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(Facebook)   Farker's friend's son most likely has Spinal Muscular Atrophy, please check the link and read the DIT. Please. Pretty please   (facebook.com) divider line 102
    More: Sad, DIT  
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3626 clicks; posted to Main » on 18 Jan 2013 at 8:53 PM (1 year ago)   |  Favorite    |   share:  Share on Twitter share via Email Share on Facebook   more»



102 Comments   (+0 »)
   
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2013-01-18 01:09:35 PM  
His son is about 4 months old, and at 6 weeks they thought something may have been wrong with him, no/low mobility
being the most noticable issue. Fast forward months later, they're seeking a diagnosis through genetic testing and are
awaiting official results, however the doctors have told them that they "aren't looking in any other direction" but
SMA 1. I'm very unfamiliar with the disease, but that stands for "Spinal Muscular Atrophy". While I'm also not a doctor,
and I didn't use Google, I can tell that's some extremely, horrible, painfully serious things when put together in
a disorder.

He was at the baby-Chiropractor and his lung collapsed, and he was rushed to the ER 5 days ago, and it could very well not
end well... he cited a statistic that "90% of children diagnosed die before age 2", and that there was a 1 in 3,000,000
chance of getting it unless the already mutated gene is present. His son will most likely need a trach put it to live..
there have been people telling him to not give up hope, there have been people telling him that it's no way to live and to
let nature take its course... he told this all to me while somehow not completely losing it. In fact, I feel like I was
more visibly shaken because I couldn't imagine being in that position.

He was going on about it "not being a life" and I had mentioned Dr. Hawking to him.. while these conditions are COMPLETELY
SEPARATE from one another, I just kind of drew a comparison between his physical capacity and the capacity of his mind,
and he's clearly still conscious... which apparently there's a single toy at the top of his bed (I think.. that's what I
got from it, anyways), and it's a Stephen Hawking toy from the Simpsons, so he left with some hope for a better today and
tomorrow, which I was certainly glad to see.

There are infinite facets to this situation for him, and I probably shouldn't have even gone that far in explaining them.
Mostly, I'm beating around the bush because I feel strange about this, but in that link up there you can see his picture.
If you have Facebook, PLEASE like the page, and share it with your friends. If you can, PLEASE donate. If you believe in
any sort of God, PLEASE pray. His son, he, his wife, his whole family needs every last little bit of support they can get.
Emotional, spiritual, financial.. all of it. I can't even think of being in that situation, I've been crying since he
turned his back and left my house(man code, nobody can see it), and this is one of the only things I can think of
to do to help him. I've seen community support on Fark before, and I'm really really hoping that something happens here.

Again, please humor me. I'm sure there were run on sentences, rambling, spelling errors, misplaced punctuation marks..
let's come back to that another day. I really just want to do SOMETHING for the family, and I can't think of much
else besides ask for help. :-/

Love,

Witty Comment
 
2013-01-18 01:17:24 PM  
Oh God, that should say TFers FRIENDS son. NOT MINE! Can somebody change that for me? I can resubmit? I was just extra hasty in posting I guess. Haven't been on TF/submitted anything in a LONG time.
 
2013-01-18 01:22:41 PM  
Here's a link to his official story too, in case you can't find it on the page:

Link
 
2013-01-18 01:27:44 PM  

Witty Comment: Can somebody change that for me?


click the notify admins link, lower right of this
 
2013-01-18 01:35:35 PM  

alienated: Witty Comment: Can somebody change that for me?

click the notify admins link, lower right of this


Thank you very much. I think the last time I actively TF'ed was before the redesign. It's been a while. ;P

/got over it
 
2013-01-18 01:43:13 PM  

Witty Comment: Thank you very much


You're welcome. My bff's son died from Duchenne , so i will hope for the best for your friends kid
 
2013-01-18 04:00:55 PM  
Sad to hear. Spinal muscle atrophy is truly a horrific disease and there is very little hope.

Also not to be an asshole but "baby chiropractor" WTF?????

:-/
 
2013-01-18 04:17:50 PM  
I think it was a recommendation by a doctor. That's not the kind of thing they would do unless it was suggested by somebody "official". I'm sketchy on that detail,. but I'm pretty sure that's what it amounted to. For all I know it could have been an "Infant Muscular Relaxation Specialist".. who knows.
 
2013-01-18 06:17:25 PM  
As someone who cared for a husband with Lou Gherig's they are in my thoughts and prayers. SMA and PMA and ALS are good comparisons (each depending on where the motor neurons are affected most). It's horrific. There is a coach on one of the collegic teams who's son has had it for 20? Years? (Questions marks as it may be 18 and I can't remember which team it is - just saw the story before one of the games). It is truly horrific.
 
2013-01-18 08:04:13 PM  
Ugh, that's awful. Sorry for your friends
 
2013-01-18 08:09:46 PM  
Puts my AS into perspective.

