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(KHOU Houston)   Little girl born with liver and intestines outside of her body finally goes home after 850 days. Boy, It's dusty in Texas   (khou.com) divider line 106
    More: Spiffy, Adalynn  
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9977 clicks; posted to Main » on 06 Dec 2012 at 5:40 PM (1 year ago)   |  Favorite    |   share:  Share on Twitter share via Email Share on Facebook   more»



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2012-12-06 02:58:50 PM
 
2012-12-06 03:15:56 PM
A wee bit more impressive than the Negro born with his heart on the outside.

/crazy world
 
2012-12-06 03:58:50 PM

bluorangefyre: A wee bit more impressive than the Negro born with his heart on the outside.

/crazy world


Came for the RA ref, leaving satisfied
 
2012-12-06 04:12:44 PM
"Little girl with born liver and intestines..."

I'm not sure what that affliction is called but it sounds dreadful. To begin with, what do you name a baby liver?
 
2012-12-06 05:41:45 PM

Diogenes: To begin with, what do you name a baby liver?


Patty?
 
2012-12-06 05:45:03 PM
Pricipal caught sayof...?
 
2012-12-06 05:45:49 PM

Diogenes: "Little girl with born liver and intestines..."

I'm not sure what that affliction is called but it sounds dreadful. To begin with, what do you name a baby liver?


Delicious AND nutritious!
 
2012-12-06 05:46:09 PM

bluorangefyre: A wee bit more impressive than the Negro born with his heart on the outside.

/crazy world


Someone should sell tickets.
 
2012-12-06 05:47:23 PM
Sooooo, abour $4M dollars worth of surgery to save one person, when 12,000 children in Guatemala will die from diarrhea because we couldn't spend $50 to get them clean water.

Well done folks. You should be proud.

[starvingboy_vulture.jpg]
 
2012-12-06 05:47:58 PM
Butt-chuggin should be pretty easy for her during sorority rush week, then, if all that's on the outside.
 
2012-12-06 05:48:35 PM
I spent 5 minutes debating trolling this thread. My soul is glad I decided against.
 
2012-12-06 05:49:56 PM
Ahh, another life extended. We're getting better and better at that.
 
2012-12-06 05:50:12 PM

Ow! That was my feelings!: I spent 5 minutes debating trolling this thread. My soul is glad I decided against.


From the Facebook comments on the article:

Rodrigo Dos Santos
The medical bill for this has got to be astronomical. What an enormous waste of money.


What an incredible douche.

Good luck to this little girl, may her life be a happy adventure from here on.
 
2012-12-06 05:51:32 PM

Quantum Apostrophe: Ahh, another life extended. We're getting better and better at that.


Too bad her molecules were born old.
 
2012-12-06 05:53:45 PM
img.photobucket.com
 
2012-12-06 06:00:00 PM
Lot's won't agree with me but that is a lot of pain and suffering to put a baby through. Surgery after surgery after surgery??? What kind of quality of life is that??? I would never do that to a child of my own, nor would I have wanted to suffer through two years of torture like that if I had been born with that kind of defect. "Life at any cost" is not always kind. "Life at any cost" can be extremely selfish. Sometimes it is more merciful and loving to let someone die. Yeah - I said it.
 
2012-12-06 06:00:53 PM
So her entrails were extrails?
 
2012-12-06 06:01:07 PM

Ow! That was my feelings!: I spent 5 minutes debating trolling this thread. My soul is glad I decided against.


If only everyone had made that decision. Looking at you, Sevenizgud.
 
2012-12-06 06:01:34 PM
I had a brother born with similar problems. He lived for one day. Back in the early 50's I don't think they even tried to save the child.
 
2012-12-06 06:01:44 PM
Question: Do kids who spend their first year or two in the hospital develop "normally" if you adjusted their birthday to be the day they left the hospital?

My mom had a set of twins younger than me that ended up not making it (I remember since I used to visit them in the hospital), one of which was in the hospital for a year and a week before she passed. I always felt it a little unfair that such kids were measured against a yardstick that didn't seem to take that into account.
 
2012-12-06 06:02:41 PM

Three-Fifty: Lot's won't agree with me but that is a lot of pain and suffering to put a baby through. Surgery after surgery after surgery??? What kind of quality of life is that??? I would never do that to a child of my own, nor would I have wanted to suffer through two years of torture like that if I had been born with that kind of defect. "Life at any cost" is not always kind. "Life at any cost" can be extremely selfish. Sometimes it is more merciful and loving to let someone die. Yeah - I said it.


I was hoping someone would say it before me.
 
2012-12-06 06:03:52 PM
Stupid Texans, they can't even be born right. Why don't they just execute her like they do with retards. Jeez, hurry up and secede from the union you stupid Texans!!!!

/Am I doin' it right?
//Good for the little girl. Glad she's alright.
 
