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(Yahoo)   The good news? Doctors have developed a technique that stops cluster headaches and migraines in 67% of patients. The bad news? You have to have an almond-sized electrical-stimulation device implanted in a nerve bundle behind your nose and eyes   (news.yahoo.com) divider line 53
    More: Interesting, scientific technique, brain stimulation reward, electrical stimulations, sinus ostium, migraines, headaches, Redwood City, Cleveland Clinic  
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1923 clicks; posted to Main » on 06 Feb 2013 at 9:02 AM (1 year ago)   |  Favorite    |   share:  Share on Twitter share via Email Share on Facebook   more»



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2013-02-06 09:05:03 AM  
Umm, isn't that right by your on/off switch?  Ocipital lobe or however you spell it.  If they make a mistake or if that thing blows up you die instantly.
 
2013-02-06 09:06:27 AM  
It's called divorce ( or murder )
 
2013-02-06 09:06:51 AM  
stops cluster headaches

Damn the torpedoes. Where do I sign up?
 
2013-02-06 09:07:50 AM  
Something, something NWO Iluminati Mind Control!
 
2013-02-06 09:08:33 AM  
If the neurologist told me he could stop my daily, chronic cluster HA's only by shoving a needle directly into my left eyeball and pouring hydrochloric acid over the bloody mess, I'd sign up on the spot. There's a reason why they call them "suicide headaches". The drugs they try off-label for this condition have caused me to have a seizure, have heart problems, and lose 60 lbs in less than two months.

There is some promising research into using non-hallucinogenic doses of psilocybin mushrooms, and many sufferers swear by it. You can guess what most of the medical community has to say about that.
 
2013-02-06 09:08:43 AM  
Is that outpatient and will my insurance cover it?
 
2013-02-06 09:10:21 AM  

operatorJzigworthy: stops cluster headaches

Damn the torpedoes. Where do I sign up?


I've been cluster headache free for 5 years after cutting out cigarettes totally and easing off on liquor intake (the combination of the 2 was my trigger). But if I was still getting the bastards that is exactly what I would say.
 
2013-02-06 09:14:59 AM  
Came for Quaid, leaving satisfied!
 
2013-02-06 09:20:26 AM  
1.bp.blogspot.com
 
2013-02-06 09:20:32 AM  
Considering an electric drill to the head seems like a great idea during one of my migraines, this doesn't actually sound half bad
 
2013-02-06 09:23:13 AM  

fuligin: If the neurologist told me he could stop my daily, chronic cluster HA's only by shoving a needle directly into my left eyeball and pouring hydrochloric acid over the bloody mess, I'd sign up on the spot. There's a reason why they call them "suicide headaches". The drugs they try off-label for this condition have caused me to have a seizure, have heart problems, and lose 60 lbs in less than two months.

There is some promising research into using non-hallucinogenic doses of psilocybin mushrooms, and many sufferers swear by it. You can guess what most of the medical community has to say about that.


This. I used to take a knife with me to bed when I got them. If I stabbed the knife in my hand or other generic pain centers, I could forces on that pain instead.

Thankfully my DR is a saint and prescribed me real painkillers. I got up to the strongest dose of Vicoden before I even noticed a slight reduction in pain. We seriously were considering dilaudid even with the red tape. At least vicoden let's me lay in bed for 3 hours without contemplating scalping myself or trepanation.

The fact that I can show the Dr the full bottles of painkillers three months after filling them let's him know I'm not selling or abusing them. Thankfully I only need them every other month. Weekly? Yeah I'd eat a bullet.
 
2013-02-06 09:24:52 AM  

operatorJzigworthy: stops cluster headaches

Damn the torpedoes. Where do I sign up?


No shiat.  As it is I look forward to the quarterly botox shots in the back of my neck, which leave me unable to think for an hour or so (and, if they're even slightly off, cause immense neck pain).

My longest cluster/migraine headache (at times, it was difficult to tell what it was) lasted for 25 days.  I missed no work, because I'd already been hospitalized for migraine-related symptoms and had lost all my sick time for the year.  I do think surviving that, plus the fact that my headaches have been cut 90% by the botox, played a major part in getting a recent promotion.  Guess they figured if I survived that, no extra responsibilities they could give me would faze me.
 