:/
 
2013-01-18 08:23:41 PM  
Sorry to hear that. I'd donate if I had any money.

/in before "socialized medicine" and "power of prayer" snark
 
2013-01-18 08:27:23 PM  
Well that sucks.

Nothing worse than bad things happening to kids.  :(
 
2013-01-18 08:31:23 PM  
The only thing that can be said is to try to make the child comfortable and pain free as long as they can. Genetics is such a farking crap shoot sometimes.

/Victim of genetics.
 
2013-01-18 08:56:25 PM  
Best of luck to the kid.
 
2013-01-18 09:01:04 PM  
Wow, I cannot imagine.  So sorry  subby and for your friends.  The grief, the worry, the sadness has to be so intense.  Imagining the baby's suffering and being so helpless.  I assure you they have as many positive thoughts, my version of prayer, and just outright love that I can give them.  And as soon as I am able, I will be absolutely happy to make a donation.  Please update some in TFD.

I am so sorry.
 
2013-01-18 09:05:43 PM  
To fund. To first. To read. To soar.
 
2013-01-18 09:06:53 PM  
Sending thoughts of love and courage your/their/his way.
 
2013-01-18 09:07:58 PM  
You have my condolences, submitter et all.

Look into a DNR. This isn't a condition that will get better at all. It's something that will get progressively worse, and a child who will gradually lose any quality of life he/she has.

I know it sounds horrifically cold, but sometimes, it's better to give them the best, most comfortable life possible, and let them go when their time comes versus heroics.
 
2013-01-18 09:12:02 PM  
I hope the kid recovers.

Anyway, didn't that "I'm a Fighter" sign make you just smile a little bit.
 
2013-01-18 09:13:10 PM  

Witty Comment:
He was at the baby-Chiropractor and his lung collapsed


Keep babies away from these charlatans. Take them to DOCTORS.
 
2013-01-18 09:13:23 PM  

BronyMedic: You have my condolences, submitter et all.

Look into a DNR. This isn't a condition that will get better at all. It's something that will get progressively worse, and a child who will gradually lose any quality of life he/she has.

I know it sounds horrifically cold, but sometimes, it's better to give them the best, most comfortable life possible, and let them go when their time comes versus heroics.


I agree. My dad thinks "no one is better off dead" and insists that, if he's ever brain dead or on a ventilator or anything, we have to keep him alive no matter what the cost.

I'd rather die than suffer through just about anything that won't improve, and anything that puts me in a burn ward.
 
2013-01-18 09:13:41 PM  
SMA is a horror. Don't youtube it. Basically, as your muscles no longer get any signals, your body dissolves them, and I'm not exaggerating. Just another reason we should toss money into understanding our own damn bodies.
 
2013-01-18 09:13:48 PM  
My condolences.
 
2013-01-18 09:15:41 PM  
Alright, I'm going to be *that* guy because I just went through his with a family member. Prayer, although they make you feel good, does absolutely nothing to help someone who needs serious help. Education is key, not religion:

http://www.fsma.org/research/stemcells/

This is exactly the type of thing that can be prevented if we stopped the prayers and let the scientists do their research without them being accused of interfering with God's plan.

Best of luck.
 
2013-01-18 09:18:00 PM  
Here's a very good show...

http://www.youtube.com/watch?v=BXOTb4ZxKDI
 
2013-01-18 09:20:55 PM  
Well, it looks like I'll be postponing that TF account at least another few months.

Here you go, Connor, and I know it's not a lot, but there's a whole lot of us willing to help.
 
2013-01-18 09:22:10 PM  
Maus III: Do you have any idea what the hell you are talking about? This isn't the flu we're talking about. Please watch this.

http://www.youtube.com/watch?v=BXOTb4ZxKDI
 
2013-01-18 09:23:18 PM  
Well id love to pray for him as requested, but i dont have any virgins handy to sacrifice.
 
2013-01-18 09:23:36 PM  
Just dropped a donation. Behold, the power of FARK.
 
2013-01-18 09:25:08 PM  
Um, go to about 28 minutes into the video l linked to for the SMA story. The dystonia part is very interesting as well.
 
2013-01-18 09:27:00 PM  

Infinite Monkeys In Front Of A Computer: Alright, I'm going to be *that* guy because I just went through his with a family member. Prayer, although they make you feel good, does absolutely nothing to help someone who needs serious help. Education is key, not religion:

http://www.fsma.org/research/stemcells/

This is exactly the type of thing that can be prevented if we stopped the prayers and let the scientists do their research without them being accused of interfering with God's plan.

Best of luck.


I agree, amen!
 
2013-01-18 09:28:34 PM  
It's not that I don't care what your whoever's who is having, I'm not clicking on Facebook.
 
