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(KHOU Houston)   Little girl born with liver and intestines outside of her body finally goes home after 850 days. Boy, It's dusty in Texas   (khou.com) divider line 106
    More: Spiffy, Adalynn  
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9977 clicks; posted to Main » on 06 Dec 2012 at 5:40 PM (1 year ago)   |  Favorite    |   share:  Share on Twitter share via Email Share on Facebook   more»



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2012-12-06 02:58:50 PM
 
2012-12-06 03:15:56 PM
A wee bit more impressive than the Negro born with his heart on the outside.

/crazy world
 
2012-12-06 03:58:50 PM

bluorangefyre: A wee bit more impressive than the Negro born with his heart on the outside.

/crazy world


Came for the RA ref, leaving satisfied
 
2012-12-06 04:12:44 PM
"Little girl with born liver and intestines..."

I'm not sure what that affliction is called but it sounds dreadful. To begin with, what do you name a baby liver?
 
2012-12-06 05:41:45 PM

Diogenes: To begin with, what do you name a baby liver?


Patty?
 
2012-12-06 05:45:03 PM
Pricipal caught sayof...?
 
2012-12-06 05:45:49 PM

Diogenes: "Little girl with born liver and intestines..."

I'm not sure what that affliction is called but it sounds dreadful. To begin with, what do you name a baby liver?


Delicious AND nutritious!
 
2012-12-06 05:46:09 PM

bluorangefyre: A wee bit more impressive than the Negro born with his heart on the outside.

/crazy world


Someone should sell tickets.
 
2012-12-06 05:47:23 PM
Sooooo, abour $4M dollars worth of surgery to save one person, when 12,000 children in Guatemala will die from diarrhea because we couldn't spend $50 to get them clean water.

Well done folks. You should be proud.

[starvingboy_vulture.jpg]
 
2012-12-06 05:47:58 PM
Butt-chuggin should be pretty easy for her during sorority rush week, then, if all that's on the outside.
 
2012-12-06 05:48:35 PM
I spent 5 minutes debating trolling this thread. My soul is glad I decided against.
 
2012-12-06 05:49:56 PM
Ahh, another life extended. We're getting better and better at that.
 
2012-12-06 05:50:12 PM

Ow! That was my feelings!: I spent 5 minutes debating trolling this thread. My soul is glad I decided against.


From the Facebook comments on the article:

Rodrigo Dos Santos
The medical bill for this has got to be astronomical. What an enormous waste of money.


What an incredible douche.

Good luck to this little girl, may her life be a happy adventure from here on.
 
2012-12-06 05:51:32 PM

Quantum Apostrophe: Ahh, another life extended. We're getting better and better at that.


Too bad her molecules were born old.
 
2012-12-06 05:53:45 PM
img.photobucket.com
 
2012-12-06 06:00:00 PM
Lot's won't agree with me but that is a lot of pain and suffering to put a baby through. Surgery after surgery after surgery??? What kind of quality of life is that??? I would never do that to a child of my own, nor would I have wanted to suffer through two years of torture like that if I had been born with that kind of defect. "Life at any cost" is not always kind. "Life at any cost" can be extremely selfish. Sometimes it is more merciful and loving to let someone die. Yeah - I said it.
 
2012-12-06 06:00:53 PM
So her entrails were extrails?
 
2012-12-06 06:01:07 PM

Ow! That was my feelings!: I spent 5 minutes debating trolling this thread. My soul is glad I decided against.


If only everyone had made that decision. Looking at you, Sevenizgud.
 
2012-12-06 06:01:34 PM
I had a brother born with similar problems. He lived for one day. Back in the early 50's I don't think they even tried to save the child.
 
2012-12-06 06:01:44 PM
Question: Do kids who spend their first year or two in the hospital develop "normally" if you adjusted their birthday to be the day they left the hospital?

My mom had a set of twins younger than me that ended up not making it (I remember since I used to visit them in the hospital), one of which was in the hospital for a year and a week before she passed. I always felt it a little unfair that such kids were measured against a yardstick that didn't seem to take that into account.
 
2012-12-06 06:02:41 PM

Three-Fifty: Lot's won't agree with me but that is a lot of pain and suffering to put a baby through. Surgery after surgery after surgery??? What kind of quality of life is that??? I would never do that to a child of my own, nor would I have wanted to suffer through two years of torture like that if I had been born with that kind of defect. "Life at any cost" is not always kind. "Life at any cost" can be extremely selfish. Sometimes it is more merciful and loving to let someone die. Yeah - I said it.


I was hoping someone would say it before me.
 
2012-12-06 06:03:52 PM
Stupid Texans, they can't even be born right. Why don't they just execute her like they do with retards. Jeez, hurry up and secede from the union you stupid Texans!!!!

/Am I doin' it right?
//Good for the little girl. Glad she's alright.
 
2012-12-06 06:05:21 PM

Three-Fifty: Lot's won't agree with me but that is a lot of pain and suffering to put a baby through. Surgery after surgery after surgery??? What kind of quality of life is that??? I would never do that to a child of my own, nor would I have wanted to suffer through two years of torture like that if I had been born with that kind of defect. "Life at any cost" is not always kind. "Life at any cost" can be extremely selfish. Sometimes it is more merciful and loving to let someone die. Yeah - I said it.


