth.


I'm the seeingest man on the face of the Earth of what you did there.
 
2013-04-06 05:31:44 PM
Good on him.
 
2013-04-06 07:31:30 PM
I know someone with ALS.  She was told she had 5 years in 1995.  She's still alive.  She was a college professor, and has spent the last 15 years tutoring kids.
 
2013-04-06 07:55:22 PM

jaytkay: Fundraiser? You live in the USA without the boot of socialized medicine standing on your neck. Freedom is its own reward!


Personal accountability... we have to be firm with that. Watching people die while doing nothing is a small price to pay for freedom. Some people even apparently get off on it.

/ I'm embarrassed to live in the USA more and more.
 
2013-04-06 07:57:27 PM

hitlersbrain: jaytkay: Fundraiser? You live in the USA without the boot of socialized medicine standing on your neck. Freedom is its own reward!

Personal accountability... we have to be firm with that. Watching people die while doing nothing is a small price to pay for freedom. Some people even apparently get off on it.

/ I'm embarrassed to live in the USA more and more.


It's that final release, the la petit morte before la grand morte. It feels...well...A-MAZING!

Just, if you're going to risk it, don't be a punk and wear heels and women's lingerie with a 10 inch dildo in your ass, and a bible on the nightstand.

Poor Trevor. He thought his penis sure was in for a treat.
 
2013-04-06 08:33:48 PM

gambitsgirl: A Shambling Mound: I've seen the progression from ALS diagnosis to death firsthand, what a truly horrific disease. With any luck this kid will find someone who will offer to set up a donation website, local bake sales are only going to go so far. Good on him for trying, though.

My husband was diagnosed when the kids wee 3&5 and died when they were 7&9. This kid has the right stuff. It's an impossible journey for adults but kids make it easier to be strong.

Heartbroken for them


My husband was dxd when the kiddos were 3 & 5 also. He has mostly upper motor neuron onset so it has been slow going...we've been lucky to have the extra years...kiddos are 9 & 11 now.

Stupid ALS

/ski to defeat ALS next weekend!  Yay!
 
2013-04-06 08:50:04 PM
All proceeds from the bake sale - expected to include Tommy's favorite Oreo chocolate balls and other sweet treats

How long before Nabisco sues them for copyright infringement I wonder...
 
2013-04-06 09:01:14 PM
Everybody has a fundraiser. The only ones that raise enough funds tend to be run by liars or corporate shadow non-profits.
 
2013-04-06 10:31:47 PM

puffy999: Everybody has a fundraiser. The only ones that raise enough funds tend to be run by liars or corporate shadow non-profits.

Read the article.
 
2013-04-06 11:47:28 PM
It's a terrible disease to be sure.  I'll have to take a better look at the link, as my husband won't let us get a PayPal account.  I understand why, but it's instances like these that make me wish PayPal were an option for us.
 
2013-04-07 01:14:15 PM

Bender The Offender: What a very beautiful expression. It honestly makes me cry at how pure and genuine the gesture is. I was diagnosed with ALS 3 days ago. It's been a very horrible past 72 hours where I've done nothing but question how awful will my last months be? I would rather have been told I had a fatal aneurysm with less than 3 hours than be told that within the next 3months to 3years ill no longer be able to care for myself, let alone my family. I've spent my entire life caring for others as a paramedic and a nurse and it horrifies me to think that has come to an end. My wife has always been a stay at home mom, I've always been a very strong role model for my kids, but for the past 3 days I've been trying to come to an agreement at what point of debilitation is it acceptable for me to pull the trigger. It's an ugly, shameful truth but I just can't stand the ideal of dependence and eventual wasting into death, where my families last memories of me aren't of the strong, capable, caring man I am today, but the pathetic, needy, sickened thing I will be in the near future. My kids are very wonderful, sensitive, and caring people, as is my wife. I know they'll stand by my side through anything. I just hate the entire thought of them having to suffer through it.


I know how you are feeling at the moment. I was diagnosed with ALS about a year ago. I went through the same feelings that you are having now for about a week. Then I decided I really only had one of two choices. Start dying or begin living. You have ALS, it is what it is! There is absolutely nothing you can do about that. There is no cure and there won't be one soon. You do have control of your outlook on though. Don't focus on the future but enjoy what you have today. My suggestion is to get in contact with your local chaper of the ALS Association. They will assign you a case manager who can answer a lot of your families questions. Also, go to an ALS specialty clinic for a second opinion (the ALSA can help you with that also). I suggest that you stay away from ALS forum for a while. One other thing, do the things you have been putting off till later now!
 
2013-04-07 02:08:46 PM

hitlersbrain: jaytkay: Fundraiser? You live in the USA without the boot of socialized medicine standing on your neck. Freedom is its own reward!

Personal accountability... we have to be firm with that. Watching people die while doing nothing is a small price to pay for freedom. Some people even apparently get off on it.

/ I'm embarrassed to live in the USA more and more.


Apparently you don't understand that instead of "watching her die" she is in fact getting care, so perhaps it's time for you to leave, for we don't want you to endure in a country where you're (gasp) embarrassed.  Save yourself.  Go.
 
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