A wee bit more impressive than the Negro born with his heart on the outside.

/crazy world

bluorangefyre: A wee bit more impressive than the Negro born with his heart on the outside.

/crazy world

Came for the RA ref, leaving satisfied

"Little girl with born liver and intestines..."

I'm not sure what that affliction is called but it sounds dreadful. To begin with, what do you name a baby liver?

Diogenes: To begin with, what do you name a baby liver?

Patty?

Diogenes: "Little girl with born liver and intestines..."

I'm not sure what that affliction is called but it sounds dreadful. To begin with, what do you name a baby liver?

Delicious AND nutritious!

bluorangefyre: A wee bit more impressive than the Negro born with his heart on the outside.

/crazy world

Someone should sell tickets.

Butt-chuggin should be pretty easy for her during sorority rush week, then, if all that's on the outside.

I spent 5 minutes debating trolling this thread. My soul is glad I decided against.

Three-Fifty: Lot's won't agree with me but that is a lot of pain and suffering to put a baby through. Surgery after surgery after surgery??? What kind of quality of life is that??? I would never do that to a child of my own, nor would I have wanted to suffer through two years of torture like that if I had been born with that kind of defect. "Life at any cost" is not always kind. "Life at any cost" can be extremely selfish. Sometimes it is more merciful and loving to let someone die. Yeah - I said it.

I was hoping someone would say it before me.

Three-Fifty: Lot's won't agree with me but that is a lot of pain and suffering to put a baby through. Surgery after surgery after surgery??? What kind of quality of life is that??? I would never do that to a child of my own, nor would I have wanted to suffer through two years of torture like that if I had been born with that kind of defect. "Life at any cost" is not always kind. "Life at any cost" can be extremely selfish. Sometimes it is more merciful and loving to let someone die. Yeah - I said it.

Do you remember anything from when you were 1 or 2 years old?

I get a visceral reaction to a story about someone with so much intestinal fortitude, such guts.

Three-Fifty: Lot's won't agree with me but that is a lot of pain and suffering to put a baby through. Surgery after surgery after surgery??? What kind of quality of life is that??? I would never do that to a child of my own, nor would I have wanted to suffer through two years of torture like that if I had been born with that kind of defect. "Life at any cost" is not always kind. "Life at any cost" can be extremely selfish. Sometimes it is more merciful and loving to let someone die. Yeah - I said it.

My first born had an ongoing seizure disorder that between the constant seizures and the drug induced stupor the treatment left him had a very poor quality of life. That being said, we tried for the 23 months he lived to figure out what was causing the seizures and get them stopped. Once his meds got balanced out, his quality of life was better, but because of the insane amounts of medication he was on, he was dealing with kidney stones and having a horrible, horrible time of it. At 23 months he died of an accidental overdose. I would have done anything to keep him here and I cannot imagine how different my life would have been if he had lived.

All that being said, when he was almost a year old, we shared a hospital room with another boy who had been born with his intestines outside his body. He was almost 2 and was getting his colostomy bag removed and his colon reattached for his (hopefully) final surgery. He was bright, interactive and a sweet boy. You should have seen the excitement in the room when his grandfather held up a dirty diaper with his first poop in it. To this day it brings tears to my eyes.

I was so envious of that family, because after their long ordeal, they WERE going to get to return to a normal life. in 20 years (hell it's been 16 now) he would have been a normal, functioning almost adult. I would advocate paying the $4M in medical bills every day if it means a decent outcome.

The money spent on my own child's medical bills I am less certain about because we didn't get a good outcome.. but how could we have known that when we began the process at 6 weeks of age? You can't, I can't...

When it comes down to it, if you can look a parent in the eyes, while you hold their child and tell them, "No, it's not any use," THEN and only then is it not worth the money spent or the pain endured.

Mazzic518: Three-Fifty: Lot's won't agree with me but that is a lot of pain and suffering to put a baby through. Surgery after surgery after surgery??? What kind of quality of life is that??? I would never do that to a child of my own, nor would I have wanted to suffer through two years of torture like that if I had been born with that kind of defect. "Life at any cost" is not always kind. "Life at any cost" can be extremely selfish. Sometimes it is more merciful and loving to let someone die. Yeah - I said it.

Do you remember anything from when you were 1 or 2 years old?

More specifically, of being dropped on the head repeatedly?

I'm sure she's beside herself with relief.

vodka: Darwin stands no chance against technology.

I disagree, Darwin stands to accidentally an hero many more people thanks to technology than was possible for the entirety of human history prior to the industrial revolution.

david_gaithersburg: If she were in the US she would have never had access to such miraculous health care.

that's a lie and you're an ass for proposing it.

QT_3.14159, I'm sorry for your loss. I myself lost two, it's never easy. And you're right. No one can put a price on it. But the last, the one we were able to keep, he's priceless to us!

cryinoutloud: brimed03: /who are you trying to spare? The child? Or yourself?

Is this little girl going to have a normal life now? Is she OK, or is she going to keep needing surgeries her whole life, be fed through a feeding tube, be weak and sickly, and in the end die before she reaches 20 anyway?

Not sure, it's not in the article, but people with such conditions have recovered and become productive fully-functional adults


Hell, all she's doing here is leaving the hospital. Two years in a hospital doesn't exactly scream "you're perfectly OK now, go out and live your life."

But it doesn't doom her to whatever future you have proclaimed for her either. And even if she isn't Perfectly OK doesn't make her life worthless...

Look, I'm sad you lost a kid, but my god are you one bitter/angry prick.

cryinoutloud: Two years in a hospital doesn't exactly scream "you're perfectly OK now, go out and live your life."

I can't speak to this case, but these are the kinds of cases where the kids do have good eventual outcomes.

As far as making a choice not to go to ridiculous lengths to extend the life of a child that would have a poor quality of life? That's a MUCH harder choice and one I'm sorry you had to make.

kimwim: QT_3.14159, I'm sorry for your loss. I myself lost two, it's never easy. And you're right. No one can put a price on it. But the last, the one we were able to keep, he's priceless to us!

Yes, they are, aren't they? I actually have 4 now. 15, 12 and 3 yr old twins. My life is *almost* normal... but there's still so much loss, so much heartache. But still, it makes you cherish what you have in a way you never could otherwise.

Since Raising Arizona has been covered already, I'll just post this



/Get off my lawn!

SmackLT: bluorangefyre: A wee bit more impressive than the Negro born with his heart on the outside.

/crazy world

Someone should sell tickets.

Hell... I'd buy one.

Say... that reminds me...