2012-12-06 06:05:21 PM

Three-Fifty: Lot's won't agree with me but that is a lot of pain and suffering to put a baby through. Surgery after surgery after surgery??? What kind of quality of life is that??? I would never do that to a child of my own, nor would I have wanted to suffer through two years of torture like that if I had been born with that kind of defect. "Life at any cost" is not always kind. "Life at any cost" can be extremely selfish. Sometimes it is more merciful and loving to let someone die. Yeah - I said it.


You can see the pain and longing for death etched on her face in the photo/video accompanying the article.

Oh wait, that's joy and happiness, isn't it? Her clearly selfish parents must have forced her to do that.

/who are you trying to spare? The child? Or yourself?
 
2012-12-06 06:05:45 PM

Three-Fifty: Lot's won't agree with me but that is a lot of pain and suffering to put a baby through. Surgery after surgery after surgery??? What kind of quality of life is that??? I would never do that to a child of my own, nor would I have wanted to suffer through two years of torture like that if I had been born with that kind of defect. "Life at any cost" is not always kind. "Life at any cost" can be extremely selfish. Sometimes it is more merciful and loving to let someone die. Yeah - I said it.


Do you remember anything from when you were 1 or 2 years old?
 
2012-12-06 06:08:48 PM
I get a visceral reaction to a story about someone with so much intestinal fortitude, such guts.
 
2012-12-06 06:12:03 PM

SevenizGud: Sooooo, abour $4M dollars worth of surgery to save one person, when 12,000 children in Guatemala will die from diarrhea because we couldn't spend $50 to get them clean water.

Well done folks. You should be proud.

[starvingboy_vulture.jpg]


The world has enough grapefruit pickers
 
2012-12-06 06:12:14 PM

AdolfOliverPanties: I get a visceral reaction to a story about someone with so much intestinal fortitude, such guts.


She really held it all together, didn't she!
 
2012-12-06 06:12:49 PM

Diogenes: "Little girl with born liver and intestines..."

I'm not sure what that affliction is called but it sounds dreadful. To begin with, what do you name a baby liver?


Livvie (pops)
 
2012-12-06 06:13:30 PM
www.crowncombo.com

I see someone managed to take their swing all the way over the bar.
 
2012-12-06 06:14:03 PM

Mazzic518: Do you remember anything from when you were 1 or 2 years old?


I think I remember my internal organs staying approximately where I put them. And not needing to be kept in a handy tote bag.
 
2012-12-06 06:14:57 PM
My godson had something like this. But they knew about it before delivery, and had a surgeon on hand as soon as he was born (c section I guess?) and they shoved everything back inside, sewed him up and he's now a very healthy 11 year old. They somehow stitched the skin up to look like a belly button. He's perfectly normal now.
 
2012-12-06 06:17:14 PM

Three-Fifty: Lot's won't agree with me but that is a lot of pain and suffering to put a baby through. Surgery after surgery after surgery??? What kind of quality of life is that??? I would never do that to a child of my own, nor would I have wanted to suffer through two years of torture like that if I had been born with that kind of defect. "Life at any cost" is not always kind. "Life at any cost" can be extremely selfish. Sometimes it is more merciful and loving to let someone die. Yeah - I said it.


My first born had an ongoing seizure disorder that between the constant seizures and the drug induced stupor the treatment left him had a very poor quality of life. That being said, we tried for the 23 months he lived to figure out what was causing the seizures and get them stopped. Once his meds got balanced out, his quality of life was better, but because of the insane amounts of medication he was on, he was dealing with kidney stones and having a horrible, horrible time of it. At 23 months he died of an accidental overdose. I would have done anything to keep him here and I cannot imagine how different my life would have been if he had lived.

All that being said, when he was almost a year old, we shared a hospital room with another boy who had been born with his intestines outside his body. He was almost 2 and was getting his colostomy bag removed and his colon reattached for his (hopefully) final surgery. He was bright, interactive and a sweet boy. You should have seen the excitement in the room when his grandfather held up a dirty diaper with his first poop in it. To this day it brings tears to my eyes.

I was so envious of that family, because after their long ordeal, they WERE going to get to return to a normal life. in 20 years (hell it's been 16 now) he would have been a normal, functioning almost adult. I would advocate paying the $4M in medical bills every day if it means a decent outcome.

The money spent on my own child's medical bills I am less certain about because we didn't get a good outcome.. but how could we have known that when we began the process at 6 weeks of age? You can't, I can't...

When it comes down to it, if you can look a parent in the eyes, while you hold their child and tell them, "No, it's not any use," THEN and only then is it not worth the money spent or the pain endured.
 
2012-12-06 06:18:00 PM

Mazzic518: Three-Fifty: Lot's won't agree with me but that is a lot of pain and suffering to put a baby through. Surgery after surgery after surgery??? What kind of quality of life is that??? I would never do that to a child of my own, nor would I have wanted to suffer through two years of torture like that if I had been born with that kind of defect. "Life at any cost" is not always kind. "Life at any cost" can be extremely selfish. Sometimes it is more merciful and loving to let someone die. Yeah - I said it.

