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(CNN) Sad Lorenzo Odone, the kid with ALD whose life story was made into the film "Lorenzo's Oil," dies at age 30   (cnn.com) divider line 153
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17890 clicks; posted to Main » on 01 Jun 2008 at 12:17 AM   |  Make this a Fark FavoriteFavorite    |   share: Share on OMGTWITTER WEB2.0share on StumbleUponshare on Facebook  more»

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Julieahni [TotalFark] 2008-05-31 08:34:55 PM  
www.lacoctelera.com


Who?

 
smooshie [TotalFark] 2008-05-31 08:52:17 PM  
Poor kid, and his mom died a few years back too :(

At least new treatments and publicity for ALD came out of his illness. And he did live 20-something years past what was predicted.

/saw the movie
//nearly cried

 
Weaver95 [TotalFark] 2008-05-31 09:28:49 PM  
A study published in 2005, based on research with 84 boys, showed that a treatment made from olive and rapeseed oils -- patented by Augusto Odone -- can prevent onset of the disease's symptoms for most boys who receive an ALD diagnosis.



I'll bet the fact that a private individual owns that patent sticks in the craw of the drug companies too.

 
labman [TotalFark] 2008-05-31 09:56:12 PM  
So are they charging $4.00 a gallon for it, too?

 
theapp [TotalFark] 2008-05-31 11:58:02 PM  
Lorenzo Odone had come down with aspiration pneumonia recently after getting food stuck in his lungs, his father said. He began bleeding heavily, and before an ambulance reached their home, his son was dead, Odone said.

"He could not see or communicate, but he was still with us," Odone said Friday. "He did not suffer. ... That's the important thing."


Ok, it seems like he might of suffered just a little. I could be wrong though.

 
Tacoby Bellisbury 2008-06-01 12:20:09 AM  
who?

 
Unknown_Poltroon [recently expired TotalFark] 2008-06-01 12:21:48 AM  
Crap. I remember looking up that movie on IMDB and being amazed to fins out the kid was still alive.


RIP.

 
earlm 2008-06-01 12:23:28 AM  
Did somebody say oil?

midnightjester.files.wordpress.com

 
MIguy [TotalFark] 2008-06-01 12:23:34 AM  
Loser didn't even get a sequel.

 
Rent Party 2008-06-01 12:25:41 AM  
That's sad, but good lord that movie was boring.

/ Needs car chases
// and slashies!

 
Peter_Steele 2008-06-01 12:26:09 AM  
Rapeseed?

/ In MY oil?

 
rga184 2008-06-01 12:27:20 AM  
Peter_Steele: Rapeseed?

/ In MY oil?


we have a winnar!

 
3rdorderofsimulacra 2008-06-01 12:29:50 AM  
wow. just, wow. know one knows how much of a shiat i give about this relevant person's passing. i will never forget this day. ever. just like people remember where they were when kennedey was shot, i will remember. i WILL remember.

(play neil diamonds "love on the rocks")

 
Thunderpipes 2008-06-01 12:30:22 AM  
WHat a friggin waste of time and money keepin that dude alive all this time.

 
TheKingOfMexico 2008-06-01 12:31:10 AM  
Goodnight, Funnyman.

 
taw856 2008-06-01 12:33:34 AM  
When Hillary plays monopoly, does she choose the iron?

 
AllahAckbar 2008-06-01 12:34:07 AM  
I guess de Medici couldn't keep him alive forever...

/got nothin'

 
SwiftFox [TotalFark] 2008-06-01 12:34:45 AM  
Farmers like rape

 
The Billdozer 2008-06-01 12:35:15 AM  
Thunderpipes: WHat a friggin waste of time and money keepin that dude alive all this time.

Well, all that money wasted kept a family happy and prevented a lot of people from becoming like him. Maybe you could do the world a favor and show people how to play in freeway traffic correctly.

 
Kurmudgeon 2008-06-01 12:36:41 AM  
"WHat a friggin waste of time and money keepin that dude alive all this time."

And what a joy Fark is cause it allows me to know that wastes of skin like you walk the earth. It allows me to set aside that whole brotherhood of man thing and remember that some of you are less than animals. Thanks for the reminder!

 
Thunderpipes 2008-06-01 12:37:17 AM  
The Billdozer: Thunderpipes: WHat a friggin waste of time and money keepin that dude alive all this time.

Well, all that money wasted kept a family happy and prevented a lot of people from becoming like him. Maybe you could do the world a favor and show people how to play in freeway traffic correctly.