2013-02-06 09:28:07 AM  

The Third Man: No shiat. As it is I look forward to the quarterly botox shots in the back of my neck, which leave me unable to think for an hour or so (and, if they're even slightly off, cause immense neck pain).


What's the botox neck do?
 
2013-02-06 09:33:28 AM  
Over the years I saw co-workers suffer horribly from migraines. It was like they were being tortured. I'm glad researchers/doctors are working on helping those poor farks.
 
2013-02-06 09:34:37 AM  

HindiDiscoMonster: [www.questionsleep.com image 501x271]


*shakes tiny fist*
 
2013-02-06 09:36:10 AM  
I read that Michael Crichton book. It was ok
 
2013-02-06 09:36:36 AM  
www.myvirtuallife.net

Hope the doc has steady hands...
 
2013-02-06 09:38:09 AM  
Where do I sign up? I want one!

I was just in the ER on Monday. When I lived in Tennessee, the closest hospital to us started treating me like a drug seeker because I was there so frequently with migraines. I have two kids, so I can't afford to be non-functional from pain. I have a constant low level headache that flares into a migraine pretty frequently and so far the neurologists haven't been able to figure out why. I'm so sick of being medicated all the time. This device seems perfect.
 
2013-02-06 09:38:44 AM  
Yeah, 67% just isn't a good enough rate for an implant to be installed.

Have always gotten migraines, normally just 4-5 a year. Last year, however, due to some outside hellsall stress I had 13 in one year. Bleg.
 
2013-02-06 09:39:13 AM  

The Third Man: operatorJzigworthy: stops cluster headaches

Damn the torpedoes. Where do I sign up?

No shiat.  As it is I look forward to the quarterly botox shots in the back of my neck, which leave me unable to think for an hour or so (and, if they're even slightly off, cause immense neck pain).

My longest cluster/migraine headache (at times, it was difficult to tell what it was) lasted for 25 days.  I missed no work, because I'd already been hospitalized for migraine-related symptoms and had lost all my sick time for the year.  I do think surviving that, plus the fact that my headaches have been cut 90% by the botox, played a major part in getting a recent promotion.  Guess they figured if I survived that, no extra responsibilities they could give me would faze me.


My problem is I lose my vision too. farking weird since it isn't blindness, I can see but I can't see. My visual cortex just seems to say, ' fark this, I'm not processing that visual information so just divert it to the pain center'

Anyone else panic when they see after images from camera flashes? I've run to dark rooms and popped my meds just because I didn't realize that sun glare caused the image and not an oncoming migraine
 
2013-02-06 09:46:33 AM  

palelizard: The Third Man: No shiat. As it is I look forward to the quarterly botox shots in the back of my neck, which leave me unable to think for an hour or so (and, if they're even slightly off, cause immense neck pain).

What's the botox neck do?


The neurologist believes my cluster headaches are caused by misfiring nerves in the back of my neck. Dunno if I buy that, but he's the doctor, and it seems to work. But if the shot is off it can hit muscle, which feels like hell (and doesn't do anything to the nerve, I guess).
 
2013-02-06 09:54:21 AM  
According to this National Geographic special, LSD and a non-psychedelic related molecule show promise in treating cluster headaches. I'm not one to recommend taking illegal drugs, but if it works, have at it.
 
2013-02-06 10:03:28 AM  

kim jong-un: My problem is I lose my vision too. farking weird since it isn't blindness, I can see but I can't see. My visual cortex just seems to say, ' fark this, I'm not processing that visual information so just divert it to the pain center'


That happens to me!
That usually happens at the onset of a horrible migraine, right before the pain starts.
Last time it happened, I was trying to look a blue text on a piece of paper. The entire left portion of my vision was gone. All I could see was solid blue, no matter where I looked. I didn't immediately realize what was going on, and kept moving the paper around to try and "see" what was on the side. Then it dawned on me and I went scrambling for migraine drugs.

Yeah, I could see, but couldn't see. I wasn't going to walk into walls or anything. I knew they were there. But I couldn't tell you what they looked like.
 
2013-02-06 10:08:38 AM  
Put me down for one as well. I'll even be a test subject for them if they need it.

Migraines are the reason everyone I know thinks it's a really bad idea for me to own a handgun. There have been many times I would have blown a hole in my skull just to stop the pain.
 
