ClownCarVag: I was crucified last year for mentioning the pointlessness of this. I think we just need to realize that some diseases are uncurable, and spend our money and time on those that are.

Uncurable is not even a word. Incurable, perhaps, but treatable because of advances made through research funded like this.

Thanks to the meds I am on, I have not had an exacerbation in over 5 years. So if you don't mind, I will enjoy that.

ClownCarVag: I think we just need to realize that some diseases are uncurable


How do you know they are uncurable, if you don't try to find a cure in the first place?

rouxkitty: DUDE!! Good thinking!!! :D Sponsorship = good thing!!!!

I sent them a pic after the first ride, maybe now that I have a timeline...

Squarebobspongepants: tin_man: Good work, Bob.

Thanks for the encouragement along the way!

It was the least I could do!

ClownCarVag: IncubatorJones: ClownCarVag: I was crucified last year for mentioning the pointlessness of this. I think we just need to realize that some diseases are uncurable, and spend our money and time on those that are.

wow. you suck.

research into treatment may not lead to a cure but the quality of life improvements are worth the cost and effort.

/grandfather had MS, no treatment available
//father died of PF, treatment helped him live 10 yrs with a terminal illness.
///sad to see you're from NE

Well, it just seems that there is a point of diminishing returns, and the muscular dystrophy diseases are at that point. There are other, less well-known diseases that are earlier on the research curve resulting in much more benefit/research dollar.

I know that there's alot of emotion in these matters, and it probably feels good to work towards a cure for what ails you, but from a purely actuarial viewpoint, these dollars are probably best
spent elsewhere.

You're kind of missing the point. These people all got together to raise money for research into treatments for this disease, because they have all been touched in one form another by it. If all of these people had stayed at home last weekend, gotten drunk and watched ESPN 2, none of those other diseases that you speak of would've been one dollar richer. As far as diminishing returns goes, I'm not qualified to make that judgment where MS is concerned, and I kind of doubt that you are either.

KarmaSpork: *why* did I miss this?!? how???

It's all good, there are a couple other riders who have linked here. If you can, throw a few bones their way.

KarmaSpork: *why* did I miss this?!? how???

I just checked your profile. I think I am going to do a Cancer ride next year too!

KarmaSpork: Next year I do the May 20k for her and me.

Set you mind and do it!

Malachilenomade: Congrats!

I've only been skimming: Did you do it just for awareness or did you have pledges?

I do the ride because even though I have MS, I am lucky enough to still have the ability to do it.

Did I read your question right?

WTG! I hope you put a dent in that bottle of Maker's.

/setting a fine example for your kids
//Not just the ride; I meant good bourbon & a nice cigar as a reward :)

Wow, I wish I'd seen this before. Congrats man, you're doing a Hell of a thing. As someone who also has MS, I know how hard doing a bike ride like that can be. (Hell, I just got home from D.C., and doing the walking in the heat was almost more than I could handle.)

So, just let me say thank you for doing it.

And why don't they have these rides when it would be less hot? Ugh.

Naeva: Wow, I wish I'd seen this before. Congrats man, you're doing a Hell of a thing. As someone who also has MS, I know how hard doing a bike ride like that can be.

It's never too late. There are people posting in this thread with links and my link is still open.

ProcrastinationStation: My pals and I ride at least one century a year, and at mile 75 or so we start waxing rhapsodic about the big juicy burgers we will grill "tailgate style" in the parking lot after the ride, and how that first icy cold beer goes directly to our tired dehydrated heads... (my fundraiser ride is a 50 for Brain Tumor Society, not as impressive, but family connections).

Grilling would be awesome except for the fact we have an hour and a half drive home after.

Hey, any kind of ride is awesome!!