2013-01-18 09:28:55 PM  
Facebook = No
 
2013-01-18 09:29:06 PM  
Indubitably : I've been lazy, I know.
Here's the video
Here's where the SMA part starts.
 
gja [TotalFark]
2013-01-18 09:31:07 PM  
These posts quite literally send me for the whiskey bottle. I can only vaguely imagine my little girl being in this position.
It makes this very tough and strong man weep. And not the little boo-hoo, but the shoulders shaking, face-in-hands, tears-running-down-arms crying.
I try so hard to keep perspective in these matters, but all I can think is "this poor little human has just been dealt the crappiest hand ever, a serious health problem".

I have no words of comfort. I will list in for remote work tomorrow so I can donate. My saturday off is not as important as this.
 
2013-01-18 09:32:00 PM  
Witty Comment, they are lucky to have a friend like you, who cares so much and is so empathetic.

Bless you for being who you are for them. The parents need you more than their child does. Listen, hug them, be a quiet strength and someone they can cry with. They will be fine, because they have no choice but to take one day and a time and keep living. Just keep being that friend for them. That's what they need more than anything.
 
2013-01-18 09:32:37 PM  
As if the Lame "Comedy" Alt™ posted in this kind of thread.
 
2013-01-18 09:34:34 PM  
Please, PLEASE don't give up hope, tell your friend to stay strong for the little guy, and hey, at least he'll never have to shell out money for soccer equipment. (Or a bike, or a first car...)
 
2013-01-18 09:38:48 PM  
Best off luck little man.
 
2013-01-18 09:47:03 PM  
Bloody f--king hell. What a nightmare.

Strength and peace to the parents, and peace to the baby.
 
2013-01-18 09:52:45 PM  
I just linked on the FB page to this one. All of the kind words and thoughts in the world are welcome.

Thanks for taking a second to check it out. :)
 
2013-01-18 09:54:33 PM  
Good luck. Hope things work out for the best.
 
2013-01-18 10:00:12 PM  
So sad, but I do not do FB for any reason. I am also a huge believer in letting nature take its course. I just can't see putting anybody through the pain of a seriously debilitating disease just so I can feel better.
 
2013-01-18 10:01:07 PM  
How very sad to hear for someone so tiny to go through that. The only suggestion I have is possibly mention Jason Becker's life story. He's had ALS for a very long time now but still manages to communicate and accomplish amazing things. Perhaps that might give a little hope.
 
2013-01-18 10:04:21 PM  
I'm a pediatric nurse, and I've cared for babies with SMA1. It really is heartbreaking, and DNR is what I'd suggest. His life could be prolonged with a Gtube and a trach, but it is really such an awful disease. I'm sorry for you and your friend.
 
2013-01-18 10:15:37 PM  
I get paid tomorrow. I'll donate what I can.
 
2013-01-18 10:20:23 PM  

Aces and Eights: Witty Comment, they are lucky to have a friend like you, who cares so much and is so empathetic.

Bless you for being who you are for them. The parents need you more than their child does. Listen, hug them, be a quiet strength and someone they can cry with. They will be fine, because they have no choice but to take one day and a time and keep living. Just keep being that friend for them. That's what they need more than anything.


If I wasn't on my phone right now I would mark you as a a good person.

And set your display color to #GGGGGG :)
 
2013-01-18 10:20:44 PM  
Ugh, why do I do that to myself... Whenever I hear about a kid like this I have to read about the disease... It just makes it worse when you understand what's happening.
 
2013-01-18 10:46:16 PM  

Dragonflew: Witty Comment:
He was at the baby-Chiropractor and his lung collapsed


Keep babies away from these charlatans. Take them to DOCTORS.


I know you think you're well informed about chiropractors, but 2 quick things:

1. You're not.
2. This is not the time or place for your holier-than-thou approach to medical options.
 
2013-01-18 10:46:56 PM  
Damn, it's dusty in here. I sent them a donation.

Off to hug my son.
 
2013-01-18 10:47:38 PM  

Infinite Monkeys In Front Of A Computer: Alright, I'm going to be *that* guy because I just went through his with a family member. Prayer, although they make you feel good, does absolutely nothing to help someone who needs serious help. Education is key, not religion:

http://www.fsma.org/research/stemcells/

This is exactly the type of thing that can be prevented if we stopped the prayers and let the scientists do their research without them being accused of interfering with God's plan.

Best of luck.


Take it to /r/atheism
 
2013-01-18 11:01:15 PM  
Farker's friend's son

Father's brother's nephew's cousin's former roommate.
 
2013-01-18 11:04:12 PM  
Here's something to pass along to your friends, Witty Comment

The Julien Fleming Memorial Fund

The Julien Fleming Memorial Fund was established in order to help families whose critically or terminally ill children need treatment beyond the families' ability to pay. Even for those with medical insurance, non-covered expenses can easily soar to thousands of dollars.