2013-02-06 10:09:25 AM  

Sergeant Grumbles: kim jong-un: My problem is I lose my vision too. farking weird since it isn't blindness, I can see but I can't see. My visual cortex just seems to say, ' fark this, I'm not processing that visual information so just divert it to the pain center'

That happens to me!
That usually happens at the onset of a horrible migraine, right before the pain starts.
Last time it happened, I was trying to look a blue text on a piece of paper. The entire left portion of my vision was gone. All I could see was solid blue, no matter where I looked. I didn't immediately realize what was going on, and kept moving the paper around to try and "see" what was on the side. Then it dawned on me and I went scrambling for migraine drugs.

Yeah, I could see, but couldn't see. I wasn't going to walk into walls or anything. I knew they were there. But I couldn't tell you what they looked like.



It's called having holes in your vision. It used to happen to my mom when she would get migraines. I just get silver sparkley things in my vision about 30 minutes before one hits, sometimes. When that happens, I run for the drugs and hope they work this time.
 
2013-02-06 10:32:11 AM  

Sergeant Grumbles: kim jong-un: My problem is I lose my vision too. farking weird since it isn't blindness, I can see but I can't see. My visual cortex just seems to say, ' fark this, I'm not processing that visual information so just divert it to the pain center'

That happens to me!
That usually happens at the onset of a horrible migraine, right before the pain starts.
Last time it happened, I was trying to look a blue text on a piece of paper. The entire left portion of my vision was gone. All I could see was solid blue, no matter where I looked. I didn't immediately realize what was going on, and kept moving the paper around to try and "see" what was on the side. Then it dawned on me and I went scrambling for migraine drugs.

Yeah, I could see, but couldn't see. I wasn't going to walk into walls or anything. I knew they were there. But I couldn't tell you what they looked like.


Kaleidoscope vision is my first symptom. It looks exactly like and old-fashioned kaleidoscope. Not the one with the floaty shiat. Just mirrors breaking up the image. When that happens (sucks when driving because I really can't see) I know I have about 20 minutes before life is going to suck biggly.

Just got done a 3 day cluster headache. Now pain free, the TFA thing creeps me out. But during a bad one, I would drill straight through my forehead if it wasn't too much effort to get up and go find the drill.
 
2013-02-06 10:36:23 AM  

namegoeshere: Kaleidoscope vision is my first symptom


I taste metal, and my jaw gets tingly as my first symptom... Then my eyes get blurry, then I get nauseous. Then my brain is in a vice. All of this happens within 3 minutes... the vice lasts about 8 hours.
 
2013-02-06 10:39:39 AM  
I know someone who gets cluster headaches.  From his description and some of the ones on Fark, that sounds like absolute hell.
 
2013-02-06 10:55:18 AM  
I'd do this.  Farking headaches are ruining my life.
 
2013-02-06 11:43:31 AM  
If it wasn't for Topamax I'd sign right up for just about anything to get rid of the headaches. Since my doctor put me on Topamax my migraines have dwindled down to just one or two minor ones a month. I was suffering from 6 or 7 major ones lasting several days every month. Topamax has been a life saver. The worst side effects for me is the tingling feeling I get, especially if I get cold and any carbonated drink tastes flat. So beer tastes weird. Which is the worst of it because I love beer, but on the up side I have lost about 20 pounds since I don't drink sodas or beer much. Honestly I would give up just about anything to not have the headaches and if I have to give up the beer, so be it. I still drink a beer every now and then but I just have to get past the flatness. Topamax and Maxalt MLT FTW!
 
2013-02-06 11:48:41 AM  
Subby doesn't realize that most migraine sufferers would probably agree to install this device themselves without anesthetic if it would help.

Every time I go to the doctor with some injury and they ask where my pain is on a scale of 1 to 10, I have to remind them that I get migraines and nothing else rises above 5 when compared to that, including broken legs, abdominal surgery pain, etc.
 
2013-02-06 12:09:19 PM  
I got the weird aural squiggly lines thing right after giving birth.  Luckily, it never blew up into a migraine and it stopped about 6 weeks afterwards.  I've had migraines for years but without auras so the first time it happened I thought I was having a stroke or going to die.  It was really weird.
 