At least I would go quick and not drain money and resources just to sit there and drool. Why do we keep useless people alive? Honestly?

 
Calvin Coolidge 2008-06-01 12:37:21 AM  
SwiftFox: Farmers like rape

So do clowns, I hear.

 
mialynneb [recently expired TotalFark] 2008-06-01 12:38:11 AM  
That's horrible.

He was only 30:(

 
Thunderpipes 2008-06-01 12:38:50 AM  
Kurmudgeon: "WHat a friggin waste of time and money keepin that dude alive all this time."

And what a joy Fark is cause it allows me to know that wastes of skin like you walk the earth. It allows me to set aside that whole brotherhood of man thing and remember that some of you are less than animals. Thanks for the reminder!


What a joy it is for me to know, little baby kids like you don't know about life. That way, it is easier to slap you around like the morons you are.

The kid didn't do anything for what, 20 years? And he was kept alive? Ever think maybe he didn't like it?

 
FredaDeStilleto [TotalFark] 2008-06-01 12:39:45 AM  
I remember watching the movie on TV while downing a huge bottle of cheap cabernet. I kept crying every time Susan Sarandon was on screen, trying to save her kid's life.

But, after all that wine, she could have been trying to save the life of a spitting cobra and I would have sobbed.

 
Begoggle 2008-06-01 12:40:42 AM  
All I know, and I only speak for myself here, is that if I'm ever in a state where I can't see and can't communicate, and never will, I hope somebody or something kills me as quickly and as painlessly and as inexpensively as possible.

 
Thunderpipes 2008-06-01 12:40:45 AM  
FredaDeStilleto: I remember watching the movie on TV while downing a huge bottle of cheap cabernet. I kept crying every time Susan Sarandon was on screen, trying to save her kid's life.

But, after all that wine, she could have been trying to save the life of a spitting cobra and I would have sobbed.


I cried watching her skanky dried out hippie mouth. She should have let the kid die and have a new one, a good one, one that worked.

 
Thunderpipes 2008-06-01 12:43:35 AM  
Begoggle: All I know, and I only speak for myself here, is that if I'm ever in a state where I can't see and can't communicate, and never will, I hope somebody or something kills me as quickly and as painlessly and as inexpensively as possible.

Exactly.

 
Desire777 2008-06-01 12:44:36 AM  
labman: So are they charging $4.00 a gallon for it, too?

FTW!

 
FredaDeStilleto [TotalFark] 2008-06-01 12:44:40 AM  
Thunderpipes

He could have had wheels and a nuclear reactor heart.


*sob

 
Occam's Chainsaw [TotalFark] 2008-06-01 12:44:53 AM  
Begoggle: All I know, and I only speak for myself here, is that if I'm ever in a state where I can't see and can't communicate, and never will, I hope somebody or something kills me as quickly and as painlessly and as inexpensively as possible.

Amen. I ever start to really go and I maintain enough physical and mental faculties to know it, I'm eating my gun whilst standing in the morgue. No transportation costs, hoses down for easy clean up, move me a total of five feet for the completely pointless autopsy.

 
Ringtailed79 2008-06-01 12:46:26 AM  
Looks like I'm vacationing in Burlington VT this year

 
paxtelprop 2008-06-01 12:47:21 AM  
Nick Nolte had the worst italian accent ever. the movie was atrociously bad and boring.

 
AllahAckbar 2008-06-01 12:49:03 AM  
Lorenzo Odone

 
colatf [TotalFark] 2008-06-01 12:49:52 AM  
I will never forget one quote I read, that Nick Nolte had some plastic surgery because he had "pendulous testicles." I never saw Lorenzo's Oil, but Nick Nolte and his formerly-pendulous testicles haunt me every night.

I don't know what that says about me, but I know what it says about Nick Nolte - farker's got Pendulous Testicles. I just imagine them banging together like a perpetual motion machine, fueling his poor choices in hairstyle. Damn him and his timekeeping gonads!

 
foxbrook78 2008-06-01 12:50:29 AM  
Thunderpipes Quote 2008-06-01 12:37:17 AM
The Billdozer: Thunderpipes: WHat a friggin waste of time and money keepin that dude alive all this time.

Well, all that money wasted kept a family happy and prevented a lot of people from becoming like him. Maybe you could do the world a favor and show people how to play in freeway traffic correctly.

At least I would go quick and not drain money and resources just to sit there and drool. Why do we keep useless people alive? Honestly?