Do you remember anything from when you were 1 or 2 years old?


More specifically, of being dropped on the head repeatedly?
 
2012-12-06 06:19:21 PM

Mazzic518: Three-Fifty: Lot's won't agree with me but that is a lot of pain and suffering to put a baby through. Surgery after surgery after surgery??? What kind of quality of life is that??? I would never do that to a child of my own, nor would I have wanted to suffer through two years of torture like that if I had been born with that kind of defect. "Life at any cost" is not always kind. "Life at any cost" can be extremely selfish. Sometimes it is more merciful and loving to let someone die. Yeah - I said it.

Do you remember anything from when you were 1 or 2 years old?


Yes, I remember everything from when I was 18 months, at least.
 
2012-12-06 06:20:57 PM
I'm sure she's beside herself with relief.
 
2012-12-06 06:22:41 PM
You gotta earn that now.

I know mine isn't worth 4 million.
 
2012-12-06 06:22:46 PM
Darwin stands no chance against technology.
 
2012-12-06 06:26:17 PM

vodka: Darwin stands no chance against technology.


I disagree, Darwin stands to accidentally an hero many more people thanks to technology than was possible for the entirety of human history prior to the industrial revolution.
 
2012-12-06 06:26:26 PM
If she were in the US she would have never had access to such miraculous health care.
 
2012-12-06 06:29:07 PM

david_gaithersburg: If she were in the US she would have never had access to such miraculous health care.


that's a lie and you're an ass for proposing it.
 
2012-12-06 06:29:19 PM
QT_3.14159, I'm sorry for your loss. I myself lost two, it's never easy. And you're right. No one can put a price on it. But the last, the one we were able to keep, he's priceless to us!
 
2012-12-06 06:32:19 PM

brimed03: /who are you trying to spare? The child? Or yourself?


Myself. And the child, since it can't make decisions for itself, and as far as I'm concerned, when I give birth, I am GOD to that child. If I had a baby that was going to be ill, need constant surgeries, die young, or be so handicapped that it would need constant care or be a vegetable, you bet your ass I'd let it die.

In fact I did do that. There's lots of babies in the world, and mine was not worth a million dollars of surgery so she could die before she was an adult, anyway. Just because we can save them doesn't always that we should.

Is this little girl going to have a normal life now? Is she OK, or is she going to keep needing surgeries her whole life, be fed through a feeding tube, be weak and sickly, and in the end die before she reaches 20 anyway? Hell, all she's doing here is leaving the hospital. Two years in a hospital doesn't exactly scream "you're perfectly OK now, go out and live your life."
 
2012-12-06 06:32:32 PM
gross
 
2012-12-06 06:37:52 PM

StashMonster: Mazzic518: Three-Fifty: Lot's won't agree with me but that is a lot of pain and suffering to put a baby through. Surgery after surgery after surgery??? What kind of quality of life is that??? I would never do that to a child of my own, nor would I have wanted to suffer through two years of torture like that if I had been born with that kind of defect. "Life at any cost" is not always kind. "Life at any cost" can be extremely selfish. Sometimes it is more merciful and loving to let someone die. Yeah - I said it.

Do you remember anything from when you were 1 or 2 years old?

Yes, I remember everything from when I was 18 months, at least.


So do I. I remember just about everything.
 
2012-12-06 06:38:02 PM

cryinoutloud: brimed03: /who are you trying to spare? The child? Or yourself?

Is this little girl going to have a normal life now? Is she OK, or is she going to keep needing surgeries her whole life, be fed through a feeding tube, be weak and sickly, and in the end die before she reaches 20 anyway?


Not sure, it's not in the article, but people with such conditions have recovered and become productive fully-functional adults


Hell, all she's doing here is leaving the hospital. Two years in a hospital doesn't exactly scream "you're perfectly OK now, go out and live your life."


But it doesn't doom her to whatever future you have proclaimed for her either. And even if she isn't Perfectly OK doesn't make her life worthless...

Look, I'm sad you lost a kid, but my god are you one bitter/angry prick.
 
2012-12-06 06:39:56 PM

cryinoutloud: Two years in a hospital doesn't exactly scream "you're perfectly OK now, go out and live your life."


I can't speak to this case, but these are the kinds of cases where the kids do have good eventual outcomes.

As far as making a choice not to go to ridiculous lengths to extend the life of a child that would have a poor quality of life? That's a MUCH harder choice and one I'm sorry you had to make.

kimwim: QT_3.14159, I'm sorry for your loss. I myself lost two, it's never easy. And you're right. No one can put a price on it. But the last, the one we were able to keep, he's priceless to us!