2013-02-06 12:34:39 PM  
as said above,
majic mushrooms is the only thing that brought relief, and one time stopping my cluster cycles
\can't believe so many fellow farkers get clusters
 
2013-02-06 12:48:14 PM  

operatorJzigworthy: stops cluster headaches

Damn the torpedoes. Where do I sign up?


This. Mine have really calmed down a lot the last few years, but 10 years ago I would have implanted this device by myself with a rusty spoon to stop the pain during a cluster.
 
2013-02-06 01:03:47 PM  
"The brain itself only perceives pain. It does not have pain receptors inside it. When you have a headache, you don't have a brain-ache. You probably have pain from the covering of the brain or these nerves that surround the covering of the brain."

farm3.static.flickr.com

Disagrees.
 
2013-02-06 01:05:09 PM  
I lived with chronic cluster headache for 19 years - 10 of those is registered disabled because of the frequency of the attacks. Seven two-hour attacks in 24 hours going on for six weeks was common. They occurred all year round. I used to self harm as a way of focusing on pain which I could control. I have been pain-free for 10 years now apart from one cluster eight years ago which was brought on by a tooth abscess.
I learned a technique which probably saved my life, which I am happy to share as long as you except I take no responsibility for what happens to you. Your experience may differ from mine.
Take the index and middle finger of each hand and press hard on the carotid artery in your neck, level or just above the larynx. Keep pressing until you can hear the blood stop pumping. If it works you will feel an immediate wash of  'nothingness' overtake your brain. The pain will disappear like a sink full of water going down the plug hole. It will leave you stunned and confused, but with a zero pain. It also causes amnesia of the preceding minutes and you may wonder why you are doing what you're doing. The pain will gradually build up again but you can do the trick as many times as you need to. Sometimes just one press is enough to abort an attack, but other times it may have only a slight effect, which is still better than nothing. It certainly beats banging your head on a brick wall, which is what I used to do. You should only do this when you are sitting down and unable to fall over as you may experience a faint. I have checked this with my own doctor and with a neurologist and both assure me that the technique is inherently safe. All I am doing is recreating the effect of standing up too quickly. It's impossible to overdo it as you will just pass out and let go. Sometimes doing it only on the side with the headache is enough, and I have made it through many business meetings by doing it very discreetly when people are looking the other way.
If you have never suffered a cluster headache then you really have no idea about what intense pain is. We can describe it, but it is impossible to imagine what it feels like. It is so severe that the brain won't even let you remember it. Fortunately for most sufferers it goes into remission at around age 50. Nobody knows why it starts or why it stops.
 
2013-02-06 01:20:29 PM  
My wife gets migraines, she was the first person I have ever been close to that gets them, when she first told me I kind of thought to myself "oh, that sucks to have a bad headache that occurs semi-regularly", then I saw her get trucked by one about a month after moving in together...balled up in a corner in a dark room...only moving to run suddenly to the bathroom and throwup...then back to the corner.  It sucks feeling so helpless when someone you love is in such obvious pain...although I completely understand being the on in pain is worse.

Instead of the light sensitivity she gets extreme sensitvity to smells.  She has always had a good nose, but it backfires during a migraine.  If she has a migraine, she can smell if I had a smoke, outside, 30 minutes ago, the second I walk in the door, even if she is on the other side of the house.  It is superhuman, but it sucks because any smells make the migraines worse...

She has managed them with some medicine and changes in diet, and cut the frequency from 2/mo to 1 every 2-3 months, and with the 2nd medicine she takes only when one comes on they tend to last 2-6 hours instead of 12-24...so it is gettig better.  I don't know if she would go for this implant though, as she is EXTREMELY squeamish about any surgery...but if you asked her during a migraine I'm sure she would sign up in a second.

/Subby
//Honestly hope that this technique works and that it can help people avoid migraine/cluster pain.
 
2013-02-06 01:24:28 PM  
Background: started having migraines and clusters in the late 70's.  Health otherwise was good.  Over the years, intensity and frequency increased.  Nothing I tried, no medicines, no treatments, had any effect whatsoever.

Couple years ago, was put on  Metoprolol (100 mg) and Hydrochlorothyazide (12.5 mg) for blood pressure problems.  As a result, my BP is great and my migs/clusters have greatly decreased in severity.  Frequency, not so much, but I don't need to have all my craniotomy tools on the wall anymore.  Aura effects are still in place, however, but generally not as intense.