You can see the pain and longing for death etched on her face in the photo/video accompanying the article.

Oh wait, that's joy and happiness, isn't it? Her clearly selfish parents must have forced her to do that.

/who are you trying to spare? The child? Or yourself?
 
2012-12-06 06:05:45 PM

Three-Fifty: Lot's won't agree with me but that is a lot of pain and suffering to put a baby through. Surgery after surgery after surgery??? What kind of quality of life is that??? I would never do that to a child of my own, nor would I have wanted to suffer through two years of torture like that if I had been born with that kind of defect. "Life at any cost" is not always kind. "Life at any cost" can be extremely selfish. Sometimes it is more merciful and loving to let someone die. Yeah - I said it.


Do you remember anything from when you were 1 or 2 years old?
 
2012-12-06 06:08:48 PM
I get a visceral reaction to a story about someone with so much intestinal fortitude, such guts.
 
2012-12-06 06:12:03 PM

SevenizGud: Sooooo, abour $4M dollars worth of surgery to save one person, when 12,000 children in Guatemala will die from diarrhea because we couldn't spend $50 to get them clean water.

Well done folks. You should be proud.

[starvingboy_vulture.jpg]


The world has enough grapefruit pickers
 
2012-12-06 06:12:14 PM

AdolfOliverPanties: I get a visceral reaction to a story about someone with so much intestinal fortitude, such guts.


She really held it all together, didn't she!
 
2012-12-06 06:12:49 PM

Diogenes: "Little girl with born liver and intestines..."

I'm not sure what that affliction is called but it sounds dreadful. To begin with, what do you name a baby liver?


Livvie (pops)
 
2012-12-06 06:13:30 PM
www.crowncombo.com

I see someone managed to take their swing all the way over the bar.
 
2012-12-06 06:14:03 PM

Mazzic518: Do you remember anything from when you were 1 or 2 years old?


I think I remember my internal organs staying approximately where I put them. And not needing to be kept in a handy tote bag.
 
2012-12-06 06:14:57 PM
My godson had something like this. But they knew about it before delivery, and had a surgeon on hand as soon as he was born (c section I guess?) and they shoved everything back inside, sewed him up and he's now a very healthy 11 year old. They somehow stitched the skin up to look like a belly button. He's perfectly normal now.
 
2012-12-06 06:17:14 PM

Three-Fifty: Lot's won't agree with me but that is a lot of pain and suffering to put a baby through. Surgery after surgery after surgery??? What kind of quality of life is that??? I would never do that to a child of my own, nor would I have wanted to suffer through two years of torture like that if I had been born with that kind of defect. "Life at any cost" is not always kind. "Life at any cost" can be extremely selfish. Sometimes it is more merciful and loving to let someone die. Yeah - I said it.


My first born had an ongoing seizure disorder that between the constant seizures and the drug induced stupor the treatment left him had a very poor quality of life. That being said, we tried for the 23 months he lived to figure out what was causing the seizures and get them stopped. Once his meds got balanced out, his quality of life was better, but because of the insane amounts of medication he was on, he was dealing with kidney stones and having a horrible, horrible time of it. At 23 months he died of an accidental overdose. I would have done anything to keep him here and I cannot imagine how different my life would have been if he had lived.

All that being said, when he was almost a year old, we shared a hospital room with another boy who had been born with his intestines outside his body. He was almost 2 and was getting his colostomy bag removed and his colon reattached for his (hopefully) final surgery. He was bright, interactive and a sweet boy. You should have seen the excitement in the room when his grandfather held up a dirty diaper with his first poop in it. To this day it brings tears to my eyes.

I was so envious of that family, because after their long ordeal, they WERE going to get to return to a normal life. in 20 years (hell it's been 16 now) he would have been a normal, functioning almost adult. I would advocate paying the $4M in medical bills every day if it means a decent outcome.

The money spent on my own child's medical bills I am less certain about because we didn't get a good outcome.. but how could we have known that when we began the process at 6 weeks of age? You can't, I can't...

When it comes down to it, if you can look a parent in the eyes, while you hold their child and tell them, "No, it's not any use," THEN and only then is it not worth the money spent or the pain endured.
 
2012-12-06 06:18:00 PM

Mazzic518: Three-Fifty: Lot's won't agree with me but that is a lot of pain and suffering to put a baby through. Surgery after surgery after surgery??? What kind of quality of life is that??? I would never do that to a child of my own, nor would I have wanted to suffer through two years of torture like that if I had been born with that kind of defect. "Life at any cost" is not always kind. "Life at any cost" can be extremely selfish. Sometimes it is more merciful and loving to let someone die. Yeah - I said it.

Do you remember anything from when you were 1 or 2 years old?


More specifically, of being dropped on the head repeatedly?
 