/OLG Trusted and Approved
 
2013-01-18 11:07:03 PM  
I've met a few kids with SMA, mostly type 2 so longer life expectancy. They tend to be mature beyond their years and rather intelligent. Unfortunately Type1 doesn't all them to live this long.

One must really determine the goals of care to decide how much intervention to do. While his life is unfortunately shortened, if the goal of the family is to have him home for his first Christmas, this could be reasonable but would likely require a trach and a G-tube. If the goal is to keep him comfortable while his condition runs its course, this is reasonable and ethical as well and can done without over-medicalizing him.

I'm sorry this has fallen on you and your friend. Illnesses that manifest around this age are in my opinion one of the hardest to deal with because of the family's dreams and expectations of the life ahead. Please remember that there are social work services who are available to help through this period and that Child Life specialists are invaluable for helping siblings understand and cope at their level of maturity.
 
2013-01-18 11:23:05 PM  
Very sorry to hear it. Don't think anyone has posted this yet (?): There is a fairly well-read blogger who has SMA. His site is Laughing At My Nightmare. It's a good read. He seems like a cool guy.
 
2013-01-18 11:31:29 PM  
We wish him all the luck in the world.
 
2013-01-18 11:37:00 PM  

babysealclubber: Dragonflew: Witty Comment:
He was at the baby-Chiropractor and his lung collapsed


Keep babies away from these charlatans. Take them to DOCTORS.

I know you think you're well informed about chiropractors, but 2 quick things:

1. You're not.
2. This is not the time or place for your holier-than-thou approach to medical options.


The chiropractor collapsed the baby's lung, and if I'm donating money to something I'd like to know it's not going to pay for a new bone through the nose of one of those f*cking witch doctors.

Take the kid to see a real doctor.
 
2013-01-18 11:41:09 PM  

babysealclubber: I know you think you're well informed about chiropractors, but 2 quick things:

1. You're not.
2. This is not the time or place for your holier-than-thou approach to medical options.


Chiropractic "medicine" is quackery in the basic definition of the word. They "diagnose" and provide treatment on the basis that subluxations of the spine and joint misalignment are the root causes of all diseases of the human body. Despite the fact that many Chriopractors use X-rays and other imaging techniques, none of these purported causes of disease have ever been identified on legitimate studies. In reality, manual manipulation which amounts to massage, and exercising of joints can be done by a physical therapist cheaper, and on a scientific basis.

It is not "holier than thou" to call out Chiropractic medicine for a modality and method of thinking that belongs in the 1870s, when it started.
 
2013-01-18 11:43:23 PM  

Witty Comment: ...


Props to you for not playing the "totalfarker" card.

Sucks farking balls for your friend.

I hope it all turns out ok.
 
2013-01-18 11:47:01 PM  

babysealclubber: Dragonflew: Witty Comment:
He was at the baby-Chiropractor and his lung collapsed


Keep babies away from these charlatans. Take them to DOCTORS.

I know you think you're well informed about chiropractors, but 2 quick things:

1. You're not.
2. This is not the time or place for your holier-than-thou approach to medical options.


Chiropractic isn't a medical option. Go sublux yourself.
 
2013-01-18 11:50:16 PM  
Just told my 11 yr old daughter about this thread and what this baby is going through. I got her a $500 Visa gift card for christmas. Asked her if I could donate $10 of her money to the family. She told me "make it $20".

$20 coming from my little girl Angelina.

Fark is amazing how it takes care of its own. And my daughter is kinda amazing.
 
2013-01-18 11:58:04 PM  
babysealclubber: "I know you think you're well informed about chiropractors, but 2 quick things:

1. You're not.
2. This is not the time or place for your holier-than-thou approach to medical options."

1. How can you know what's in his mind?
2. Chiropractic is a medical option like astrology is an engineering option.

babysealclubber: "Take it to /r/atheism"

Why don't you pray for that and see what happens? And holy fark does your profile pic ever look like what an insufferable douche would look like. And you sound like one too, I'm imagining the pinched, nasal whine of your voice as I read your posts.
 
2013-01-18 11:59:47 PM  
Dumb question. How do I donate without having a facebook account?
 
2013-01-19 12:03:44 AM  

Shaddup: Dumb question. How do I donate without having a facebook account?


Direct link to Funding Page
 
2013-01-19 12:06:28 AM  

osmium: Very sorry to hear it. Don't think anyone has posted this yet (?): There is a fairly well-read blogger who has SMA. His site is Laughing At My Nightmare. It's a good read. He seems like a cool guy.


Another one is Jill "Nerdy Bird" Pantozzi.
 
2013-01-19 12:15:08 AM  

OtherLittleGuy: Shaddup: Dumb question. How do I donate without having a facebook account?