You know who else liked useless people to go quick?

/Too easy, 3/10

 
Dr.Salvador 2008-06-01 12:51:53 AM  
Begoggle: All I know, and I only speak for myself here, is that if I'm ever in a state where I can't see and can't communicate, and never will, I hope somebody or something kills me as quickly and as painlessly and as inexpensively as possible.

I kinda agree with you. Unless they can harvest stem cells to help me, then I'm as good as done.

/RIP, good man. You had no way to understand what you were going through, but everyone around you could.
//With today's medical technology, do you think someone like Lorenzo could live a lot longer

 
Red_Grimgrin 2008-06-01 12:51:58 AM  
"wasn't that the movie you called a mixture of fantasy and crap?"

"That's right! I dubbed it Fantacrap!"

 
earlm 2008-06-01 12:54:57 AM  
z.about.com

 
Thunderpipes 2008-06-01 12:55:24 AM  
How about Terry Schiavo or whatever her name was, how many here wanted her kept alive? You wonder why our health care costs are so high?

 
randomstranger 2008-06-01 12:56:01 AM  
Thunderpipes: Why do we keep useless people alive? Honestly?

The same thing could be asked of you, since you're so obviously brain dead.

Anyway, you get a 3/10 - well done!

 
livingplanb 2008-06-01 12:56:28 AM  
Maybe just feeding the trolls, but now there is hope that others with the disease can be diagnosed and treated before the disease progressed as far as it did with this young man. You can also see what efforts they put into the Myelin Project.

 
Thunderpipes 2008-06-01 12:57:42 AM  
randomstranger: Thunderpipes: Why do we keep useless people alive? Honestly?

The same thing could be asked of you, since you're so obviously brain dead.

Anyway, you get a 3/10 - well done!


Umm, I can post on the internet. Can veggie-boy? WHy do you have to be a dumbass? We keep people alive, that are not, and never will be, able to do ANYTHING! What is the point?

If your car was never going to run again, would you keep it washed and waxed, and change the oil, and keep throwing money in to it?

 
Thunderpipes 2008-06-01 12:59:45 AM  
livingplanb: Maybe just feeding the trolls, but now there is hope that others with the disease can be diagnosed and treated before the disease progressed as far as it did with this young man. You can also see what efforts they put into the Myelin Project.

Well hell, in that case, why not use retarded people for drug testing? That is basically what those parents did. Kept a useless person alive, for their own reasons.

 
SpacePunk 2008-06-01 01:00:26 AM  
-----------------
Peter_Steele: Rapeseed?

/ In MY oil?
------------------

Just wait till THAT oil hits your anus.

 
palad 2008-06-01 01:02:44 AM  
We keep "useless" people around because we're sentimental and don't like to deal with our mortality, or judging people's net worth. Probably because there isn't really a way to.

 
YoungSwedishBlonde 2008-06-01 01:03:01 AM  
Sequel planned. Title expected to be "Lorenzo's Peak Oil"

/too soon?

 
colatf [TotalFark] 2008-06-01 01:03:47 AM  
Thunderpipes: randomstranger: Thunderpipes: Why do we keep useless people alive? Honestly?

The same thing could be asked of you, since you're so obviously brain dead.

Anyway, you get a 3/10 - well done!

Umm, I can post on the internet. Can veggie-boy? WHy do you have to be a dumbass? We keep people alive, that are not, and never will be, able to do ANYTHING! What is the point?

If your car was never going to run again, would you keep it washed and waxed, and change the oil, and keep throwing money in to it?


Your trolling is too blatant. But I like how you bring everything back to cars.

And people who can't "do" anything physically are still more worthwhile than a pathetic middle-aged troll. For example, Stephen Hawking could kick your arse mentally, and his wheelchair could kick the arse of your beloved Mustang in the quarter mile.

 
randomstranger 2008-06-01 01:09:31 AM  
Thunderpipes: Umm, I can post on the internet. Can veggie-boy??

No, he's dead. Besides, if intelligence or ability were required to type on the internet Fark would be a very lonely place.

 
tuxedobob 2008-06-01 01:10:20 AM  
Kurmudgeon: And what a joy Fark is cause it allows me to know that wastes of skin like you walk the earth. It allows me to set aside that whole brotherhood of man thing and remember that some of you are less than animals. Thanks for the reminder!

If you're looking for brotherhood or respect for your fellow man, you've come to the wrong corner of the internet, my friend.

 
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