Yes, they are, aren't they? I actually have 4 now. 15, 12 and 3 yr old twins. My life is *almost* normal... but there's still so much loss, so much heartache. But still, it makes you cherish what you have in a way you never could otherwise.
 
2012-12-06 06:42:17 PM
Since Raising Arizona has been covered already, I'll just post this

4.bp.blogspot.com

/Get off my lawn!
 
2012-12-06 06:42:38 PM
encrypted-tbn0.gstatic.com
 
2012-12-06 06:43:12 PM

SmackLT: bluorangefyre: A wee bit more impressive than the Negro born with his heart on the outside.

/crazy world

Someone should sell tickets.


Hell... I'd buy one.

Say... that reminds me...
 
2012-12-06 06:45:06 PM
www.retrocrush.com

It's like a chicken or a rabbit. Which do you want, pluck all those feathers or just pull the skin off in one go?
 
2012-12-06 06:51:33 PM

Too Pretty For Prison: SevenizGud: Sooooo, abour $4M dollars worth of surgery to save one person, when 12,000 children in Guatemala will die from diarrhea because we couldn't spend $50 to get them clean water.

Well done folks. You should be proud.

[starvingboy_vulture.jpg]

The world has enough grapefruit pickers


On one hand, I was going to remark about how said original troller probably hadn't done shiat from shine-olah in the last few years to help them out, much less any of us, and was going to post a debbie downer pic.

On the other hand, you have retorted with a similar argument that said african kids are only pumped out a dozen at a time because they're life expectancy is so low they're expected to help on the farm and die at 34.

Or I could combine the 2 and just tell the original poster to Lighten up, Francis.

WHAT DO I DO
 
2012-12-06 06:52:01 PM
My newborn was in the NICU for two days after his birth. It cost us nearly $40,000. Two YEARS in the hospital? I can't even fathom.
 
2012-12-06 06:53:17 PM
On the bright side, you probably never have a surprise problem with a turtle head or brown capping.
 
2012-12-06 06:54:28 PM
If libs had their way she would've been aborted 850 days ago
 
2012-12-06 06:57:21 PM
Haha, dusty, I get it, it's like an excuse for crying, but you're actually crying, but you're blaming it on the dust, as to not appear to be crying. How did you ever come up with that one subby? HOTY candidate!
 
2012-12-06 06:58:30 PM

The All-Powerful Atheismo: If libs had their way she would've been aborted 850 days ago


I thought Right-Wing fanatics were the ones screaming that health care is only for those who can afford it?
Now I'm confused....
 
2012-12-06 07:00:11 PM
Get in my belly!
 
2012-12-06 07:02:49 PM

Turbo Cojones: The All-Powerful Atheismo: If libs had their way she would've been aborted 850 days ago

I thought Right-Wing fanatics were the ones screaming that health care is only for those who can afford it?
Now I'm confused....


Less confusion if you didn't derp like a sheep whenever you saw a D by the name of the party you're voting for.

See, I can be a political asshole in a non-political thread too!
 
2012-12-06 07:15:31 PM
 
2012-12-06 07:16:32 PM
Cute kid. Glad she made it.

Thank God science.
 
2012-12-06 07:18:10 PM

walkerhound: Schistosoma Reflexus

/sleep well


Every birth is a miracle!
 
2012-12-06 07:21:19 PM

jmsvrsn: I had a brother born with similar problems. He lived for one day. Back in the early 50's I don't think they even tried to save the child.


CSS:
Back in HS I dated the first person to survive this condition, born in 1967. AFAIK he's still doing fine.
 
2012-12-06 07:22:15 PM

QT_3.14159: Three-Fifty: Lot's won't agree with me but that is a lot of pain and suffering to put a baby through. Surgery after surgery after surgery??? What kind of quality of life is that??? I would never do that to a child of my own, nor would I have wanted to suffer through two years of torture like that if I had been born with that kind of defect. "Life at any cost" is not always kind. "Life at any cost" can be extremely selfish. Sometimes it is more merciful and loving to let someone die. Yeah - I said it.

My first born had an ongoing seizure disorder that between the constant seizures and the drug induced stupor the treatment left him had a very poor quality of life. That being said, we tried for the 23 months he lived to figure out what was causing the seizures and get them stopped. Once his meds got balanced out, his quality of life was better, but because of the insane amounts of medication he was on, he was dealing with kidney stones and having a horrible, horrible time of it. At 23 months he died of an accidental overdose. I would have done anything to keep him here and I cannot imagine how different my life would have been if he had lived.

All that being said, when he was almost a year old, we shared a hospital room with another boy who had been born with his intestines outside his body. He was almost 2 and was getting his colostomy bag removed and his colon reattached for his (hopefully) final surgery. He was bright, interactive and a sweet boy. You should have seen the excitement in the room when his grandfather held up a dirty diaper with his first poop in it. To this day it brings tears to my eyes.