Direct link to Funding Page


Thanks. My daughter just sent $20. She also said a prayer for Connor. Wish there was more we could do.
 
2013-01-19 12:32:35 AM  
I'm not even certain that the Chiro collapsed the lung. I remember him saying those things close together, but you have to understand it was a pretty emotional story for him to tell.. he jumped around a lot, he had just left the hospital after five days, and I very well could have misheard something too. It just so happened that I was the first person he said he had really gotten a chance to sit down with for a brief second, and after speaking with him I was more than compelled to do ANYTHING I could at that point. I'll try and update as needed but I'm sure the family will update the Facebook page with any pertinent information, as everything there is more related to the greater issue at hand: the baby and his family.
 
2013-01-19 12:39:52 AM  

Witty Comment: I'm not even certain that the Chiro collapsed the lung. I remember him saying those things close together, but you have to understand it was a pretty emotional story for him to tell.. he jumped around a lot, he had just left the hospital after five days, and I very well could have misheard something too. It just so happened that I was the first person he said he had really gotten a chance to sit down with for a brief second, and after speaking with him I was more than compelled to do ANYTHING I could at that point. I'll try and update as needed but I'm sure the family will update the Facebook page with any pertinent information, as everything there is more related to the greater issue at hand: the baby and his family.


I showed my daughter the links provided and we were both in tears. She was in the neonatal ICU for a few weeks after she was born. My heart goes out to this family. Please keep us updated.
 
2013-01-19 12:41:03 AM  
Probably already been covered, but isnt this exactly the kind of thing that FarkUS was created for?
 
2013-01-19 01:04:14 AM  

Aces and Eights: Witty Comment, they are lucky to have a friend like you, who cares so much and is so empathetic.

Bless you for being who you are for them. The parents need you more than their child does. Listen, hug them, be a quiet strength and someone they can cry with. They will be fine, because they have no choice but to take one day and a time and keep living. Just keep being that friend for them. That's what they need more than anything.


I think this is indeed the best thing you can do. However, if you find that you don't have it in you, don't beat yourself up over it. Some people are too emotional to remain stoic in situations like these, and that isn't something you can change without significantly changing who you are. If you find that's the case, it might be better to distance yourself a little so that you aren't being an emotional drain on them, instead supporting them how you can -- for instance, bringing them dinner once a week could give them a bit of a respite and remind them that someone cares, while limiting the direct contact to an amount of time you can stand without starting to cry and adding to their stress. Whatever the limit to your help is, I'm sure it will be appreciated, even if they aren't in a position to say it.
 
2013-01-19 01:21:41 AM  

BronyMedic: babysealclubber: I know you think you're well informed about chiropractors, but 2 quick things:

1. You're not.
2. This is not the time or place for your holier-than-thou approach to medical options.

Chiropractic "medicine" is quackery in the basic definition of the word. They "diagnose" and provide treatment on the basis that subluxations of the spine and joint misalignment are the root causes of all diseases of the human body. Despite the fact that many Chriopractors use X-rays and other imaging techniques, none of these purported causes of disease have ever been identified on legitimate studies. In reality, manual manipulation which amounts to massage, and exercising of joints can be done by a physical therapist cheaper, and on a scientific basis.

It is not "holier than thou" to call out Chiropractic medicine for a modality and method of thinking that belongs in the 1870s, when it started.



I'm in chiropractic school now so I'm really getting a kick out...etc
/Going over embryology now
//Sorry to hear about your friend's kid, subby
 
2013-01-19 01:27:54 AM  
SeaMonkey311: Straight or mixer?
 
2013-01-19 01:29:33 AM  

Quantum Apostrophe: SeaMonkey311: Straight or mixer?


Too early to make a definitive decision. I'd like to stay straight but I have a feeling I may incorporate other things
 
2013-01-19 02:28:34 AM  
I wont add to flames in this, as that is just wrong, and you folks flaming should feel bad in doing so.
I have been to a few chiropractors- I have a bad spine, and it does get out of whack from time to time,
Like right now.
I think that some really do try and help folks- they have relieved pain from me on many occasions, in a single adjustment. I disagree with them strongly about doing regular adjustments, like 3 times a week.
Very strongly.
That said- if i could afford to donate and help this child, and get the one adjustment that i need, to my neck-  i would do so. As it is- i could only offer moral support, good thoughts, and a little help in having the poster contact the right folks to fix the headline.
 
2013-01-19 03:57:31 AM  
Subby, I don't know what to say about your friend's son except that I'm sorry and that my heart aches for y'all and that poor child. I just had my second child, who is three months old and I couldn't imagine how awful it is for everyone involved. All I can tell your friend is to hold his child close, show him all the love and tenderness possible, and enjoy the time he has with his son. All the advice I can give you, subby, is that you help them out as much as possible, let them vent to you, and just be there for all the good and bad.