This is, according to my doc, a lesser-known side effect of these two BP meds.  Doesn't have anything to do with blood pressure.  Might be something for some of you out-liers to check if nothing conventional is helping.

Re: the 1-10 pain scale mentioned above... had the same thing happen during a heart attack (blocked vein, stupid cholesterol).  They weren't convinced that I was fully realizing how much I should be hurting during the event since I was calmly holding a conversation in the ambulance and chuckling at them at telling them my name for the 14th time while my chest was exploding/crushing.  Mentioned I'd had migraines that hurt worse, this was probably an '8' on the scale, and the EMT's were all "holy gawd, dude."
 
2013-02-06 02:21:30 PM  
I was thrown off by the description of the implant procedure as being "almost" as easy as a wisdom tooth extraction.  I still have vivid unpleasant memories of my wisdom tooth extraction, decades later.  Fortunately for me, while my headaches are technically migraines, they aren't as bad as a lot of the ones described here, and I can usually soldier through them.
 
2013-02-06 02:34:21 PM  
At some point in the next month I will be calling my neurologist about this.  Right now it seems like overkill, but . . .
 
2013-02-06 02:48:13 PM  

CapeFearCadaver: namegoeshere: Kaleidoscope vision is my first symptom

I taste metal, and my jaw gets tingly as my first symptom... Then my eyes get blurry, then I get nauseous. Then my brain is in a vice. All of this happens within 3 minutes... the vice lasts about 8 hours.


Vise.  You meant vise, not vice.  As it happens, one of my vices is being overly pedantic.
 
2013-02-06 04:26:43 PM  

fuligin: If the neurologist told me he could stop my daily, chronic cluster HA's only by shoving a needle directly into my left eyeball and pouring hydrochloric acid over the bloody mess, I'd sign up on the spot. There's a reason why they call them "suicide headaches". The drugs they try off-label for this condition have caused me to have a seizure, have heart problems, and lose 60 lbs in less than two months.

There is some promising research into using non-hallucinogenic doses of psilocybin mushrooms, and many sufferers swear by it. You can guess what most of the medical community has to say about that.


/having just met with a neurologist recently about my cluster headaches, they suggested pure oxygen (inhale for 10-15 minutes) to abort the headaches, and a calcium-channel blocker and/or prednisone to cut the duration of the cluster. I've also heard suggestions for taking some type of anti-seizure meds as well, but those scare me in general principle so that would be a last resort.

May I ask what you were given to have those nasty side effects? I could use losing 60 pounds, not that way, but I've also had some weird heart palpitations lately (EKG checked out fine). Just curious what you were given

//for me, the only solution I've found so far that works to abort a cluster headache is vast amounts of caffeine - 2-3 12-oz cups of the strongest coffee my machine will produce. That probably explains the heart palps, as taking the equivalent of 10-12 shots of espresso in a 20 minute period is probably inadvisable for anyone. I can't take the Imitrex nasal spray, 5MG isn't enough and 20mg put me into serotonin syndrome the one time I grabbed the high-dose variety. Probably damn near killed me. But in those moments where every pump of blood that goes through your brain feels like a red-hot harpoon being run back and forth through the eye socket, you'll do damn near anything to get it under control.
 
2013-02-06 04:45:26 PM  
Also involves getting your ass to Mars.......
 
2013-02-06 06:07:22 PM  

operatorJzigworthy: stops cluster headaches

Damn the torpedoes. Where do I sign up?


Came here pretty much to say this.  I'd go for it in a heartbeat.

Urbn: Considering an electric drill to the head seems like a great idea during one of my migraines, this doesn't actually sound half bad


I fantasize about someone sawing into my head and using an ice cream scoop to clean out the hurting bits.
 
2013-02-06 07:44:27 PM  

suziequzie: Urbn: Considering an electric drill to the head seems like a great idea during one of my migraines, this doesn't actually sound half bad

I fantasize about someone sawing into my head and using an ice cream scoop to clean out the hurting bits.


Ah, that does sound soothing...
 
2013-02-06 07:54:09 PM  
shaft6969: I've also heard suggestions for taking some type of anti-seizure meds as well, but those scare me in general principle so that would be a last resort.