I was so envious of that family, because after their long ordeal, they WERE going to get to return to a normal life. in 20 years (hell it's been 16 now) he would have been a normal, functioning almost adult. I would advocate paying the $4M in medical bills every day if it means a decent outcome.

The money spent on my own child's medical bills I am less ...


My heart goes out to you QT.
 
2012-12-06 07:27:07 PM

Peki: Question: Do kids who spend their first year or two in the hospital develop "normally" if you adjusted their birthday to be the day they left the hospital?


Actually, they can develop Reactive Attachment Disorder if they are severely ill for the majority of their first three years, and don't successfully bond with their parents because of this. Tiny people need to bond with big people before age three, or things go really, really wrong.

Mostly you hear of this with kids who are severely neglected, or bounced from caregiver to caregiver, or, you know, those pesky Russian orphanage kids, but sometimes it happens to very sick kids.
 
2012-12-06 07:30:29 PM

bluorangefyre: A wee bit more impressive than the Negro born with his heart on the outside.

/crazy world


Only reason I opened this thread.
 
2012-12-06 07:50:26 PM
Nerd question here: Is the topology of a person with his intestines outside his body the same as that of a "normal" person?
 
2012-12-06 07:51:19 PM
And it exploded
i17.photobucket.com

/window seat, please
 
2012-12-06 07:59:51 PM

SevenizGud: Sooooo, abour $4M dollars worth of surgery to save one person, when 12,000 children in Guatemala will die from diarrhea because we couldn't spend $50 to get them clean water.

Well done folks. You should be proud.

[starvingboy_vulture.jpg]


So, is your point that we should use some very large portion of the GDP to buy basic infrastructure for 3rd/developing-world countries, thereby driving up the poverty level in our own country? I would agree with the premise that we should provide more (and more effective) foreign aid, but the idea that every expensive medical procedure is a travesty that results in thousands of other people not getting treatment shows a basic misunderstanding of how economics and health care work.
 
2012-12-06 08:03:49 PM

Gawdzila: SevenizGud: Sooooo, abour $4M dollars worth of surgery to save one person, when 12,000 children in Guatemala will die from diarrhea because we couldn't spend $50 to get them clean water.

Well done folks. You should be proud.

[starvingboy_vulture.jpg]

So, is your point that we should use some very large portion of the GDP to buy basic infrastructure for 3rd/developing-world countries, thereby driving up the poverty level in our own country? I would agree with the premise that we should provide more (and more effective) foreign aid, but the idea that every expensive medical procedure is a travesty that results in thousands of other people not getting treatment shows a basic misunderstanding of how economics and health care work.


I think his point is that he's a sanctimonious ass face.
 
2012-12-06 08:04:11 PM

FizixJunkee: Nerd question here: Is the topology of a person with his intestines outside his body the same as that of a "normal" person?


Hmmm, interesting... the topology of an object refers to properties of connectedness that forbid actually tearing or making holes in the object or surfaces in question. It seems to me that you can't get insides on the outside without creating a hole in the skin, so they would in fact have different topologies.
 
myc
2012-12-06 08:07:26 PM
si0.twimg.com

/aisle seat please
 
2012-12-06 08:10:07 PM

Gawdzila: SevenizGud: Sooooo, abour $4M dollars worth of surgery to save one person, when 12,000 children in Guatemala will die from diarrhea because we couldn't spend $50 to get them clean water.

Well done folks. You should be proud.

[starvingboy_vulture.jpg]

but the idea that every expensive medical procedure is a travesty that results in thousands of other people not getting treatment shows a basic misunderstanding of how economics and health care work.


Wait, are you trying to tell me that money not spent on X isn't guaranteed to then go to Y? Bull honkey. This little girl murdered thousands of little brown kids, and all your 'facts' and 'reason' isn't going to change that.
 
2012-12-06 08:16:24 PM
This is exactly why I'm pro-choice. This family chose to go through all the expense and medical procedures and that's bully for them, but no family should be *forced* to do the same if their kid has some horrible condition. I would absolutely terminate the pregnancy if it was me (same with conditions like spinal bifida or the condition where the fetus has no brain, whatever it's called.)
 
2012-12-06 08:40:58 PM

Gawdzila: FizixJunkee: Nerd question here: Is the topology of a person with his intestines outside his body the same as that of a "normal" person?

Hmmm, interesting... the topology of an object refers to properties of connectedness that forbid actually tearing or making holes in the object or surfaces in question. It seems to me that you can't get insides on the outside without creating a hole in the skin, so they would in fact have different topologies.


That was my conclusion, too, but I wanted to double check.
 
2012-12-06 08:45:29 PM
To answer topology question , the child is still donut shaped, and therefore the same.
 
2012-12-06 08:50:35 PM

FizixJunkee: Gawdzila: FizixJunkee: Nerd question here: Is the topology of a person with his intestines outside his body the same as that of a "normal" person?