/children should never suffer
//I don't know why some of them are doomed to it
///I'm gonna go hold my kids as tight as possible and be thank the fates they are healthy
 
2013-01-19 04:58:06 AM  
There are a few of us Farkers with SMA here. I'm type II. Your friend could benefit from support groups maybe. They will give mental support, but also information on what to expect and where to get proper care and funding for equpment. That FSMA-link someone gave is a good start, and there more groups in Facebook.
 
2013-01-19 05:04:03 AM  
Subby, thank you for being such a good friend to them - I will donate when I wake up enough to do so and the dust settles in this room a little. I have been so lucky in my life that nothing like this has happened to me but it does not reduce the sadness I feel when I hear about situations like this one. Poor baby :(
 
2013-01-19 06:06:16 AM  

wepsi: There are a few of us Farkers


O.M.G. I remember you from way way back, and- its great to see you.
 
2013-01-19 06:42:19 AM  

OtherLittleGuy: Here's something to pass along to your friends, Witty Comment

The Julien Fleming Memorial Fund

The Julien Fleming Memorial Fund was established in order to help families whose critically or terminally ill children need treatment beyond the families' ability to pay. Even for those with medical insurance, non-covered expenses can easily soar to thousands of dollars.

/OLG Trusted and Approved


Yes.
I hate to point this out, but without a verified charity you dont know where your money is going. If youre getting scammed, you are not only losing money, you're encouraging a scumbag to steal more. Ive seen obvious ones on Fark before. Donate to a recognized charity in the baby's name.

And a baby chiropracter? Seriously? Stick with a pediatrician. I'm not trying to be snarky, its just another way to waste money that should be spent on baby.

/and this ones in my prayers.
 
2013-01-19 08:11:54 AM  
Why do I click on these threads? With the genuine support and concern, there always has to be a few farking assholes. Reminds me of the stupid fights that went on when LeadFootSpiderMonkey posted about her nephew, just because some idiots didn't like the fact that the kid's parents were religious. Some even wished the boy dead because they hated his name.

WittyComment, I wish peace for your friends. Donation on its way.
 
2013-01-19 09:12:39 AM  

Quantum Apostrophe: babysealclubber: "I know you think you're well informed about chiropractors, but 2 quick things:

1. You're not.
2. This is not the time or place for your holier-than-thou approach to medical options."

1. How can you know what's in his mind?
2. Chiropractic is a medical option like astrology is an engineering option.

babysealclubber: "Take it to /r/atheism"

Why don't you pray for that and see what happens? And holy fark does your profile pic ever look like what an insufferable douche would look like. And you sound like one too, I'm imagining the pinched, nasal whine of your voice as I read your posts.


You'll get over it.
 
2013-01-19 09:16:31 AM  

Witty Comment: I'm not even certain that the Chiro collapsed the lung. I remember him saying those things close together, but you have to understand it was a pretty emotional story for him to tell.. he jumped around a lot, he had just left the hospital after five days, and I very well could have misheard something too. It just so happened that I was the first person he said he had really gotten a chance to sit down with for a brief second, and after speaking with him I was more than compelled to do ANYTHING I could at that point. I'll try and update as needed but I'm sure the family will update the Facebook page with any pertinent information, as everything there is more related to the greater issue at hand: the baby and his family.


Don't pay attention to the assholes who think its their "secret mission" on the Internet to let everyone know the real, correct truth. Just keep being an awesome friend. That's what your friend needs more than anything
 
2013-01-19 09:18:24 AM  

KellyKellyKelly: Why do I click on these threads? With the genuine support and concern, there always has to be a few farking assholes. Reminds me of the stupid fights that went on when LeadFootSpiderMonkey posted about her nephew, just because some idiots didn't like the fact that the kid's parents were religious. Some even wished the boy dead because they hated his name.

WittyComment, I wish peace for your friends. Donation on its way.


No shiat. On a thread like this, if your post starts with anything like, "I hate to be that guy, but...." or "you should never do that," they should just realize that adds nothing valuable and not post it
 
2013-01-19 09:22:49 AM  
babysealclubber: Whiny, and fruity.
 
2013-01-19 10:14:00 AM  
perhaps the kid wants to die, after being named "Connor" like the rest of the many in his class at high school graduation.
 
2013-01-19 10:21:21 AM  
Just a quick note.  The word "chiropractor" derives from the word "velociraptor," and God knows that a velociraptor's gotta eat. Get that kid to a velociraptor, stat. He'll be delicious.
 
2013-01-19 11:12:40 AM  
Well it didn't take long for the insensitive Fark crowd to come in here and crap all over your thread.