Topamax. Worked for my migraines. I am on 100mg a day and I went from curled up in bed for days and days on end and pretty much hating life to a pretty much normal life within a week of being on it. My doctor says it doesn't work for everyone and there can be some weird side effects. As I mentioned above mine aren't that bad. I am so thankful my doctor put me on it and I can only suggest that if your doctor wants you to try it, go for it. It has saved my life! I have been on it since November and went from 20 days a month of suffering to literally one major migraine since November and maybe 3 or 4 minor ones. Man I should sell shiat I sound like a commercial but after so many years of wanting to rip my eyeballs out I am finally just so happy someone suggest this stuff...
 
2013-02-06 10:34:25 PM  

Zaladreyn: Sergeant Grumbles: kim jong-un: My problem is I lose my vision too. farking weird since it isn't blindness, I can see but I can't see. My visual cortex just seems to say, ' fark this, I'm not processing that visual information so just divert it to the pain center'

That happens to me!
That usually happens at the onset of a horrible migraine, right before the pain starts.
Last time it happened, I was trying to look a blue text on a piece of paper. The entire left portion of my vision was gone. All I could see was solid blue, no matter where I looked. I didn't immediately realize what was going on, and kept moving the paper around to try and "see" what was on the side. Then it dawned on me and I went scrambling for migraine drugs.

Yeah, I could see, but couldn't see. I wasn't going to walk into walls or anything. I knew they were there. But I couldn't tell you what they looked like.


It's called having holes in your vision. It used to happen to my mom when she would get migraines. I just get silver sparkley things in my vision about 30 minutes before one hits, sometimes. When that happens, I run for the drugs and hope they work this time.


I get a big purple spot in the center of my vision. Other times I get the sparkly things in my peripheral vision.
 
2013-02-06 10:41:42 PM  

DumbAmerican: shaft6969: I've also heard suggestions for taking some type of anti-seizure meds as well, but those scare me in general principle so that would be a last resort.

Topamax. Worked for my migraines. I am on 100mg a day and I went from curled up in bed for days and days on end and pretty much hating life to a pretty much normal life within a week of being on it. My doctor says it doesn't work for everyone and there can be some weird side effects. As I mentioned above mine aren't that bad. I am so thankful my doctor put me on it and I can only suggest that if your doctor wants you to try it, go for it. It has saved my life! I have been on it since November and went from 20 days a month of suffering to literally one major migraine since November and maybe 3 or 4 minor ones. Man I should sell shiat I sound like a commercial but after so many years of wanting to rip my eyeballs out I am finally just so happy someone suggest this stuff...


I tried Topamax but the side effect I had was way too disorienting. It was almost as if my depth perception was off or something. It really messed with my vision. I would reach for something and even though it looked like it was in one place, I was off by a couple of inches. So if a cup was on the table and I'd want a drink, I'd reach for it but end up grabbing a couple of inches off to the right and missing the cup.

It works for one of my co-workers though.

Right now I'm on 30mg of Elavil with Maxalt if needed. It has reduced them down to 3-4 a month but it also depends on the season. Barometric pressure changes make my life miserable and storm season starts next month. Ugh.
 
2013-02-07 12:18:48 AM  

Alicious: I get a big purple spot in the center of my vision. Other times I get the sparkly things in my peripheral vision.


Oooh, oooh. I sometimes get the purple spot. It doesn't usually blind me. It just looks like stuff is coming out at me.
I get the things in my peripheral vision, too. I call them the shadow people.

It's fun. You start to get a migraine and you want to have people leave you alone? Just say "The portal is opening. The shadow people are here."

Honestly, I like the hallucinations. I don't even need drugs to get to see the entirety of creation ripple like droplets on a still pond. But that is almost always followed by blinding pain that feels like only a new hole in my head will cure.
 
2013-02-07 09:35:41 AM  

Sergeant Grumbles: Honestly, I like the hallucinations. I don't even need drugs to get to see the entirety of creation ripple like droplets on a still pond. But that is almost always followed by blinding pain that feels like only a new hole in my head will cure.


Fortunately, my migraines are few and far between, but the kaleidescope crescent, zigzaggy glass shards and ripply fur static are all things I've experienced. Once I realize I'm not gonna die, I just sit back and enjoy the light show. Until the barfing starts, and the evil insinuating throbbing pain.

My grandfather had cluster headaches, he used pure oxygen to some success. I have nothing but sympathy for all the people in here who have it worse than I do.
 
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