Hmmm, interesting... the topology of an object refers to properties of connectedness that forbid actually tearing or making holes in the object or surfaces in question. It seems to me that you can't get insides on the outside without creating a hole in the skin, so they would in fact have different topologies.

That was my conclusion, too, but I wanted to double check.


Sorry to repeat myself, they are both donut shaped so topology remains the same. Horrible thought experiment but smooth both of the childrens surfaces until you are left with the simplest form.
 
2012-12-06 08:56:35 PM

Peki: Question: Do kids who spend their first year or two in the hospital develop "normally" if you adjusted their birthday to be the day they left the hospital?

My mom had a set of twins younger than me that ended up not making it (I remember since I used to visit them in the hospital), one of which was in the hospital for a year and a week before she passed. I always felt it a little unfair that such kids were measured against a yardstick that didn't seem to take that into account.


I know that, at least for teachers and caretakers, development standards for those kids are adjusted. Premies tend to match the development of their peers by the time they get out of pre-school. This, of course, does not account for those with permanent disability or damage.
 
2012-12-06 09:03:29 PM

CruJones: My godson had something like this. But they knew about it before delivery, and had a surgeon on hand as soon as he was born (c section I guess?) and they shoved everything back inside, sewed him up and he's now a very healthy 11 year old. They somehow stitched the skin up to look like a belly button. He's perfectly normal now.


Sure, until he sneezes really hard....
 
2012-12-06 09:11:20 PM
Is the dust that causes these birth defects? Something should be done about that.
 
2012-12-06 09:23:09 PM

Three-Fifty: Lot's won't agree with me but that is a lot of pain and suffering to put a baby through. Surgery after surgery after surgery??? What kind of quality of life is that??? I would never do that to a child of my own, nor would I have wanted to suffer through two years of torture like that if I had been born with that kind of defect. "Life at any cost" is not always kind. "Life at any cost" can be extremely selfish. Sometimes it is more merciful and loving to let someone die. Yeah - I said it.


You are not alone.
 
2012-12-06 09:38:41 PM
I know that I am a colossal douche (I am at Fark), but this developmental issue was known a long time before birth. Ultrasounds in the second trimester would catch this. The fact that the fetus was brought to term and millions were spent on surgery and NICU for almost 2.5 years isn't medicine. Similar philosophies at the end of life do the same. You want to know why health care costs so much in this country - this is one of the reasons. Preserve life at any cost.
 
2012-12-06 09:47:51 PM

SevenizGud: Sooooo, abour $4M dollars worth of surgery to save one person, when 12,000 children in Guatemala will die from diarrhea because we couldn't spend $50 to get them clean water.

Well done folks. You should be proud.

[starvingboy_vulture.jpg]


I was going to go with "and now her family is in debt for the rest of their lives" but that works too.
 
2012-12-06 10:00:49 PM

Pole Lock: My heart goes out to you QT.


Thank you.

madgonad: I know that I am a colossal douche (I am at Fark), but this developmental issue was known a long time before birth. Ultrasounds in the second trimester would catch this. The fact that the fetus was brought to term and millions were spent on surgery and NICU for almost 2.5 years isn't medicine. Similar philosophies at the end of life do the same. You want to know why health care costs so much in this country - this is one of the reasons. Preserve life at any cost.


Extending the end of life and providing someone with a chance at life are two completely different things. The fact is that there will likely be nothing to keep this girl from being a happy, healthy, productive member of society one day... and I PROMISE you that the lessons this ordeal has taught her parents and the people around her are well worth the costs... hell, if more people had to personally experience something like that, there would be a lot less assholes and a lot more compassion in the world.

But god forbid anyone be inconvenienced by anything that doesn't meet your standard of what a valuable life is.
 
2012-12-06 10:03:26 PM
I was born with a similar condition, but less severe (omphalocele). I was born in 1980, so no one knew about it until I was born. I had a 50/50 shot at survival at that point. I have also had around 20 surgeries by the time I was in preschool, although those were related more to other birth defects, not the omphalocele itself (except for possibly the hernia repair as a toddler). It left me traumatized when it comes to medical procedures. I still take half an Ativan before I see my general practitioner. Getting blood drawn terrifies me.

Anyway, I really hope that this little girl is not as traumatized as I was. Obviously, I remember none of what happened to me, but it's in my memory somehow anyway.
 
2012-12-06 10:06:48 PM

Three-Fifty: Lot's won't agree with me but that is a lot of pain and suffering to put a baby through. Surgery after surgery after surgery??? What kind of quality of life is that??? I would never do that to a child of my own, nor would I have wanted to suffer through two years of torture like that if I had been born with that kind of defect. "Life at any cost" is not always kind. "Life at any cost" can be extremely selfish. Sometimes it is more merciful and loving to let someone die. Yeah - I said it.