I feel for you and your friends family. I couldn't imagine what they are going through right now. Before my first daughter was born we found out she had Cystic Fibrosis. The doctors made us aware of all the things that could go wrong before and after birth. She came out healthy and still is. When my second daughter was born (also with CF), she had a hard time breathing at first (not crying, turning blue) and I was so scared that the minutes seemed like hours. That was nothing compared to your friends situation.

I will pray for your friends son, and I hope that means something whether or not you or they believe in God. But whether or not they do, and although many here don't understand it, I hope that knowing people are praying for them at least brings them a little comfort.

The last thing a person in this situation needs is someone trying to re-educate them on why they're wrong (unless they are actively harming the kid). But even then, the qualified professionals they interact with will likely handle that.

Good luck and God bless.
 
2013-01-19 12:26:58 PM  

babysealclubber: On a thread like this, if your post starts with anything like, "I hate to be that guy, but...." or "you should never do that," they should just realize that adds nothing valuable and not post it


Actually, I don't care what people think of me. If I (and the several people here who agree with me) can convince someone to think twice before taking an infant to a chiropractor, I'll be "that guy". Real doctors and even other chiropractors agree that there is little to no evidence of chiropractic doing anything useful for infants, and is in fact risky. A quote from the chiropractor author of the article: "I don't know of any reason to believe that it might be necessary to refer a child to a pediatric chiropractor or to use spinal manipulation on a child prior to onset of adolescence. "Wellness care" in the form of "subluxation correction" is unnecessary and scientifically indefensible, and it places children at risk."
 
2013-01-19 01:26:42 PM  

Dragonflew: babysealclubber: On a thread like this, if your post starts with anything like, "I hate to be that guy, but...." or "you should never do that," they should just realize that adds nothing valuable and not post it

Actually, I don't care what people think of me. If I (and the several people here who agree with me) can convince someone to think twice before taking an infant to a chiropractor, I'll be "that guy". Real doctors and even other chiropractors agree that there is little to no evidence of chiropractic doing anything useful for infants, and is in fact risky. A quote from the chiropractor author of the article: "I don't know of any reason to believe that it might be necessary to refer a child to a pediatric chiropractor or to use spinal manipulation on a child prior to onset of adolescence. "Wellness care" in the form of "subluxation correction" is unnecessary and scientifically indefensible, and it places children at risk."


Yes.
An obvious risk is that the parents will delay vital medical care to a child based on advice from some guy without a medical degree.

If you are an adult with back pain who wants to believe, its your choice. The child has no choice.
 
2013-01-19 02:21:21 PM  

Animatronik: Dragonflew: babysealclubber: On a thread like this, if your post starts with anything like, "I hate to be that guy, but...." or "you should never do that," they should just realize that adds nothing valuable and not post it

Actually, I don't care what people think of me. If I (and the several people here who agree with me) can convince someone to think twice before taking an infant to a chiropractor, I'll be "that guy". Real doctors and even other chiropractors agree that there is little to no evidence of chiropractic doing anything useful for infants, and is in fact risky. A quote from the chiropractor author of the article: "I don't know of any reason to believe that it might be necessary to refer a child to a pediatric chiropractor or to use spinal manipulation on a child prior to onset of adolescence. "Wellness care" in the form of "subluxation correction" is unnecessary and scientifically indefensible, and it places children at risk."

Yes.
An obvious risk is that the parents will delay vital medical care to a child based on advice from some guy without a medical degree.

If you are an adult with back pain who wants to believe, its your choice. The child has no choice.


Look, I'm not stating my opinions on baby chiropractors one way or the other. I'm just saying this type of thread isn't the place for it is all.
 
2013-01-19 02:54:48 PM  

babysealclubber:

Look, I'm not stating my opinions on baby chiropractors one way or the other. I'm just saying this type of thread isn't the place for it is all.


I think any thread is a good place to make people think twice about having a chiropractor do anything to their baby. This is not a nice thread full of unicorns and rainbows, so it's not a happy place to say it - but it's a thread that people are noticing and it's on topic. We don't know if the chiropractor caused the lung collapse, but it is a very real possibility. If people know this, it could save lives/injury. Are you against that too?
 
2013-01-19 03:34:18 PM  

Dragonflew: babysealclubber:

Look, I'm not stating my opinions on baby chiropractors one way or the other. I'm just saying this type of thread isn't the place for it is all.

We don't know if the chiropractor caused the lung collapse, but it is a very real possibility. If people know this, it could save lives/injury. Are you against that too?


Basically we don't know, but we'll assume. Right?

And I agree with babysealclubber. Subby didn't post this here to obtain your righteous insight, and people don't (or shouldn't) come to Fark for any sort of medical advice anyway.
 
2013-01-19 03:55:20 PM  

Mr. Breeze: And I agree with babysealclubber. Subby didn't post this here to obtain your righteous insight, and people don't (or shouldn't) come to Fark for any sort of medical advice anyway.