2012-12-06 06:19:21 PM

Mazzic518: Three-Fifty: Lot's won't agree with me but that is a lot of pain and suffering to put a baby through. Surgery after surgery after surgery??? What kind of quality of life is that??? I would never do that to a child of my own, nor would I have wanted to suffer through two years of torture like that if I had been born with that kind of defect. "Life at any cost" is not always kind. "Life at any cost" can be extremely selfish. Sometimes it is more merciful and loving to let someone die. Yeah - I said it.

Do you remember anything from when you were 1 or 2 years old?


Yes, I remember everything from when I was 18 months, at least.
 
2012-12-06 06:20:57 PM
I'm sure she's beside herself with relief.
 
2012-12-06 06:22:41 PM
You gotta earn that now.

I know mine isn't worth 4 million.
 
2012-12-06 06:22:46 PM
Darwin stands no chance against technology.
 
2012-12-06 06:26:17 PM

vodka: Darwin stands no chance against technology.


I disagree, Darwin stands to accidentally an hero many more people thanks to technology than was possible for the entirety of human history prior to the industrial revolution.
 
2012-12-06 06:26:26 PM
If she were in the US she would have never had access to such miraculous health care.
 
2012-12-06 06:29:07 PM

david_gaithersburg: If she were in the US she would have never had access to such miraculous health care.


that's a lie and you're an ass for proposing it.
 
2012-12-06 06:29:19 PM
QT_3.14159, I'm sorry for your loss. I myself lost two, it's never easy. And you're right. No one can put a price on it. But the last, the one we were able to keep, he's priceless to us!
 
2012-12-06 06:32:19 PM

brimed03: /who are you trying to spare? The child? Or yourself?


Myself. And the child, since it can't make decisions for itself, and as far as I'm concerned, when I give birth, I am GOD to that child. If I had a baby that was going to be ill, need constant surgeries, die young, or be so handicapped that it would need constant care or be a vegetable, you bet your ass I'd let it die.

In fact I did do that. There's lots of babies in the world, and mine was not worth a million dollars of surgery so she could die before she was an adult, anyway. Just because we can save them doesn't always that we should.

Is this little girl going to have a normal life now? Is she OK, or is she going to keep needing surgeries her whole life, be fed through a feeding tube, be weak and sickly, and in the end die before she reaches 20 anyway? Hell, all she's doing here is leaving the hospital. Two years in a hospital doesn't exactly scream "you're perfectly OK now, go out and live your life."
 
2012-12-06 06:32:32 PM
gross
 
2012-12-06 06:37:52 PM

StashMonster: Mazzic518: Three-Fifty: Lot's won't agree with me but that is a lot of pain and suffering to put a baby through. Surgery after surgery after surgery??? What kind of quality of life is that??? I would never do that to a child of my own, nor would I have wanted to suffer through two years of torture like that if I had been born with that kind of defect. "Life at any cost" is not always kind. "Life at any cost" can be extremely selfish. Sometimes it is more merciful and loving to let someone die. Yeah - I said it.

Do you remember anything from when you were 1 or 2 years old?

Yes, I remember everything from when I was 18 months, at least.


So do I. I remember just about everything.
 
2012-12-06 06:38:02 PM

cryinoutloud: brimed03: /who are you trying to spare? The child? Or yourself?

Is this little girl going to have a normal life now? Is she OK, or is she going to keep needing surgeries her whole life, be fed through a feeding tube, be weak and sickly, and in the end die before she reaches 20 anyway?


Not sure, it's not in the article, but people with such conditions have recovered and become productive fully-functional adults


Hell, all she's doing here is leaving the hospital. Two years in a hospital doesn't exactly scream "you're perfectly OK now, go out and live your life."


But it doesn't doom her to whatever future you have proclaimed for her either. And even if she isn't Perfectly OK doesn't make her life worthless...

Look, I'm sad you lost a kid, but my god are you one bitter/angry prick.
 
2012-12-06 06:39:56 PM

cryinoutloud: Two years in a hospital doesn't exactly scream "you're perfectly OK now, go out and live your life."


I can't speak to this case, but these are the kinds of cases where the kids do have good eventual outcomes.

As far as making a choice not to go to ridiculous lengths to extend the life of a child that would have a poor quality of life? That's a MUCH harder choice and one I'm sorry you had to make.

kimwim: QT_3.14159, I'm sorry for your loss. I myself lost two, it's never easy. And you're right. No one can put a price on it. But the last, the one we were able to keep, he's priceless to us!


Yes, they are, aren't they? I actually have 4 now. 15, 12 and 3 yr old twins. My life is *almost* normal... but there's still so much loss, so much heartache. But still, it makes you cherish what you have in a way you never could otherwise.
 
2012-12-06 06:42:17 PM
Since Raising Arizona has been covered already, I'll just post this

4.bp.blogspot.com

/Get off my lawn!
 
2012-12-06 06:42:38 PM
encrypted-tbn0.gstatic.com
 
2012-12-06 06:43:12 PM

SmackLT: bluorangefyre: A wee bit more impressive than the Negro born with his heart on the outside.

/crazy world

Someone should sell tickets.


Hell... I'd buy one.

Say... that reminds me...
 
2012-12-06 06:45:06 PM
www.retrocrush.com

It's like a chicken or a rabbit. Which do you want, pluck all those feathers or just pull the skin off in one go?
 
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