At that age they will not remember the pain and suffering they went through. Now the kid can have a normal life, and will not remember the pain she had to go with. I don't understand your logic. Life is precious, especially today when you can fix many of these abnormalities.
 
2012-12-06 10:15:30 PM
No. 7 BILLION people on this planet.

Someone is pissing in the gene pool.
 
2012-12-06 10:20:37 PM
This is exactly why America has one of the highest costing Medical industries in the world. I'm sorry, but we shouldn't be funding the search for the fountain of youth. We can't beat nature, some humans are meant to die. Imagine if we gave every single American 4 million dollars to try and beat death, America would collapse in less than a year. Attempts like this, while great for the family, are really bad once extrapolated to the entire population.

I personally know a coworker who has kept his kid alive at the cost of over 500k a year. He knows the kid won't last til the age of 15. Asked, he says the money is being wasted.

At some point we need rational medical care. We simply can't afford these adventures in medicine. It is not sustainable.

This is the same as the average Medicare patient using over 100k in services extending their last year of life by a few weeks. It is unsustainable.

Stop being scared of death. It will get you eventually. Rational medicine please.
 
2012-12-06 10:22:30 PM

FizixJunkee: Nerd question here: Is the topology of a person with his intestines outside his body the same as that of a "normal" person?


Yes. We're all doughnuts.
 
2012-12-06 10:24:40 PM

MyRandomName: This is exactly why America has one of the highest costing Medical industries in the world. I'm sorry, but we shouldn't be funding the search for the fountain of youth. We can't beat nature, some humans are meant to die. Imagine if we gave every single American 4 million dollars to try and beat death, America would collapse in less than a year. Attempts like this, while great for the family, are really bad once extrapolated to the entire population.

I personally know a coworker who has kept his kid alive at the cost of over 500k a year. He knows the kid won't last til the age of 15. Asked, he says the money is being wasted.

At some point we need rational medical care. We simply can't afford these adventures in medicine. It is not sustainable.

This is the same as the average Medicare patient using over 100k in services extending their last year of life by a few weeks. It is unsustainable.

Stop being scared of death. It will get you eventually. Rational medicine please.


Tis okay, we just need to tax the rich more.
 
2012-12-06 10:30:16 PM
Sigh. Fark threads are getting soooo predictable.
 
2012-12-06 10:37:56 PM

stringbad: FizixJunkee: Gawdzila: FizixJunkee: Nerd question here: Is the topology of a person with his intestines outside his body the same as that of a "normal" person?

Hmmm, interesting... the topology of an object refers to properties of connectedness that forbid actually tearing or making holes in the object or surfaces in question. It seems to me that you can't get insides on the outside without creating a hole in the skin, so they would in fact have different topologies.

That was my conclusion, too, but I wanted to double check.

Sorry to repeat myself, they are both donut shaped so topology remains the same. Horrible thought experiment but smooth both of the childrens surfaces until you are left with the simplest form.


I don't see how someone with a hole in their stomach is donut-shaped...
Every normal person is already a torus, being meat wrapped around the the continuous "hole" from our mouth to our asses. It seems to me that this kid basically took the surface from around the hole and poked it through a point on the surface on the outside of the donut so that it now has 2 holes. I'm not very studied in topology by any means, but my meager understanding is that you can't generally poke a new hole in any surface of an object without changing its topology.

/Yes this is a pretty horrible thought experiment
 
2012-12-06 11:01:24 PM
While my kid was at the hospital (2 months premature-- wife had preeclampsia that turned into eclampsia...) there was someone whose kid was going through this.
 
2012-12-06 11:06:30 PM

Three-Fifty: Lot's won't agree with me but that is a lot of pain and suffering to put a baby through. Surgery after surgery after surgery??? What kind of quality of life is that??? I would never do that to a child of my own, nor would I have wanted to suffer through two years of torture like that if I had been born with that kind of defect. "Life at any cost" is not always kind. "Life at any cost" can be extremely selfish. Sometimes it is more merciful and loving to let someone die. Yeah - I said it.


I was just going to post something along these lines. Is it really worth it?
 
2012-12-06 11:52:00 PM

Gawdzila: stringbad: FizixJunkee: Gawdzila: FizixJunkee: Nerd question here: Is the topology of a person with his intestines outside his body the same as that of a "normal" person?

Hmmm, interesting... the topology of an object refers to properties of connectedness that forbid actually tearing or making holes in the object or surfaces in question. It seems to me that you can't get insides on the outside without creating a hole in the skin, so they would in fact have different topologies.

That was my conclusion, too, but I wanted to double check.

Sorry to repeat myself, they are both donut shaped so topology remains the same. Horrible thought experiment but smooth both of the childrens surfaces until you are left with the simplest form.