Righteous insight is one thing. That's not what he posted. Instead, he warned subby that going to a quack might result in your special needs child living far less of a quality life and far less of a length of life than he would going to an actual doctor.

Warning someone from going to quacks for false hope and "treatment" that can hurt a child is NOT righteous insight, and telling subby that he/she has been mislead into placing his/her child at risk is basic human decency.
 
2013-01-19 04:29:03 PM  

BronyMedic: Mr. Breeze: And I agree with babysealclubber. Subby didn't post this here to obtain your righteous insight, and people don't (or shouldn't) come to Fark for any sort of medical advice anyway.

Righteous insight is one thing. That's not what he posted. Instead, he warned subby that going to a quack might result in your special needs child living far less of a quality life and far less of a length of life than he would going to an actual doctor.

Warning someone from going to quacks for false hope and "treatment" that can hurt a child is NOT righteous insight, and telling subby that he/she has been mislead into placing his/her child at risk is basic human decency.


Reading comprehension is alive after all. Thank you.

And it was not meant just for subby, it was meant for anyone who would even consider taking their infant to a quack.
 
2013-01-19 04:32:44 PM  

BronyMedic: Mr. Breeze: And I agree with babysealclubber. Subby didn't post this here to obtain your righteous insight, and people don't (or shouldn't) come to Fark for any sort of medical advice anyway.

Righteous insight is one thing. That's not what he posted. Instead, he warned subby that going to a quack might result in your special needs child living far less of a quality life and far less of a length of life than he would going to an actual doctor.

Warning someone from going to quacks for false hope and "treatment" that can hurt a child is NOT righteous insight, and telling subby that he/she has been mislead into placing his/her child at risk is basic human decency.


You do know that it's not subby's kid right? If you really want to educate the family on not seeing a quack and using false treatments, jump on over to the Facebook page.
 
2013-01-19 04:46:26 PM  

Dragonflew:

And it was not meant just for subby, it was meant for anyone who would even consider taking their infant to a quack.

 
2013-01-19 06:05:43 PM  

Mr. Breeze: BronyMedic: Mr. Breeze: And I agree with babysealclubber. Subby didn't post this here to obtain your righteous insight, and people don't (or shouldn't) come to Fark for any sort of medical advice anyway.

Righteous insight is one thing. That's not what he posted. Instead, he warned subby that going to a quack might result in your special needs child living far less of a quality life and far less of a length of life than he would going to an actual doctor.

Warning someone from going to quacks for false hope and "treatment" that can hurt a child is NOT righteous insight, and telling subby that he/she has been mislead into placing his/her child at risk is basic human decency.

You do know that it's not subby's kid right? If you really want to educate the family on not seeing a quack and using false treatments, jump on over to the Facebook page.


I'm not really sorry my post offended you for some reason. I'm also not really sorry to point out you're concern trolling at this point.
 
2013-01-19 06:24:03 PM  

BronyMedic: Mr. Breeze: BronyMedic: Mr. Breeze: And I agree with babysealclubber. Subby didn't post this here to obtain your righteous insight, and people don't (or shouldn't) come to Fark for any sort of medical advice anyway.

Righteous insight is one thing. That's not what he posted. Instead, he warned subby that going to a quack might result in your special needs child living far less of a quality life and far less of a length of life than he would going to an actual doctor.

Warning someone from going to quacks for false hope and "treatment" that can hurt a child is NOT righteous insight, and telling subby that he/she has been mislead into placing his/her child at risk is basic human decency.

You do know that it's not subby's kid right? If you really want to educate the family on not seeing a quack and using false treatments, jump on over to the Facebook page.

I'm not really sorry my post offended you for some reason. I'm also not really sorry to point out you're concern trolling at this point.


Concern trolling? Calling you (or others) out on being inappropriate is not trolling. Also, you couldn't offend me if you tried. In order to offend me I'd have to know you personally, which I don't. But I digress, this is not the time nor the place for this sort of conversation. I'll meet you in another topic.
 
2013-01-20 12:25:20 AM  
Sounds terrible
 
2013-01-20 12:57:56 PM  

babysealclubber: Take it to /r/atheism


Sorry, when it comes to the lives of sick children I'll stick with /r/rationalism.
 
2013-01-20 01:07:48 PM  

babysealclubber: I know you think you're well informed about chiropractors, but 2 quick things:

1. You're not.
2. This is not the time or place for your holier-than-thou approach to medical options.


I do know these facts:

-This is a disucssion board. This is a thread about health of a child. This is exactly the time and the place to discuss this.
-Chiros are NINE times more like to be sued for fraud than an MD
-If your Chiro believes in http://en.wikipedia.org/wiki/Applied_kinesiology, they are a quack
-They are anti-vaccination freaks

So...bottom line, unless you are seeing a chiro for simple back adjustments (which are even debatable if they work), Chiro's are frauds.
 
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