I don't see how someone with a hole in their stomach is donut-shaped...
Every normal person is already a torus, being meat wrapped around the the continuous "hole" from our mouth to our asses. It seems to me that this kid basically took the surface from around the hole and poked it through a point on the surface on the outside of the donut so that it now has 2 holes. I'm not very studied in topology by any means, but my meager understanding is that you can't generally poke a new hole in any surface of an object without changing its topology.

/Yes this is a pretty horrible thought experiment


Maybe she'll grow up to be a Moebius stripper.
 
2012-12-07 12:31:59 AM
Pfft, lightweight

I was born with my guts inside out too, on Nov 13 1985 - Home before Xmas
With spina bifida too biatch!
AND IM A GIRL lolz
 
2012-12-07 12:33:17 AM
Adalynn?

www.screendaily.com
 
2012-12-07 01:27:04 AM

SevenizGud: Sooooo, abour $4M dollars worth of surgery to save one person, when 12,000 children in Guatemala will die from diarrhea because we couldn't spend $50 to get them clean water.

Well done folks. You should be proud.

[starvingboy_vulture.jpg]


Well, it beats eating food wrapped in golf leaf and paying a premium for coffee beans out of a cat's ass.
 
2012-12-07 01:58:48 AM

I should be in the kitchen: This is exactly why I'm pro-choice. This family chose to go through all the expense and medical procedures and that's bully for them, but no family should be *forced* to do the same if their kid has some horrible condition. I would absolutely terminate the pregnancy if it was me (same with conditions like spinal bifida or the condition where the fetus has no brain, whatever it's called.)



Conservatism.
 
2012-12-07 02:11:52 AM

technicolor-misfit: I should be in the kitchen: This is exactly why I'm pro-choice. This family chose to go through all the expense and medical procedures and that's bully for them, but no family should be *forced* to do the same if their kid has some horrible condition. I would absolutely terminate the pregnancy if it was me (same with conditions like spinal bifida or the condition where the fetus has no brain, whatever it's called.)


Conservatism.


BA-dum-bum *sssss*
 
2012-12-07 03:22:48 AM

I should be in the kitchen: This is exactly why I'm pro-choice. This family chose to go through all the expense and medical procedures and that's bully for them, but no family should be *forced* to do the same if their kid has some horrible condition. I would absolutely terminate the pregnancy if it was me (same with conditions like spinal bifida or the condition where the fetus has no brain, whatever it's called.)


Spina Bifida or Gastroschesis/Oomphalacele are nothing like Aencephaly. Most neonates born with the first two end up living lives with very little to no disability. The former requires a skilled neurosurgeon, and the later requires time and siloing to allow the abdomen to grow around the organs.

Comparing it with a universally lethal condition, like Aencephaly, where abortion is actually recommended, is silly.
 
2012-12-07 06:24:17 AM
Odd how the Intelligent Design crowd isn't here...
 
2012-12-07 10:11:58 AM

BronyMedic: I should be in the kitchen: This is exactly why I'm pro-choice. This family chose to go through all the expense and medical procedures and that's bully for them, but no family should be *forced* to do the same if their kid has some horrible condition. I would absolutely terminate the pregnancy if it was me (same with conditions like spinal bifida or the condition where the fetus has no brain, whatever it's called.)

Spina Bifida or Gastroschesis/Oomphalacele are nothing like Aencephaly. Most neonates born with the first two end up living lives with very little to no disability. The former requires a skilled neurosurgeon, and the later requires time and siloing to allow the abdomen to grow around the organs.

Comparing it with a universally lethal condition, like Aencephaly, where abortion is actually recommended, is silly.


Most, but not all. I guess i should have been more specific that I'm talking about severe cases that can't be repaired. Sadly, they do occur.
 
2012-12-07 10:13:44 AM

BronyMedic: I should be in the kitchen: This is exactly why I'm pro-choice. This family chose to go through all the expense and medical procedures and that's bully for them, but no family should be *forced* to do the same if their kid has some horrible condition. I would absolutely terminate the pregnancy if it was me (same with conditions like spinal bifida or the condition where the fetus has no brain, whatever it's called.)

Spina Bifida or Gastroschesis/Oomphalacele are nothing like Aencephaly. Most neonates born with the first two end up living lives with very little to no disability. The former requires a skilled neurosurgeon, and the later requires time and siloing to allow the abdomen to grow around the organs.

Comparing it with a universally lethal condition, like Aencephaly, where abortion is actually recommended, is silly.


Actually, even if the condition is fixable but would require a "miracle" of science, like TFA, I would abort in those cases too. I don't care what others would choose to do; that's my choice.
 
2012-12-07 10:45:16 AM
Gutsy kid...
 
2012-12-07 12:37:54 PM
It's cruel to have kept her alive.
 
2012-12-07 03:30:28 PM

BarkingUnicorn: Maybe she'll grow up to be a Moebius stripper.


I guffaw'd XD
 
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